Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spreading The News?


lcharpen

Recommended Posts

lcharpen Newbie

I was just dx a month ago and have started on a gluten-free diet... but I'm having a really hard time telling people. I don't want to make a big deal of it and I almost feel embarassed. Which I know is silly, I can't help being gluten intolerant... I just have a hard time talking about it. And how do you bring it up anyway? "Oh hey, by the way... I just discovered wheat is the devil?"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Black Sheep Apprentice

Welcome to the board!

I've been g.f. for about 5 1/2 weeks, and if the situation comes up where someone's offering me stuff with gluten, wants to get together for pizza, etc., I just tell them, I can't eat gluten anymore. They usually ask a few questions about that, which I'm happy to answer, and so far about the worst reaction I've gotten is one of sympathy, or comments like, "Well, if you can stick to that type of diet, more power to you--but I sure couldn't!" To which--depending on my mood--I either smile understandingly and say nothing, or say something about how that's too bad....because gluten intolerance is so common, that millions of people have it and don't even know it, and so have no idea what's causing their auto-immune disorders and various "tummy troubles". That shuts them right up! :lol:

Not that I'm really trying to shut them up--heck, I'll talk to them as long as they want about the subject and it's symptoms, effects, etc., but....at that point, they just don't want to think about the possibility that they might have it. Just like me, in the very near past. But, I guess the bottom line is, as I said in another thread re. this subject: I really don't give a rat's rear end what people think. :rolleyes:

tmbarke Apprentice

I was just dx a month ago and have started on a gluten-free diet... but I'm having a really hard time telling people. I don't want to make a big deal of it and I almost feel embarassed. Which I know is silly, I can't help being gluten intolerant... I just have a hard time talking about it. And how do you bring it up anyway? "Oh hey, by the way... I just discovered wheat is the devil?"

My simple response is........I'm sorry, I can only eat at Olive Garden, Outback or Carrabas since I was just diagnosed with food allergies and those places have allergen menus.

Otherwise, I'd be happy to join you for drinks!

I don't want people to treat me differently (which they will) because I'm one in a million to them with THAT kind of allergy.

But my work has agreed to add fruits and veggies and dip for meetings now along with cookies and donuts for everyone else.

They don't and won't cater to me - but I'm ok with that.......since I truly trust only MY cooking and foods I put into my mouth.

Participate! Carry a salad dressing with you and have a salad......I also find that most potato skins are safe but you can ask to see the ingredients from the container or details about the process.....and feel no shame! But if anyone likes Italian! Olive Garden and Carrabas are to DIE FOR! I have the chicken kabobs with steamed veggies and salad (it's on the gluten-free menu!)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.