Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Not Sure...


jane doe 2

Recommended Posts

jane doe 2 Newbie

I have been to the doctor's several times. First e thought I had a wheat allergy, so i had blood work done. It came back negative. I'm trying to figure out wht my stomach ges bloated EVERY tme I eat! I could probably have a conversation with my stomach (if was weird)...it grumbles and rolls all the time. One week Im constipated (sorry for the graphic)..the next week its the exact opposite..I dont get it!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Hi Jane,

First of all, alternating C&D is a well known symptom on both gluten intolerance and celiac disease. Neither of those would show up with wheat on an allergy test. Gluten may (and I stress may) show up on an IGg food intolerance panel, but that isn't the same as a diagnostic for gluten intolerance, and definately not for celiac disease.

If I may ask, do you have other symptoms? Have you done any kind of food elimination diet? Is it really every time you eat, or is there something common you always have like a milk product or something?

I'm making some assumptions below that you don't have any true food allergies or a vegan diet or anything. If you do adjust accordingly.

Try a quick (four day) starter test that will not have any long term impact but if you are really reacting after every meal might help you begin to identify this. The reason for four days (five would be better) is that your body may react to foods up to four or five days AFTER you have eaten them. Some food intolerances may be an interaction as well. e.g. I have a friend who can eat eggs just fine. She can also eat brown rice. However if she eats rice and eggs within the same 24 hour period she feel nauseous for several hours after whichever one she ate last.

Eliminate all non-water beverages from your diet. (This means tea and any coffee too unless you grind the beans yourself and it is non-flavored coffee).

Prepare any veggies you may eat in a glass or pyrex microwavable dish which you have washed thoroughly between use. Steam them lightly unless they are frozen single veggies. Don't use mixed frozen bagged ones (like three-veggie mix).

For breakfast eat no grains at all. Do poached eggs, or fried, etc, but cook them in stainless steel - not non-stick. Throw some diced potatoes or something in there for fried as well. The key is CLEAN STAINLESS STEEL for any cooking.

For lunch take some whole fresh veggies, fruit, or meat from the night before. No bread or grain products of any kind.

For dinner sometime similar. Nothing but water, fresh veggies, fruit, meat. Don't use any mixed seasoning blends, salt substitutes, or anything but single spices or salt. Keep it as simple as possible. Prepare your food on a plate (non-plastic) that has been through the dishwasher.

Use/eat/ingest no dairy (even non-lactose things), grains, tomato or processed foods. No alcohol. No butter substitutes.

See how you feel after each meal. Write down your symptoms and how you feel a hour after each meal, along with what you ate, and also journal immediately before a meal. Do this for four days.

miaryan Apprentice

the journal this is a good idea. i'm in the process of doing that to but for me i'm trying to find out what is causing my headaches. other then gluten.

sandsurfgirl Collaborator

I'm surprised a mod didn't move this post. Put this in the prediagnosis and testing room and you might get a lot more responses. If you get sick from eating wheat, then you can't eat it. Don't buy the you're not allergic line, because I bought that and suffered for a long time unnecessarily. Get tested for celiac. If it comes up negative go gluten free anyways and see if it helps you.

  • 2 months later...
Branny Newbie

First report and keep a Headache Journal with your Food Journal for the Dr... it will help him help you conciderably and Second, Heahaches are mostly Muscle Spasms, find out the Trigger and you'll be able to control them better.

My GI Dr gave me some great advice a few years back... "The only way to trully find out if you are allergic to anything is to stop using it for a week. If sysmtoms begin to subside then you have that allergy, if not move on to the next product you use in your life and don't miss anything... it all matters."

  • 1 month later...
klbasap Newbie

I have been to the doctor's several times. First e thought I had a wheat allergy, so i had blood work done. It came back negative. I'm trying to figure out wht my stomach ges bloated EVERY tme I eat! I could probably have a conversation with my stomach (if was weird)...it grumbles and rolls all the time. One week Im constipated (sorry for the graphic)..the next week its the exact opposite..I dont get it!!!!!

Constant bloating after every time you eat sounds like what I'm just now getting through...C. Diff. I found that I do have celiac disease by trying to get rid of the constant bloating and headaches but going gluten free did nothing for me. I was gluten free for four months- nothing! So, I found the SCD diet; did that for 6 months(still gluten free of course) but still bloating! I'm a size 4 pants but with a distended stomach of 36 inches every time I eat?

Finally.... I found a celiac specialist/GI doctor and in a week found that C. Diff had taken over and that's why I was so sick for so long! 14 months into my journey I had my best day today! I have never posted on a forum until today but I see that you may be suffering what I suffered. Please check into c diff testing or, at a minimum begin tracking your food consumption- c. Diff lives on sugar/starch/carbs. A carrot has too many carbs for someone suffering with this obnoxious little bacteria.I hope you no longer suffer soon!

Kelly

psawyer Proficient

I'm surprised a mod didn't move this post. Put this in the prediagnosis and testing room and you might get a lot more responses.

Good idea. Sometimes we aren't as sharp as we could be. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.