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Diagnosed A Few Months Ago

MelissaBe123

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MelissaBe123 Newbie
MelissaBe123
Posted

I've had a painful stomach my whole life. A few months ago, I decided it was time to go to the gastro and see if something was actually wrong with me. After only a few tests, they found out that I had celiac disease.

My whole life has changed.

I have lost weight. Gained energy. Gotten healthier. Changed my whole diet of course, and had to explain my diet to a lot of people.

I was just wondering if there is anything I should do to be more careful in not getting gluten in my diet. I already look at labels and research, but am I missing anything? I just want to make sure I am prepared for whatever celiac disease can throw at me.

  • 1 month later...
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captaincramp Newbie
captaincramp
Posted

I've had a painful stomach my whole life. A few months ago, I decided it was time to go to the gastro and see if something was actually wrong with me. After only a few tests, they found out that I had celiac disease.

My whole life has changed.

I have lost weight. Gained energy. Gotten healthier. Changed my whole diet of course, and had to explain my diet to a lot of people.

I was just wondering if there is anything I should do to be more careful in not getting gluten in my diet. I already look at labels and research, but am I missing anything? I just want to make sure I am prepared for whatever celiac disease can throw at me.

Make sure stuff isnt cross contaminated, as someone jusyt told me that Quaker Rice Cakes are often contaminated with wheat from other parts of the factory.

sb2178 Enthusiast
sb2178
Posted

Do you have your own toaster, keep bakery/flours in a separate area of the kitchen? That can help too.

Kitchen equipment that has lots of texture (like colanders/holey items, wood, scratched plastic or nonstick) should not be shared because they are very difficult to clean.

If you are having problems, look at things like shampoo, make-up (you or a significant other), etc. Any contact with other people could be a problem-- are you kissing a kid's cheek after they eat a wheat-based sandwich? Sharing condiments?

If you feel okay, and your first round of bloodwork comes back clean, you must be getting it right!

GFinDC Veteran
GFinDC
Posted

...

I just want to make sure I am prepared for whatever celiac disease can throw at me.

Watch out for the furry flying kittens then. Oops, wrong disease! :)

A whole foods diet is a good way to go. Some people are low on some vitamins at first, so you could check with your doctor on blood tests for vitamin levels. Avoiding gluten-free baked goods to start can be helpful, at least until you get used to the diet for a few months. You also should consider otehr possible food intolerances, like dairy, soy etc. The sometime show up after being off gluten a while.

Skylark Collaborator
Skylark
Posted

The more you cook fresh, whole, gluten-free foods for yourself the better. I don't have to read the labels at all when I make my own soup. ;) You eat healthier, more nutritious food, and there is less chance of gluten sneaking in. Minimize eating out, and stick to places you know are gluten-free.

If your life has turned around, it sounds like you're doing it right. B)

lukester Newbie
lukester
Posted

Nice I see you have been reaping the benefits so far. I to have experienced many of the benefits that you have over the course of one week in to this new lifestyle. Like skylark said the best way is to cook from scratch since you know what you are putting inside.

sannep77 Newbie
sannep77
Posted

One piece of advice would be to not be scared to eat in restaurants! More and more people are hearing about the disease and are making adjustments in there restaurant for us people with special diets...and don't be afraid to ask. I went into TGIFridays one night and wanted to eat with my friends....they dont have a gluten free menu..but they cleaned the grill and made me a steak without seasonings and fresh broccoli without seasonings! I was so excited to get to eat with my friends. So don't let your disease hold you back...I did for the first 6 months of it...I was scared to eat any where...because I didn't trust people! Thats no way to live:) Have fun! But ask lots of questions and be careful. My friends like the special treatment our table gets now that I have to ask so many questions!lol

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  • 2 weeks later...
KevinNiemann Newbie
KevinNiemann
Posted

The ideas of cooking all whole foods are great. It's good to watch out for certain meats, mainly deli meats because they can have MSGs or modified food starch. It's also good to watch out for glutamic acid, hydrolyzed vegetable proteins, and anything with maltodextrin. I know that's a ton of stuff for you to watch out for, but you'll feel a ton better by staying away from that stuff. Hydrolyzed veggie proteins and modified food starch don't always have gluten in them, but if you don't contact the company to find out for sure, then you should skip those products.

Best of luck to you, fellow G-Freak :D

Kevin

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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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