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Time To Take This Seriously


cmoore

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cmoore Apprentice

I'm Male 54 Years old.

I thought it was a multi-symptom Candida issue, the only problem was all the usual fixes for that have not been effective.

* Neuropothy

* Ataxia

* Bowl and Prostate problems

* Heart irregularities

* Brain fog from hell, with your usual Adult ADD Diagnosis

* .. much much more.

I've been through your usual HMO with every test to rule out things they can easily diagnose. The only real issue was a high cholesterol test which though above normal was not out of this world.

Oh and of course as my Blood Sugar was normal the only thing they could come up with for my Neuropothy at the HMO was "It must be hereditary" ...... I kid you not.

Ive had two or three CAT scans and scopes and ... well you name it - it appears that my pluming thought its not felt all that good is just fine after all..... Right !!!

One day Im sitting and I remember that when I was 9 years old I got a diagnosis of what used to be called Low Blood Sugar (hypoglycemia) ........ here is the interesting part. I was given a food allergy test and (this is when I was 9 years old mind you) turned out I had an allergic reaction to "Wheat" That was 45 years ago most of which I regarded "the allergy as pretty minor but, well, here I am a boat load of symptoms later.

I guess it time to take this thing seriously now. I don't know how long it will take to start seeing some evening out on this thing but, Im game to give it a try. I just may stick around on this site for a while.

Sigh............ B)


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mushroom Proficient

I'm Male 54 Years old.

I thought it was a multi-symptom Candida issue, the only problem was all the usual fixes for that have not been effective.

* Neuropothy

* Ataxia

* Bowl and Prostate problems

* Heart irregularities

* Brain fog from hell, with your usual Adult ADD Diagnosis

* .. much much more.

I've been through your usual HMO with every test to rule out things they can easily diagnose. The only real issue was a high cholesterol test which though above normal was not out of this world.

Oh and of course as my Blood Sugar was normal the only thing they could come up with for my Neuropothy at the HMO was "It must be hereditary" ...... I kid you not.

Ive had two or three CAT scans and scopes and ... well you name it - it appears that my pluming thought its not felt all that good is just fine after all..... Right !!!

One day Im sitting and I remember that when I was 9 years old I got a diagnosis of what used to be called Low Blood Sugar (hypoglycemia) ........ here is the interesting part. I was given a food allergy test and (this is when I was 9 years old mind you) turned out I had an allergic reaction to "Wheat" That was 45 years ago most of which I regarded "the allergy as pretty minor but, well, here I am a boat load of symptoms later.

I guess it time to take this thing seriously now. I don't know how long it will take to start seeing some evening out on this thing but, Im game to give it a try. I just may stick around on this site for a while.

Sigh............ B)

Hi, and welcome.

I guess through all these years of tests and scans and whatever, nobody ever thought to give you the celiac blood panel? Before you start the diet, it might be worth a try to get a blood draw and have the full celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

However, even were that to come back negative (and if you've done any reading around here you will know that about 20% are false negatives) it would still be advisable to try the diet because there are more gluten intolerants than there are actual celiac patients. :o From your symptoms, it sounds like you fit in either of those categories and that you have come to the right place :)

Stick around and fire away with any questions you can't find the answers to (and good luck on getting the blood test - we all know that is the place to start, but most of the docs don't seem to).

Jean'sBrainonGluten Newbie

Hi,

If you search through the forums here and online you will see that a substantial number of people, including me, experience mostly neurological symptoms.

Here is a link to one of many articles.

Open Original Shared Link

I test as negative for celiac and I decided it didn't matter because when I don't eat wheat I can think clearly, more or less for the first time in my life, and I'm 52 (sigh!).

If you got an MRI or cat scan see if you can get a copy. Check to see if you have 'nonspecific white matter lesions' I did and it turns out they're from exposure to gluten and can cause symptoms that look like MS or epilepsy.

Here's another link.

Open Original Shared Link

I strongly suggest going gluten free. HOpe this helps and you experience improved symptoms soon. Jean

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