Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Good In People

T.H.

Recommended Posts

T.H. Community Regular
T.H.
Posted

I've been running into so many frustrations with trying to get gluten free stuff lately, and seeing so many upsetting stories about thoughtless in-laws and teachers and how they deal with children with celiac disease. This is to celebrate all the people who care and understand about children and their needs. All the ones who went to extra lengths to help out, or even to understand. So, a couple wonderful examples since we've gone gluten free.

The 'tea party' that my son and daughter were invited to. The hosts, who have no issues at all, called me up and found out all the ingredients my kids couldn't have. Then they made every food they offered safe for my kids, every single thing. My son walked in that house, looking at the table full of cakes and goodies, and they tell him that he can eat everything on it. I have never see him smile so big. It was the first time he'd been able to go somewhere and eat all the same things that everyone else got to. I nearly cried, I was so touched by their hard work and thoughtfulness.

Then there's friends of mine, who on finding out I had celiac disease, invited me over two days later, and I walk in to find three grocery bags full of gluten free treats that they bought so that I could eat everything they could. Every time we get together since the kids' diagnosis, they always make sure that most or all of the food around is gluten free.

It's not that I expect everyone in the world to cater to our differences, you know? But I think about what I'd do for people I care about, and see what the people who care about me have done, and it's this great reminder of how much people DO for friends and children in this situation. Sometimes, people are just marvelous.

Nice to remember, on those bad days, I think. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I have tears in my eyes right now. You have wonderful friends. They are very special people. It is so hard and alienating, especially for children. I am so happy for your son and can imagine the joy both of you felt. Bet the other kids never even noticed the food was 'special'.

T.H. Community Regular
T.H.
Posted
  • Author

Nope, they really didn't! I get all choked up, every time I remember my son's face, I swear. Glad it brightened you day a little too! :)

I have tears in my eyes right now. You have wonderful friends. They are very special people. It is so hard and alienating, especially for children. I am so happy for your son and can imagine the joy both of you felt. Bet the other kids never even noticed the food was 'special'.

Kelly&Mom Rookie
Kelly&Mom
Posted

How cool. I remember being sad thinking my daughter would never get to go to "high tea" again...... or when she goes to a sleepover and they have pizza for dinner and donuts for breakfast.... She's still resistant to taking her own food, although I try and I don't think the other parents would mind helping her pop a gluten free pizza in the oven..... Hopefully she'll toughen up a little. She does have some wonderful friends who have made her gluten-free cookies or called to ask what she can and cannot have :) I love taking her to places like PF Changs and BJ's that have gluten-free menus so she can just order, no big deal :)

One of my friends had us over for dinner the other night, everything was gluten-free. She also got me a wonderful gluten-free cookbook. Can't wait to try the angel food cake!!

I guess there will always be those who don't care but I think there are more people who do care if they are educated. Even my youngest daughter insisted that she wasn't going to eat gluten-free is now one of our staunchest watchdogs :) Wonders never cease! I grew up with a diabetic sister so I'm used to making changes, making things differently but I think some people never think about it until it's brought to their attention.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,737
    • Most Online (within 30 mins)
      7,748
    Ifeanyi
    Newest Member
    Ifeanyi
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free stool softener needed for after surgery

      By Scott Adams · Posted

      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      New to gluten-free

      By Scott Adams · Posted

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      New to gluten-free

      By trents · Posted

      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      New to gluten-free

      By QueenBorg · Posted

      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      Refractory celiac disease

      By knitty kitty · Posted

      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...