Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Privacy And Your Feelings About It?


seezee

Recommended Posts

jerseyangel Proficient

Still fighting the school. The social worker who is a celiac specialist at the hospital is assisting. The medical team is very concerned. I can see now why there are federal laws about this. The school's approach seems to be to try to ignore it. SW says this is a common technique given that many parents give up. The problem is she says the emotional and physical damage is cumulative so I can't.

Thanks for the update, and like TH said--hang in there :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seezee Explorer

Met with the head of school and it was awful. I brought the class room parent. He pretty much said that even though it says in their handbook in about a dozen places that there is no food sharing at the school that in actual practice food sharing occurs in classroooms regularly and he felt the staff would need additional training to understand the rule. He also said that the school was actually a 'baking' school. He also said this was the first student with celiac which was also a lie since I spoke to the mother of an eighth grader last year who had two sons go through the school. He did agree to clean the desks in the classroom for the last 12 days of school and that it was acceptable that the teacher not offer my child food for the rest of the year. He had no answers as to why it has taken this many tries to get this done. He pretty much said that the teasing and other things were well-intentioned and that she was too sensitive and they weren't directed toward her.

This is their written policy

To protect children with food allergies and special dietary needs, food sharing is not permitted.

I wouldn't think that this as written is of such complexity that it requires special training to implement in the classroom. Poor room parent was stunned.

We are done with the school, but I will let people know. Any ideas?

TrillumHunter Enthusiast

Wow.

Like I said before, I'm not a litigious person by nature, BUT I would get lawyered up and have ANOTHER meeting with the school.

They have a written policy in place which led you to believe your daughter would be safe. They KNOWINGLY broke this policy and put your child at risk. And it wasn't the action of one teacher, but an accepted practice approved by the head of the school.

You would win.

Baking school--my a@@! :angry:

jerseyangel Proficient

Met with the head of school and it was awful....He pretty much said that even though it says in their handbook in about a dozen places that there is no food sharing at the school that in actual practice food sharing occurs in classroooms regularly

This is their written policy

To protect children with food allergies and special dietary needs, food sharing is not permitted.

This guy is talking out of both sides of his mouth and is asking for a lawsuit, if you ask me. His turning a blind eye to the rules and the emotionally abusive behavior of the teacher is dangerous for the children at that school.

  • 2 weeks later...
misslexi Apprentice

I just came across this, and I know its been a while since anyone posted but I have to chime in.

I am nearly in tears with sympathy for your daughter. When I was in grade 9 or 10 my councellor broke a ridiculous number of privacy laws on more than one occasion and it has been quite damaging to me several years later.

I couldn't do anything about it as a child, the councellor involved my parents without my permission, and teachers, and so on. Including the VP who did an equal amount of damage when I did finally try and fight to remove myself from the situation.

You need to fight this. Lawsuits, getting that 'teacher' fired. Whatever it takes to get the point across that it is not ok to break laws about privacy and medical information. People do not understand how damaging it is. I can't even form words for what I want to say. But one thing is for sure, if that happened to me now, or to my child when I have one...I would be out for blood.

My heart goes out to your little girl. Control is so important to mentally dealing with Celiac...and to have that ripped away from her is unacceptable.

conniebky Collaborator

This is a HIPPA violation. Don't teachers have to abide by that? I mean, seriously, I know health care workers do, but do teachers?

She shouldn't have said that. period.

seezee Explorer

I checked with an attorney and the hospital social worker and I think it is not HIPPA but FERPA applies to schools. (Open Original Shared Link) However, private schools aren't exactly required to follow this rule necessarily or accommodate a disability since they don't get federal funding.

I had also requested that they had a plan to clean the desks before and after serving food and this didn't happen either even though everyone at the school told me of course they would do that. They don't have a cafeteria, so you can imagine with no regular cleanup it gets yucky.

Anyways, we decided not to return to the school next year, because I don't feel like I want my child in a place where they don't protect her physical and emotional safety. There are three others from her class leaving as well (out of 11), so I am not the only one who was pretty unhappy.

I learned a lot about advocating though.

I feel sad because she really liked the other kids there a lot and most of the other teachers were really good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,119
    • Most Online (within 30 mins)
      7,748

    Lisa Holloway
    Newest Member
    Lisa Holloway
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Hi Colleen H,   I suffered with the pins and needles/burning feeling in my legs and feet for at least  6 years until my Nephrologist figured out that I had to go on a low salt diet.  He said my kidneys weren't strong enough to remove the salt.  The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option.  On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away.  Good Luck and hope this helps.  
    • Colleen H
      Yes this is very frustrating for me ... not sure what to think.  Feels like I'm having reactions to a lot of things  Now applesauce?? I don't understand 😞 
    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.