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Lilymato1sonwithCD

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Lilymato1sonwithCD Newbie
Lilymato1sonwithCD
Posted

The day he was born I breastfed him he seemed very gassy in pain and very wet stools at each feed not knowing at the time the pasta bread and all the foods I ate was hurting him then on November 2, 2009 we chose o feed him after many years of feeding him pasta bread pizza or anything he wanted we cut back. On november 20th we had his blood tested for celiac disease the test came back and I say it what the ped said " borderline celiac disease" so we went back to the old foods he loved and on 11/30 to 12/3/2009 he was tested for all food and product care even eniromental allergens. it can back for all meat and shell fish wheat all dairy (inclueding eggs) green beans soy rice carrots but not corn or any others by the patch test or under the skin he is allergic to dogs cats and dust mites he is allergic to all kinds of non-organic care products and cleaners we use around the home.

I need more then just papers to tell me what to use or feed him he hates the new foods what can I do please someone help me! :blink:

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Grace'smom Explorer
Grace'smom
Posted

The day he was born I breastfed him he seemed very gassy in pain and very wet stools at each feed not knowing at the time the pasta bread and all the foods I ate was hurting him then on November 2, 2009 we chose o feed him after many years of feeding him pasta bread pizza or anything he wanted we cut back. On november 20th we had his blood tested for celiac disease the test came back and I say it what the ped said " borderline celiac disease" so we went back to the old foods he loved and on 11/30 to 12/3/2009 he was tested for all food and product care even eniromental allergens. it can back for all meat and shell fish wheat all dairy (inclueding eggs) green beans soy rice carrots but not corn or any others by the patch test or under the skin he is allergic to dogs cats and dust mites he is allergic to all kinds of non-organic care products and cleaners we use around the home.

I need more then just papers to tell me what to use or feed him he hates the new foods what can I do please someone help me! :blink:

Lili, I feel your pain. That is a huge diagnosis to contend with. I think many of the moms on this page are only dealing w/celiac; or perhaps celiac and nut/dairy/egg allergies. I would suggest calling your area Children's hospital and making an appointment ASAP with a nutritionist. I did this myself this past week and it changed my life. You'll need a lot of guidance. Best of luck to you. I'll say a prayer for you! Emily

nmorris087 Newbie
nmorris087
Posted

Hi! I joined this forum for my own dietary issues BUT wanted to say that I have a son who has severe GI issues--well he did, he is in "remission" now...he has Eosinophilic gastroenteritis (www.apfed.org) and was on special formula ONLY for years and then gradually added things back in, but we lived many many years on a handful of foods. I recommend you see a GOOD allergist. GI, and nutritionist at a children's hospital. If you'd like, we can talk on list or off about the challenges of having a child who is allergic to almost everything! I have been there and it can be very challenging...mentally and physically :)

Nancy

Lili, I feel your pain. That is a huge diagnosis to contend with. I think many of the moms on this page are only dealing w/celiac; or perhaps celiac and nut/dairy/egg allergies. I would suggest calling your area Children's hospital and making an appointment ASAP with a nutritionist. I did this myself this past week and it changed my life. You'll need a lot of guidance. Best of luck to you. I'll say a prayer for you! Emily

  • 2 weeks later...
T.H. Community Regular
T.H.
Posted

I've seen a website that might be of some use! Open Original Shared Link You make a free account, and then can put in every allergy your son has, and it will let you search for recipes that exclude all the allergens. It's not a big site - I think it's only been around a year or two - so there are not hordes of recipes, I'll be honest. But the people there are also sufferers from numerous allergies, usually, so they might have some good advice and suggestions, at the very least.

The day he was born I breastfed him he seemed very gassy in pain and very wet stools at each feed not knowing at the time the pasta bread and all the foods I ate was hurting him then on November 2, 2009 we chose o feed him after many years of feeding him pasta bread pizza or anything he wanted we cut back. On november 20th we had his blood tested for celiac disease the test came back and I say it what the ped said " borderline celiac disease" so we went back to the old foods he loved and on 11/30 to 12/3/2009 he was tested for all food and product care even eniromental allergens. it can back for all meat and shell fish wheat all dairy (inclueding eggs) green beans soy rice carrots but not corn or any others by the patch test or under the skin he is allergic to dogs cats and dust mites he is allergic to all kinds of non-organic care products and cleaners we use around the home.

I need more then just papers to tell me what to use or feed him he hates the new foods what can I do please someone help me! :blink:

Kelly&Mom Rookie
Kelly&Mom
Posted

Hi Lily,

It can be so challenging feeding these kids, huh!? My daughter and I were diagnosed with celiac disease around the same time. I have an easier time accepting my food limitations. She's definitely pickier when gluten-free foods don't taste "the same." She wasn't feeling that much better so we went back to the gastro doctor and he says she also has IBS so here we go again, cutting out so many good foods or limiting them :( This is when she finally voiced "It's just not fair....." where she has never really complained before. We're working through it. Got new cookbooks, experimenting, shopping and finding out what she likes. Hang in there!

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    • Mari
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      By Mari · Posted

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    • Jmartes71
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      By Jmartes71 · Posted

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