Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice!

The Glutenator

Recommended Posts

The Glutenator Contributor
The Glutenator
Posted

I had a very strong positive blood test and response to the gluten-free diet, with a negative biopsy, The Dr. only took 4 samples, though, and I am absolutely positive he missed the affected areas and that I have celiac. I have a colonoscopy now scheduled for this week. What can be seen in a colonoscopy that was missed in the endoscopy and blood work?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

The colonoscopy is not going to help with getting a celiac diagnosis. However it is a good screening tool if you are having other problems that could be colon related. I had one done two months after my celiac diagnosis and I was 35. The doctor removed a polyp I am glad I had it done for the peace of mind.

farmwife67 Explorer
farmwife67
Posted

I had a very strong positive blood test and response to the gluten-free diet, with a negative biopsy, The Dr. only took 4 samples, though, and I am absolutely positive he missed the affected areas and that I have celiac. I have a colonoscopy now scheduled for this week. What can be seen in a colonoscopy that was missed in the endoscopy and blood work?

If you feel better eating gluten-free, then I would just continue and say the heck with the biopsy. You could also do the stool testing through enterolab, but that will just lead you to knowing whether or not you are sensitive to gluten. It will not diagnose you with celiac. I say if you feel better eating gluten-free just embrace that!

Good luck!

Wolicki Enthusiast
Wolicki
Posted

False positive blood tests just don't happen. RE: biopsy- yes he should have taken at least 6 samples. And there are over 35 ft of intestine. Very possible to miss damaged areas.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,625
    • Most Online (within 30 mins)
      7,748
    Adrian Moten
    Newest Member
    Adrian Moten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.