Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Sure What To Do.


prisskitty

Recommended Posts

prisskitty Rookie

A few things that have made me think I have celiac disease or gluten sensitivity are this:

- Consistently feeling ill to my stomach when I don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prisskitty Rookie

Also, I am coming off of the gluten free diet for the next 40 days so I can get tested via blood.

I am beginning to think I may just have sensitivity to tomatoes, peppers, and some spices as even gluten-free dieting hasn't had any improvement on bloating and sore-stomach.

I do have a hietal hernia.

Korwyn Explorer

Nightshade intolerance is quite commonly found in conjunction with celiac disease and/or gluten intolerance. It is possible you are dealing with both. And you are correct, they would not see evidence of celiac disease unless they actually went through the small intestine and sampled the biopsies there.

prisskitty Rookie

Nightshade intolerance is quite commonly found in conjunction with celiac disease and/or gluten intolerance. It is possible you are dealing with both. And you are correct, they would not see evidence of celiac disease unless they actually went through the small intestine and sampled the biopsies there.

That's quite heartbreaking to know that there is a such thing as Nightshade intolerance.

So, what do you eat if you can't eat tomatoes, potatoes, peppers? Those make wonderful gluten-free meals I suppose. I had no idea potatoes were in that family. Thanks for that info.

WheatChef Apprentice

If you can be completely sure of being gluten-free for an extended amount of time (no eating of any processed foods unless you've contacted the manufacturer ahead of time and made sure there are no gluten products in the food and that it is also not processed on any equipment shared with gluten containing products/flavors, no medicines or vitamins without doing the same with those manufacturers, as well as no use of plastic equipment in your kitchen that has come into contact with gluten products in the past) then going on a gluten binge at the end of your gluten-free trial you would most likely experience symptoms. This can be very useful for determining a gluten intolerance.

Jestgar Rising Star

Nightshade intolerance is quite commonly found in conjunction with celiac disease and/or gluten intolerance. It is possible you are dealing with both. And you are correct, they would not see evidence of celiac disease unless they actually went through the small intestine and sampled the biopsies there.

I would modify this to say that other intolerances are commonly associated with celiac disease. You may very well have a nightshade intolerance, but consider everything you're eating before making any assumptions.

Nightshades make up the bulk of my diet, but even a little soy protein takes me out.....

Korwyn Explorer

That's quite heartbreaking to know that there is a such thing as Nightshade intolerance.

So, what do you eat if you can't eat tomatoes, potatoes, peppers? Those make wonderful gluten-free meals I suppose. I had no idea potatoes were in that family. Thanks for that info.

Sweet potatoes are good. Also, there are five families of nightshades. Most (anecdotally) people seem to only react to one or at most two of the families. I have in the last year experienced enough healing that I can tolerates tomatoes now to some degrees, and potatoes (if I ate starch which I rarely do). Peppers (jalapeno, chile, etc), paprika, and anything with capsaicin in it are still a big no-no for me.

Many food intolerance issues can heal up given sufficient time away from the food. However many will not. And the time off varies greatly from one individual to another.

And Jestgar is right. I should have pointed that out that many intolerances are common. I'm also highly intolerant of soy. The smallest amount triggers neurological and central nervous system problems for me.

I would seriously consider doing a strict elimination diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prisskitty Rookie

I actually did do a strict elimination diet for 3 weeks. I accidentally ate gluten once! I put it in my mouth one bite then realized it had beer in it as flavoring. After that I didn't eat anything I didn't buy.

Immediately, about thirty minutes later, my stomach was killing me. I went back on the gluten last night and we ate at a Mexican resteraunt. I avoided any tomatoes including the pico but now my stomach is killing me again. Never been that uncomfortable after eating food. I also got an intense headache. The same thing happened when I did my first trial. I was off of gluten for a week then went to eat a pizza because I said I wasn't going to be gluten-free until I got tested and I felt horrible. It is scaring me away from the gluten foods and I am not even 100% sure I have it.

But, when I was gluten-free, I was soooo hungry all the time. If I can find satisfying meals gluten-free I will just stick with it. My current healthcare provider doesn't know how to properly send out for a blood test so come end of July I will order the Canadian blood test, go back on gluten, and see if I have any genetic markers/antibodies.

My family history is:

IBS

Diabetes II

Edema

Ulcers

Hernias

Depression

Bipolar

Anemia

Cardiac Problems

Stomach Problems that I can't even begin to list.

My mom only has type II diabetes. I never hear her complain about her stomach hurting but she does blame her 'bowel' problems on diabetes medication which I think she needs to go gluten-free (it is a good diet for people who have type II diabetes if you ask me.)

(Sorry for the book, I am a blogger xD)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.