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Gaining Muscle W/ Celiac


tomtom009

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tomtom009 Apprentice

I'm 28 years old, Male, 175 lbs, 5' 11.

I have been going to the gym, on and off, since high school and my biggest problem has always been I don't put on muscle, no matter how hard I work out. At my peak I was working out 4-5 times a week, 1 1/2 hours a day (mostly lifting) and it just wasn't working out. My stomach was a mess and at best I would gain 1 or 2 pounds but mostly I just stayed the same.

Now, I have been gluten free for about 6 weeks (well, technically I got glutened 10 days ago but I'm better now). My question is, does it get easier to put on muscle mass after going gluten free? I know my intestines are still healing, and I accept that my stomach is still a little funny, but I want to work towards the future. I want to get the body I always wanted.

Any stories? theories? suggestions?

Thanks!


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masterjen Explorer

I'm a personal trainer and was diagnosed with celiac in Feb. 2010. I struggled with bouts of extreme weakness, fatigue, muscle tremors and headache with ANY attempt (even 10 minutes at low intensity :( ). Only now have I been able to exercise for 20 minutes without symptoms, and only at 30% of my previous intensity. . .). My abs are disgusting: I used to have a 4-pack (never made it to 6 - LOL) but, ah, not anymore. My muscle structure/toning for the rest of me is "kind of" there. I haven't actually gained weight per se, fortunately.

My interpretation of what has been going on in my case is that I was going through that gluten withdrawal thing, and plus my intestines have not been absorbing food properly. So, as things are beginning to heal, food (protein included, of course) will start to be better absorbed so that I will have the energy for a better workout, and finally then I hope to get some of my toning and muscle structure back. Now I have to turn what I tell my clients back to me: it takes time, don't expect over-night changes, don't overdo it, etc. etc. I'm discovering it is a lot easier to say the words than to hear and live by them!!!

In your case, I would say make sure you are getting enough protein, but don't overload your body with it. If you decide you need to increase your protein intake, do it gradually or your intestines may rebel.

chasbari Apprentice

FWIW I am an old fart of 49. Worked out pretty much all my life until complications from undiagnosed celiac shut things down several years ago. I was "bulking up" all the while I was getting weaker and so people thought I was actually much stronger as I got sicker and sicker. When I was finally Dx'ed properly a year ago February and went on paleo to keep compliance in the no brainer zone I lost almost all my body fat in scary fast time. At about the same time I started rebuilding many of my old exercise prototypes as I was now able to tolerate exercise for the first time in years... then I was given several vintage pieces of Nautilus equipment to do some retrofit experiments with as well as seven other pieces of commercial equipment. I now have a ridiculous personal gym. I have gotten considerably stronger all while healing but I am super lean and have a hard time gaining much in the way of muscle mass. I upped my vitamin D intake and managed to gain a whopping 2 pounds in 6 weeks. Thing is, I have never felt better and am no longer concerned with whether or not I get any bigger... only concerned with getting healthier. Two years ago I could barely get out of a chair. Now I can sprint, run, bike, I can do fifteen dips and chins with my bodyweight as well as tolerate some pretty heavy duty workouts.. but it is the ability to work that has been the greatest gain from all of this. I know I still have a ways to go in the healing department so workouts are always secondary to how I am feeling. Tomorrow is a scheduled day for me and if I feel good I will stick with the workout. Patience. Take care of the healing first and foremost!

tictax707 Apprentice

It's totally possible to be able to gain muscle after your diagnosis. I second what another poster said about easing into it and letting your body heal from the gluten before packing on the protein and weighlifting. I am confident that once you heal a bit you can definitely build muscle. I know that's happened to me personally in the years since my diagnosis. :)

stef-the-kicking-cuty Enthusiast

I totally have to agree. I'm not a weightlifter. I'm a martial artist for life. Before my diagnoses I had real bad problems. I gained muscles, but slowly and very lean. And even if I would take one day break I ruined everything. Now I'm actually able to keep some of my muscleas, even though I'm not working out everyday anymore, which is more of a toddler problem than a physical problem. Single mom's sometimes can't do everything they want.

Stef

ciavyn Contributor

I'll third...fourth...fifth (whatever number I am) what everyone else said. You will build muscle again. Just make sure you do plenty of cardio if you want your muscles to show -- to shed body fat, that's the best way, not to mention, you'll feel better and more capable when you work on building muscles.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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