Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Height Or Weight


melblondin

Recommended Posts

melblondin Apprentice

Hi all -

We're in the process (although the wheels seem to be moving very slowly) of trying to test for celiac disease in our family and one of my questions is should I be more concerned about my kids' height, weight, or both as far as celiac is concerned?

Both of my boys, now 5 and 3, started falling off the growth curves around 12 - 18 months, and we went to the doctor yesterday because my 5 year old wasn't feeling well (his well child is in 2 weeks when we'll talk about celiac) but they weighed him and in the last year he moved from the 25th in weight to the 10th percentile <_< which means he's gone down again. He's not all that tall either, but they didn't take a measurement at this last visit. I guess I was just wondering if celiac presents more in the height of a child vs. the weight???

Thanks in advance!

By the way the referral for me to get my genetic testing done is in status pending as of today :D , so with any luck that will get approved and then I can finally see if anything is going on there for myself, which will in turn of course affect the kids.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taweavmo3 Enthusiast

I know in our case, my daughter's weight dropped down before her height did. She first lost weight at her 18 month check up, she had lost 2 pounds. But, she had grown about 1/4 inch, so no red flags went up.

This went on for another 18 months, when at age 3, she still had not regained any weight, nor gained any height. It all depends on the doctor I think, ours were very laid back about it, since I'm small. I found out about Celiac on my own....her symptoms were so vague, and she never actually got sick, but at home she was miserable all the time.

Once she was dx'd and we went on the diet, her weight was also the first thing to come back. She really plumped up for a while (I loved it!), then she eventually grew a couple of inches as well and she evened out.

Good luck with everything! This is an excellent resource for the gluten free diet, it saved my life the 1st 6 months :D

melblondin Apprentice

Thanks for your reply. We've kind of wondered what's been going on, but I'm also pretty small, so I know I'm not going to have huge kids or anything like that, but he went from the 80th percentile at 3 mths., down to the 65th or so at 6 mths., then to about the 20th at 1 year and maintained that percentile until now at 5 years where he's dropped to the 10th.

As for his height, he was in the 25th up until 3 years where he fell off the bottom of the chart into the range of about the 3rd percentile and then maintained that line at his 4 year check up so we'll see what his measurements are in a few weeks.

It all certainly makes me wonder as his brother did about the same thing and my 9 month old just dropped drastically in about a 5 month period of time. I show many symptoms myself, so this just might be a whole family affair! Hopefully answers will be coming soon.

Terrified Mom Newbie

My son's weight has always been around 50% higher than his height, except when there weren't enough percentage points to allow for 50%. ;) At birth he was 50% (although 75% corrected for gest. age)/50%. At 5 weeks he was 75% (UNcorrected, so an obvious move UP)/95%. 6 months he was over 50%/95%. Now at 3 yrs he's 10%/little over 50%. Even though he went up before down, what gives me the greatest concern is that I'm 5'7" and his daddy is 6'5". I know there are genetic "throwbacks" sometimes, but in his daddy's family that would make for a 4 generation throwback. NO ONE has been under 6'3" in at least that many generations. In my family most of my cousins are over 6', including one my husband looks up to (that cousin is 6'9"). My paternal grandfather is short, but now I have to wonder if he was supposed to be considering the height in the family otherwise. Watching other *younger* kids catch and pass him in height has been disheartening as well. Yea, younger kids will surpass genetically shorter kids at some point, but it shouldn't be this young when the age difference is still comparatively substantial.

If your babies were born high on the charts and then settled into lower curves, that's fine and normal. It's when they go up or down and settle and then move AGAIN that it's a problem. Reason being for this is that pre-natal growth is not indicative of post natal growth. Babies born big will often go through a "catch down" growth pattern. Babies born small may go through a "catch up" growth pattern. It's expected there will be some movement up or down in the early months/first year. Again, once they seem to settle, that's where they *should* stay.

buffettbride Enthusiast

My daughter was short but not emaciated thin. She had a belly and was probably slightly overweight due to bloating. She didn't fit that uberskinny vision of Celiac. Her tushy is quite flat, though, to this day.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.