Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Still Be Glutened ...


AlysounRI

Recommended Posts

AlysounRI Contributor

Hi All:

I went through testing and was not diagnosed celiac.

I have been off the poison for about 3 weeks now.

Yesterday I had some IBS flare-ups and felt like crap.

Today I am dizzy and achy all over (esp. in my arms and legs) and I am slightly nauseous and just plain exhausted!!

If you don't have the proper diagnosis of celiac, can you still be glutened?

Because this sure feels like I have been - even though I can't think of what I ate to make me feel like this!!

Thanks for your comments,

~Allison


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

YOu can be if you have a gluten allergy! I am not celiac, just Gluten-intollerant and I got Glutened yesterday. It is certainly possible!

AlysounRI Contributor

YOu can be if you have a gluten allergy! I am not celiac, just Gluten-intollerant and I got Glutened yesterday. It is certainly possible!

Sorry you feel crappy too!!

This just sucks.

I'm fighting to get any work done today.

I'm so foggy and slow.

My arms feel like lead.

I hope YOU feel better soon!!

~Allison

Ahorsesoul Enthusiast

Just because your tests come back negative does not mean you do not have celiac disease. Celiac disease, gluten intolerant, wheat allergy, the best test is to eat some gluten. Get sick? Consider it the best positive results for the test.

Remember to try this several times. Cross check what other ingredients were in what you ate. You could have problems with soy, dairy, corn or another food items.

You sound like you already can tell that you are testing positive. This is something you know in your heart and soul by the sounds of what you wrote. Consider yourself smarter than most doctors.

Think of it this way. Some people take a pregnancy test that says negative but they really are pregnant. Not everyone has "within normal" limits on their tests.

K8ling Enthusiast

Sorry you feel crappy too!!

This just sucks.

I'm fighting to get any work done today.

I'm so foggy and slow.

My arms feel like lead.

I hope YOU feel better soon!!

~Allison

LOL THanks for the love, I feel WAY better today. Husband called it a "Drive By Flouring" because it was a relatively mild reaction.

AlysounRI Contributor

Just because your tests come back negative does not mean you do not have celiac disease. Celiac disease, gluten intolerant, wheat allergy, the best test is to eat some gluten. Get sick? Consider it the best positive results for the test.

Remember to try this several times. Cross check what other ingredients were in what you ate. You could have problems with soy, dairy, corn or another food items.

I already know that I have problems with dairy and I've avoided it as much as possible for most of my life. The only dairy I can really manage is yoghurt and some hard cheeses like parmesan and romano and the occasional piece of swiss cheese. Other than that I tend to stay away from it. I just can't think of what I had on Monday night (other than a nice spinach salad with tomatoes, an avocado, and some sunflower seeds. The Boathouse Farms dressing never hurt me before.

Yesterday I had some sausage, it was good sausage but my stomach might not have been ready for it. And I did read the label. Unless it had MSG in it (and it had another name) it seemed safe, you know!! MSG makes me ill too. I think that MSG makes most people ill.

You sound like you already can tell that you are testing positive. This is something you know in your heart and soul by the sounds of what you wrote. Consider yourself smarter than most doctors.

Think of it this way. Some people take a pregnancy test that says negative but they really are pregnant. Not everyone has "within normal" limits on their tests.

Thanks, Ahorsesoul, I already know that I am smarter than most docs. If I am not celiac, I know that I have a major problem with gluten and it's why I am not willing to go back on it to "fight" the test results. But I was feeling sooooo good, esp. this past week.

Things like this are bound to happen, so I hope that they don't happen to often.

Thanks for your comment. I am being super careful with stuff and it works, for the most part, until it doesn't work. And when it doesn't I guess I have to expect it to be an incrementally harsh reaction from now on.

I'm here at work and I will carry on as best I am able to. And then I will call tonight an early night and hope it passes tomorrow. It will pass, I know that.

Thanks guys, for your help,

~Allison

AlysounRI Contributor

Husband called it a "Drive By Flouring" because it was a relatively mild reaction.

God, I love that, A "Drive By Flouring".

Brilliant.

Hubby is very clever :)

~Allison


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

God, I love that, A "Drive By Flouring".

Brilliant.

Hubby is very clever :)

~Allison

Reminds me--I was thinking how much stronger and more resiliant we actually are against colds and flue and have a tendency to look younger etc. if we stay off the gluten--so we really are in many ways much stronger than most folks. But all it takes to get us is if someone throws glutenous flour at us!! Unfortunately it is much more prevalent than superman's Kryptonite!! One could make a Broadway play about it, it could be both funny and dark at the same time...

One has to be a sleuth and develop awareness and strategies to avoid CC...and then other ones to more quickly overcome it...

Bea

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Susan Upchurch
    Newest Member
    Susan Upchurch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.