Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vomiting


betharlene24

Recommended Posts

betharlene24 Newbie

Does anyone have a child with celiac disease who vomits a lot? My son was diagnosed 2 weeks ago. He's been vomiting 10-14 times a day for a month. Going gluten-free hasn't made any difference yet. Any ideas? We are at a loss as to whether this is really from celiac or some other unkown. Thanks for any insight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jknnej Collaborator

Has he had any other tests? That isn't normal-he could have an ulcer or some sort of stomach obstruction-how old is he?

Have you taken him to the hospital or does it clear up right after he gets sick?

A student of mine who is 16 has this problem and they are giving her a bunch of tests including an upper GI, endoscopy, etc.

I hope he gets better!!!

lovegrov Collaborator

He could have celiac AND something else (false positives for celiac are rare). This is not standard for celiac.

richard

KaitiUSA Enthusiast

There could be another problem in addition to celiac.

It takes time to heal so not all symptoms will be gone so soon. I never had vomiting but I had nausea with celiac and it took 3 months to get significantly better. Try keeping a food journal of everything he eats so you know if there is something else that seems to upset him more.

Terri-Anne Apprentice

Have you removed the milk, or more specifically the lactose from your child's diet? I recall my daughter having an average of 10 mucous bm's by noon each day, before we figured out what was causing the diarrhea. Once we removed the milk from her diet, the diarrhea stopped too. We later switched her to the lactose reduced milk which she is able to tolerate well. I too am lactose intolerant, and I know that when I ingest more than a tiny amount of lactose, I feel nauseated, cramps etc.

Lactose intolerance is also very common in celiac disease until the gut has a chance to heal. Talk about possibility this with your doctor. You may test this theory by removing the lactose from your childs diet to see if things improve.

Either way, be sure to discuss this problem with your doctor ASAP as this is definitely not normal, and could signify a serious problem that needs medical attention.

Good luck in your search for answers. I wish your child a rapid return to good health!

Guest nini

both me and my child had very severe vomiting with celiac prior to diagnosis. when I get glutened it's one of the first things that happens to me, I start vomiting and then comes the big "D"...

It could be that there is something else going on, reflux or ulcer or something else, but it could also be since he is only recently diagnosed, that there is still hidden gluten in his diet, also, the lactose issue could be significant.

I would def. talk with the dr. about it, but at least in my case and my daughter's case, we had lots of vomiting. I just accidentally got glutened this weekend (for the second time in a month) after two years of being gluten free, and the first thing that happened was I started vomiting and spent most of Sunday throwing up.

How old is he?

emsmom Apprentice

Hi

I Think you should check with you Doctor But I will tell you that my DD vomited constantly since birth and if she eats Gluten she will vomit along with severe stomach pain how old is your son?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Vomiting is more common with the younger children. My daughter would vomit and "D" every time she was exposed to gluten. During the first weeks she was on the gluten free diet she started eating dog food, and cat food. Totally sick! I know. It could have been a symptom of pica (severe anemia) or she was just that mad about the diet change.

Get back to the doctor and check the house for ALL gluten. Hand lotion, lip gloss, everything.

Laura :ph34r:

key Contributor

My son is having diarhea and vomiting right now too. Not vomiting that many times, but he has no fever. Vomiting was never one of his symptoms before, but I am wondering if maybe now since he has been off gluten for six weeks if it has become one. I don't know how he got gluten. I did find a piece of catfood in his mouth. We are in an apartment for six weeks and we don't even have a cat here. I guess he found it under the stove or something. Anyway, I was assuming he had a tummy bug, but now I don't know since he hasn't had a fever. No one else in the family has gotten sick yet and I have a 6 year old and 3yo.

I am very frustrated with my son too. He is actually scheduled for his biopsy and colonoscopy on June 6, but I have had him off gluten, so I know it won't come back positive. Especially since he is only 14 months old. I am just going through with it to make sure nothing else is wrong.

I hope you find out what is bothering him. Make sure he isn't getting gluten for sure and also the dairy is a possibility. Vomiting that many times a day seems extreme. Has he been tested for other structural problems, etc? Just a thought.

MOnica

debbie-doodles Contributor

My daughter was diagnosed with celiac less than a month ago. She used to vomit 10 or more times a day since she was born. She is now 2 and a half. My doctor said it was because of relux which is a side-effect of the celiac disease. I have my daughter on medication to help control the vomiting until she gets better from being on the gluten-free diet for a while. My doc said probably a couple months and she should be off of her medication.

betharlene24 Newbie

Thank you everyone for the info on vomiting. My son is 15. He had ulcers at the beginning of testing/vomiting. Last week's scope showed they have healed. He went through the gi tests, and they were all ok. He's also had an MRI on his head. Our doctor is currently going to try medication for cyclic vomiting syndrome. But in all the reading, I didn't find vomiting with celiac, so I was unsure. You have all been very helpful, thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Gluten free nuts

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      5

      Related issues

    3. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

    4. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

    5. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,270
    • Most Online (within 30 mins)
      7,748

    Hope2024
    Newest Member
    Hope2024
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
    • Jmartes71
      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to switch " medical team" because I was told I wasn't celiac though I am gluten-free since 1994! I am also positive HLA-DQ2. I think doctors down play it because on quest lab work it states " However 39% of the U.S  general population carry these HLA-DQ variants, as a consequence, the presence of HLA-DQ2 or  DQ8 or both variants is not perse diagnostic of celiac disease". Hintz the down playing of celiac disease......This needs to change because doctors seem to down playe it because when I showed the past 2nd and 3rd  doctors that I waisted my time on this year showed my that line and absolutely down played it.4th pcp this year.I live in Patterson California and would love for a few of us to go to mayors office and make this disease heard
    • Midwesteaglesfan
      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.