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Type II And Celiac


Frustrated IV

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Frustrated IV Newbie

I have managed my type 2 with diet for almost three years now and have been following the celiac diet for almost six years. Two weeks ago my sugars went to 29.7 (x 18 for American values) and I have no idea what caused it. Then two days ago my sugars fell to 4.3 (again by 18. They have been all over the board since no matter what I do. Even my fasting numbers are way too high. I am getting mixed information on this from the celiac diet does not raise your sugars to you bet it does. If someone out there can help, it would be greatly appreciated.


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Jestgar Rising Star

Have you added substitute foods to your diet, or just removed the grains? The substitute foods are high in starches and can fuss with your blood sugar.

boysmom Explorer

I don't have type 2 (yet?) but I did have gestational diabetes with my last pregnancy. One thing I learned was that when I've been exposed to a bug my blood sugar would spike and/or drop even before I showed symptoms. Assuming you haven't made any recent changes to your diet, I would look into possible virus exposure, extra stress, or even pain or injury because those can cause fluctuations as well. If it is a virus, once your body has fought it off (whether or not you ever develop actual symptoms) your levels should straighten back out, but I would expect that would happen pretty soon because most viruses run their course in a 10-14 days.

Juliebove Rising Star

I'm type 2 but do not have celiac. However for the most part I eat a gluten-free diet because daughter has a wheat allergy. I do eat rice and potatoes but have to watch my portion size. Do you weigh or measure your food? I used to have to do that. But then I bought bowls and plates in an assortment of sizes. I can now pretty well eyeball what is the right portion size. Dining out can be more difficult especially if they put the food on a huge platter.

Could you possibly have an infection? I finally went to the Dr. after spending days with blood sugar anywhere from 200 to just over 400. Obviously divide by 18 to get your numbers. I had signs, like little twinges that told me it might be a sinus infection. And sure enough it was! I seem not to be over it yet. Medication has not kicked in and honestly am not sure I am on the right one. I'm on Amoxicillan but have had that so many times in the past I think I might need some other med. It can get frustrating.

missy'smom Collaborator

I have managed my type 2 with diet for almost three years now and have been following the celiac diet for almost six years. Two weeks ago my sugars went to 29.7 (x 18 for American values) and I have no idea what caused it. Then two days ago my sugars fell to 4.3 (again by 18. They have been all over the board since no matter what I do. Even my fasting numbers are way too high. I am getting mixed information on this from the celiac diet does not raise your sugars to you bet it does. If someone out there can help, it would be greatly appreciated.

There is a strong connection between diabetes and foood allergies. Google T1 and cow's milk allergy or wheat allergy. Also check L.A.D.A. or T1.5 and the same allergies. The immune response caused by the allergies can cause an immune attack on the insulin producing beta cells of the pancreas. So another possible reason for your elevated numbers is that you consumed something that you were allergic to or had an immune response to and as soon as your body quit reacting, your numbers went down. I have seen stories of other whom this has happened to and I did a dietary experiment with dairy(which I'm allergic to)and saw the same type of thing happen.

Being gluten-free will only raise you if you are consuming more carbs and/or more quickly digested carbs. If you consume grains then things like quinoa and brown rice would be better choices. They have more nutrients and are more slowly digested. They will raise your blood sugar a bit many hours(3-4) after the meal because of the slow digestion so you may still want to keep an eye on portions.

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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