Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Like A Horse!


The Glutenator

Recommended Posts

The Glutenator Contributor

It seems as though, no matter how much I eat, my body can barely keep up. Has anyone else noticed this with the celiac diagnosis? I am usually hungry, but even if I'm not I''m diligent about snacking between meals, plus my meals are just bigger than those around me. Add to that the fact that gluten-free processed foods tend to be more calorie dense than the regular stuff, and I am thinking "where are all these calories going?". I am fairly balanced during meals with fruits, veg, protein, and dairy but have dessert almost every night (cheese cake, brownies with ice cream...). My snacks are pretty big too! It has been about 3 months gluten free and at this stage I feel like I can barely maintain my weight! Can anyone else relate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



my.oh.my Newbie

Hi there,

Must be difficult to eat a lot knowing that they are full of carbs and can show.What I would suggest is having your Thyroids tested. I know my mom had the same issue and was clueless until she got her thyroids tested.That was the answer!!!

Good Luck!

The Glutenator Contributor

It can be socially awkward. I try to keep snacks around, but my friends are just getting used to me always munching on something. Since I am pretty tiny, when people see me consistently eating the quantities I do they begin to have questions! Gah.

chasbari Apprentice

I know what you are dealing with. For the first 9 months or so I couldn't get enough calories and could barely keep from dropping any more weight after dropping a frightening fast forty pounds... and I was eating all day long. Huge meals and constant snacking. In the last several months things have finally eased a bit. Coincidentally I upped my vitamin D3 intake substantially and the appetite seemed to settle a bit and I also actually gained a pound over the course of a few weeks. I figure with all the healing that has to happen it is no surprise that I have been this hungry. Now that I am not assaulting my body with poison it wants all the calories it can get to try to make things work better again.

ciavyn Contributor

Me too! I've been gluten-free for six months, and I'm ALWAYS hungry. I am training for a half-marathon, so logically I'm going to be hungry, but I'm famished constantly. And it's real hunger, not emotional munching craving. Very frustrating.

The Glutenator Contributor

Its great to hear that there is hope, then. I mean, I like having dessert every night, but it is less of a treat when it is part of your daily routine! Finger's crossed that my body will start to settle at some point too. I am spending some time in Europe in August, and would like to put on a bit of weight before then. I am tiny right now, and since most people lose weight backpacking (and thats when they enjoy pastries, gelato, beer, and all the other local foods that I am totally depressed to be missing out on!) I need some safety weight, or else I'm worried I'll have no energy.

allisons Newbie

I think it's possible there's a number of things happening here - first of all, gluten foods are higher in protein than a lot of their gluten-free substitutes and they're going to make you feel fuller longer. Sugary foods don't make you feel full, no matter how much calories you have because they digest so quickly. Rice NEVER makes me feel full, neither does corn. How often/how much meat do you eat? How much quinoa or other protein rich grains do you get? How about diary and eggs?

Second, you're probably not getting as much fiber as you used to, either. Another thing to make you feel full. Most American diets get a big ole chunk of their fiber from whole wheat - cut out the wheat and it's not easy to replace it with the rice flour based substitutes.

But also, 6 months is really just the very beginning of recovery of your villi - you may not be absorbing everything as well as a healthy person yet but with most of the inflammation going away, you might have an appetite back that was suppressed by discomfort before you began the gluten-free diet. If you still haven't gained any weight in another six months, I'd get worried.

I'll second the bit about getting your thyroid checked - many celiacs are falsely diagnosed with thyroid issues - maybe it could go the other way? I know that one autoimmune disorder increases your risks for a second one, and thyroid is a simple blood test so it shouldn't be hard to do.

Don't be ashamed of eating. But do talk to your doctor about anything you feel is "odd"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Leper Messiah Apprentice

I'm always starving. I've got weak adrenals too so it's like a constant worry where my next gluten-free meal is coming from. I need to plan my meals better.

Hunger was easing a bit on the gluten-free diet but after a glutening it goes back into overdrive.

Shannonlass Apprentice

If you are staying at the same weight I don't see a problem really. Lucky you. My weight just keeps going up and up and up no matter how carefully I eat or how much exercise I take :angry:

The Glutenator Contributor

I just saw my GI today, and he said that any time now, as my intestines heal, I'll start retaining more nutrients and my weight will go up. He was poking around my abdomen and said, due to muscle depletion, my abdominal walls are weak and my kidneys and other organs aren't very protected. Eek! So more brownies and cheesecake for now! Could be healthy and say protein bars, healthy fats, and proteins, but hey how often in life do you have a excuse for constant treats?!?

Note: No I am worried I will be on here in 2 months saying I can't control my massive weight gain, but one step at a time for now...

ciavyn Contributor

I just saw my GI today, and he said that any time now, as my intestines heal, I'll start retaining more nutrients and my weight will go up. He was poking around my abdomen and said, due to muscle depletion, my abdominal walls are weak and my kidneys and other organs aren't very protected. Eek! So more brownies and cheesecake for now! Could be healthy and say protein bars, healthy fats, and proteins, but hey how often in life do you have a excuse for constant treats?!?

Note: No I am worried I will be on here in 2 months saying I can't control my massive weight gain, but one step at a time for now...

If you are able to start some light exercise (or continue, if you already are) you should be fine. I eat like a horse, too, and I think it's because I'm so active...but I also don't gain weight at this point. Which I'll take...

The Glutenator Contributor

I am active with exercise, so that could be part of it. For now, just going to eat more calorie dense foods and more often. Once I get my weight up a bit, I can go back o eating what I have been (still a lot) and hopefully stay stable. Come on muscle...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.