Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Have Active Coeliac Disease


Mack the Knife

Recommended Posts

TimothyRyan Rookie

wait. how old are you? Xanax is an anti-anxiety. It is very effective, but also addictive. And for me, it works wonders on calming me down during gluten times. Or any stomach/intestinal related issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

What is Xanax?

Xanax is similiar to Valium and the name brand is not gluten free. It is an antianxiety med. I take the generic form, alprazolam, made by sandoz. It is addictive and a controlled substance. Your doctor can prescribe it if there is a need. Be aware that with long term use it can be hard to get off of and you should not stop it cold if you have been on it awhile. Acupuncture, excersize and psychotherapy may be helpful if your anxiety levels are high and a short term issue they can help alot. You might want to consider trying those before going to a med.

Mack the Knife Explorer

wait. how old are you? Xanax is an anti-anxiety. It is very effective, but also addictive. And for me, it works wonders on calming me down during gluten times. Or any stomach/intestinal related issues.

I'm 36 and no, I haven't heard of it. But it might possibly be sold under another name here.

I've never suffered from anxiety though. Besides the GI issues, my neuro symptoms are brain fog, dizziness, exhaustion, finger numbness and occasional vision issues (ie seeing weird flashes and patterns of light). Does it work for symptoms besides anxiety?

  • 3 weeks later...
Mack the Knife Explorer

I just thought I'd post an update.

I did end up cutting our all grains and flours (except for a bit of white rice) from my diet about three weeks ago. And for the last week and a half I have been feeling really good. My energy is up, my bowels are starting to behave themselves, I am less constipated that I have been in ages and my sex drive has suddenly seen a flicker of life.

So I am hopeful that contaminated flours were my problem and that is resolved now.

I think I'll try re-introducing certified gluten free products back into my diet and see how that goes.

starrytrekchic Apprentice

Glad you're doing better. One thing I didn't see mentioned was pet food--I've cc'd myself with catfood, so if you have pets, check their food ingredients.

Also, things like instant and flavored coffee can be a problem.

Mack the Knife Explorer

Glad you're doing better. One thing I didn't see mentioned was pet food--I've cc'd myself with catfood, so if you have pets, check their food ingredients.

Also, things like instant and flavored coffee can be a problem.

Hmmm. I do have cats. I had better check their food.

dilettantesteph Collaborator

Glad you are doing better. Something I have done with grains. Buy whole, sort and remove suspicious looking grains. Wash, dry and grind. It's a pain, but seemed to work. Unfortunately certified didn't work for me. The allowed levels seem to be too high.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.