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I Want To Complain!


mytummyhurts

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jenvan Collaborator

boy, it is kind-of complex... hmmm. sorry girl. ! you going to go back to the dr? feel better today?

i did know one girl, through a friend, who had lupus. stress and lack of rest were huge factors for her, that much i know...


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mytummyhurts Contributor

I have an unrelated doctor appointment tomorrow. It's just with my family doctor and I already had a few things I wanted to talk about, then this happened and I guess I'll talk about this too. I don't know what they'll do though. If I call my rheumatologist and try to make an appointment they won't be able to get me probably til August and my symptoms will be gone. That's what happen last time. I called in December and said my ankles are swollen and purple and so are my hands and I'm having trouble breathing and I can hardly stand up for more than a few seconds. And they said "We have a opening in February." By then my symptoms were gone so we just talked about my symptoms. They really should leave a couple appointments open a week for stuff like that. <_< It would be better if she could actually see what's happening.

  • 2 months later...
Janet Blenner, Professor Newbie
I want to complain to people who understand about how much this disease sucks. Just when I think I'm getting used to all the ways my life is going to change I find out something else that I'm no longer going to be able to enjoy. We went to a music festival this weekend where they have a bunch of food booths and I had to pack a lame pb&j sandwich while my husband sat there and enjoyed all his yummy food. There's no way I could have found anything gluten-free because every place was so busy it would have been extremely difficult to ask any questions. I'm just depressed because now I'm thinking about all the fun places we used to go and just eat anything and now I won't be able to do that. For example, we have a large fair in my town every year and now that will be a pain. And depressing. It's hard to think that you are going to have to be this way for the rest of your life. And it's not like a diet that you can cheat on when you have a special occasion. I know this is kind of stupid to complain about when so many other illnesses you can't solve just by avoiding certain foods. But I'm depressed about these things.  :(

<{POST_SNAPBACK}>

skoki-mom Explorer

I just thank God I am not allergic to chocolate. Now that would REALLY suck :rolleyes:

Wow, do I hear you on this one!!! As I said to my friends, I can still have chocolate and wine, life is still good!

I'm pretty new at this, but I know what you mean already. Local amusement park today, left home in a rush, no time to pack a salad. Ended up eating popcorn for lunch, (hope that was ok), because there just were not a lot of options for me! My kids wanted Those Little Donuts, I swear I must have been salivating like Pavlov's dog! I am *not* looking forward to the Stampede next summer!

Nevadan Contributor

Another interesting thread - even if a bit off topic, including this post.

Looks like we guys are in the minority here, but I thought it might be worth sharing some experience on getting spouses to help with the cooking - what the hexx, when you're my age...

When my wife and I got married after college 37+ yrs ago, I was the one with some cooking experience and ended up teaching her the basics. Needless to say she has far exceeded my rudimentary capabilities since, but I can still do ok. From our earliest days when we both worked long hours, we had a rule: whoever cooks doesn't clean - that can be very motivating. Over the years more and more of our cooking has been done outside on the grill - prep often by her, grilling by your truly. One reason: I worked in a very complex technical field where projects usually took at least a couple of yrs and by the end no one could remember who contributed what, much less get a lot of satisfaction from personal accomplishment - cooking/grilling was a great theruputic(sp) endeavor for me with lots of relative instant gratification. Some of the other attractions for me, the guy, was that grilling didn't heat up the kitchen and run up the AC bill in summer, and it didn't coat the windows with an oily film that required washing windows (I still don't like to do windows). Maybe some of you can exploit some of this to get some help.

P.S. We have lived in the Sierra's for many yrs and think nothing of grilling year around - I do hate to shovel the snow off the deck to get to the grill, but that comes with territory.

P.S.S. We typically grill 4-5 nights a week, year around - lots of fish, shellfish, pork chops, vegetables, and the occasional beef. When we decide on a really gourmet meal, my wife does a great job inside - and I have to clean. :-)

George

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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