Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excessive Weight Gain Since Starting Diet


glutenfree mom

Recommended Posts

glutenfree mom Newbie

My 14 daughter was diagnosed 3 years ago. Although she has been glutennfree She has gained over 100lbs in three years. Her doctor doesn't see concerned But we both are. she is constantly hungry all the time and extremely exhausted!! Please if anyone has any ideasI would be greatful. Also I have been told at her last visit tha her levels are elevated I can't find out where contamination is coming from??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

I would suggest they test her thyroid to make sure that it's not contributing to the weight gain. I was SUPER DUPER hungry all the time until I made many changes to my diet. I cut out processed foods, now I eat A LOT of healthy fats (two avocados a day, tons of olive and coconut oils, seeds, etc) along with plenty of healthy proteins and veggies with each meal. My appetite is normal now, I stay satisfied between meals and I don't snack. I've also gone from a size 10-12 to a size 0, and I'm 31 so my metabolism isn't all that great. I've stayed this way for three years now.

Oh, I would also suggest a good liquid vitamin. I take an isotonic vitamin I mix with water, it's supposed to be the easiest to absorb. My naturo-doc said regular vitamins are no good for us folks because we just don't digest and absorb nutrients well. He said without the basic vitamins and minerals, your body will feel hungry most of the time and your metabolism will slow.

Hope this helps...

Jestgar Rising Star

What is she eating? Maybe there are other foods she should be avoiding.

missy'smom Collaborator

I would get a new doctor. That's very concerning. Both symptoms could be from elevated blood sugar levels. Has she been tested for diabetes? If and when she is please know what the numbers mean. It's not quite so cut and dried as the doctors make it-don't just accept and answer of she has or doesn't have diabetes. It's a spectum. Know where her numbers fall on the spectrum. Depending on what the cause is it can sometimes go away if it's treated-for some, weigh loss can be the trick, for others, eliminating allergens-foods that trigger an immune response can make a big difference.

nyctexangal Rookie

I'd look into food intolerance's and vitamin/mineral deficiencies. I was starving until I had a food dietitian check my vitamin/mineral levels and got on the correct supplements.

jmd3 Contributor

My 14 daughter was diagnosed 3 years ago. Although she has been glutennfree She has gained over 100lbs in three years. Her doctor doesn't see concerned But we both are. she is constantly hungry all the time and extremely exhausted!! Please if anyone has any ideasI would be greatful. Also I have been told at her last visit tha her levels are elevated I can't find out where contamination is coming from??

Do you know if she was dx with celiac and gluten sensitivity? Did they do a gene panel - this would give you that answer.... A light bulb while watching Dr. Osborne's video went off for me because gluten sensitivity is ALL gluten.... in wheat, rye, barley, oats, millet, corn, rice and sorghum.... they ALL have gluten, so if you have the sensitivity to gluten - well that would be ALL... So gluten free would be really gluten free to all those proteins. (This is only my synopsis from watching the video related to understanding my own health issues.) Her blood levels shouldn't be elevated if they were only tested for gliadins.

okay, I hope I don't make anyone mad, just food for thought.... hoping for some to have ahh haa moments.

Rondar2001 Apprentice

We are going throught pretty much the same thing. My daughter's BMI jumped 3% in 3 months. I would go back to the doctor's and ask for her weight to be followed closely, including tests for cholesterol (my daughter's is elevated even though she is only 9) and as mentioned before, blood sugar, thyroid, and vitamin deficiencies. Doctor's are sometimes reluctant to deal with weight issues unless pushed by the patients, but if he still doesn't recognize that it is an issue, I would find a new doctor.

Ask for suggestions on some good books to read on adding exercise as well as diet involving the whole family. We have also found a pediatric obesity clinic in town; they have a pediatrician, nutritionist (very familiar with celiac), trainer, and physcologist. Ask if they have any studies going on soon to help cover the costs. We are meeting with them today so I will let you know if they have any great suggestions that may help. Your town's YMCA or other facilities may also offer a similar program.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - maryannlove commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      12

      Top Brands of Gluten-Free Canned Chili

    2. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Gluten free nuts

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      5

      Related issues

    4. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

    5. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,271
    • Most Online (within 30 mins)
      7,748

    NancyWM
    Newest Member
    NancyWM
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
    • Jmartes71
      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to switch " medical team" because I was told I wasn't celiac though I am gluten-free since 1994! I am also positive HLA-DQ2. I think doctors down play it because on quest lab work it states " However 39% of the U.S  general population carry these HLA-DQ variants, as a consequence, the presence of HLA-DQ2 or  DQ8 or both variants is not perse diagnostic of celiac disease". Hintz the down playing of celiac disease......This needs to change because doctors seem to down playe it because when I showed the past 2nd and 3rd  doctors that I waisted my time on this year showed my that line and absolutely down played it.4th pcp this year.I live in Patterson California and would love for a few of us to go to mayors office and make this disease heard
    • Midwesteaglesfan
      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.