Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Gain


OlearS

Recommended Posts

OlearS Newbie

Has anyone had trouble with weight gain? I've been diagnosed for 6 years and I've gained nearly 60 lbs. I eat gluten-free, work out regularly with a personal trainer, count calories, etc. I can't stop gaining. Any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

Sure hope we can find an answer!

It took 6 months from getting sick to being diagnosed and I lost 60 lbs in that time. That was five years and it was great to learn that I could eat gluten-free -- only I gained about 100 pounds --

Even this week -- nightly salad and thats it -- still gaining weight. they are trying to figure it out sine I have some parathyroid trouble and recent heart trouble. Trying to get up my energy or nerve to do a cleanse and fast --

sure hope we can figure this out.

Good luck

Ken

Has anyone had trouble with weight gain? I've been diagnosed for 6 years and I've gained nearly 60 lbs. I eat gluten-free, work out regularly with a personal trainer, count calories, etc. I can't stop gaining. Any suggestions?

kayo Explorer

I just posted this in another thread but will copy it here:

Soy is linked to inexplicable weight gain. It's used in place of gluten in a lot of gluten-free free foods and it's in a lot of manufactured food in general. It's actually quite difficult to avoid, even more so than gluten. I believe soy is the culprit for my weight gain. I've been soy free for 4-ish months and just beginning to slim a bit but haven't lost any real weight. Since I'm dairy free I was eating a lot of soy (soy milk, soy ice cream, tofutti) but then when I found out I was intolerant and had to give it up I realized just how much soy is hidden in our foods. It's used as a filler. Something to consider as it totally threw me for a loop.

Soy is also linked to thyroid issues. I know when I've had soy because I can feel the glands in my neck and cheeks swell. I had my thyroid tested recently, awaiting the results.

Kathy59 Rookie

I noticed you are new to the site...you might want to post this issue on the Diet and Weight issues forum or just look at that forum for insight to the issue..

I have gotten some valuable info from the forum. 6 years is a long time to me of not getting some stability with the issue. Makes me a bit nervous as I was just Dx in Feb and have already gained back the 25 lbs I lost from being sick and my body looks like it is gaining; however, I am considering the info I got from this forum.

Good Luck to you and this site has been a great support system for me, even though I don't post very often.

Jestgar Rising Star

I just posted this in another thread but will copy it here:

Soy is linked to inexplicable weight gain. It's used in place of gluten in a lot of gluten-free free foods and it's in a lot of manufactured food in general. It's actually quite difficult to avoid, even more so than gluten. I

Soy is also linked to thyroid issues.

If you post blanket statements like this you'll need to site sources - what book did you get this from? What article? what URL? that sort of thing.

Korwyn Explorer

If you post blanket statements like this you'll need to site sources - what book did you get this from? What article? what URL? that sort of thing.

Hi Jestgar,

I have run across a lot of research (there was an article in the British Journal of Medicine - I think I saw it sometime in the winter of 2008-2009) going into detail on the linkage between soy and thyroid issues. This is a fairly well documented relationship in people that already have depressed thryoid function. Which is probably the real source of the not well researched or documented 'soy linked to inexplicable weight gain'. Thyroid function directly impacts hormone function which impacts insulin, pancreatic, and liver functions which affect the whole triglyceride cycle and adipose tissue which can cause weight gain or loss depending on a whole ton of things. While I have a lot of issues with way soy is being marketed, without much publication or awareness of its effect on hormones and the estrogen and testosterone precursors, any direct link between soy and weight gain is tenuous to say the least from anything I've seen.

Hi Kayo,

On another note I have to agree with Jestgar. If you don't know or have the exact reference, at the very least cite where you recall that you saw the information so that someone else can research it. If nothing else just say, 'I did a quick google about X and Y and found that .....' This will help people who don't have the time, inclination, or ability to do their own research to at least make a semi-informed judgement on how much weight to give your statement.

kayo Explorer

I didn't think I'd have to point out that a quick google search would lead to more info since that is pretty much standard these days. Never the less check out 'The Hidden Dangers of Soy'. There's a website and a book, both of which I have read, both of which have tons of info on how soy affects the thyroid and can cause weight gain. The author provides her own story and research and includes stories from other people as well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Not everyone is well versed in using search engines. People with all different levels of experience use this forum.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.