Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Endo And New Gi Dr


jknnej

Recommended Posts

jknnej Collaborator

Well, I went to a new GI dr today. He was awesome; very nice and he listened to everything I had to say and wasn't condescending. He took the time to explain the things he told me, too, which I liked and he didn't treat me like I knew nothing.

I have an endcoscopy scheduled for Monday, June 6.

Although I have been gluten-free since Jan. 1 he is still testing me for Celiac. I needed the test for reflux, anyway, so he said he'll test anyhow.

He thinks I do NOT have Celiac disease based on my bloodwork. He said that the main test that is the real indicator (something like the transglutamine)was not only normal, but in the low range. I told him I like the gluten-free diet, anyway, and he didn't try to tell me not to stay gluten-free, so that was good.

He thinks it could be thryoid, reflux, or h. pylori. He gave me some medicine for my irritible bowel, too, which dissolved under your tongue. He said his wife has IBS and she swears by it. It takes away diarrhea and cramping:) Thank you, lord.

I've been tested for thyroid but he still wants to see the results and read them himself.

I do have all the symptoms for reflux, so it could be that.

He didn't believe in the candida thing, as I expected. I asked him about the stool test and he said that if he examined everyone's stool he would find candida. He thinks taking an anti-fungal is not a good option right now. He says of course we can get yeast infections, thrush, etc. but he said if I really had a serious systematic problem I would be much more sick. Same with leaky gut. Now 2 doctors have told me this; they said if I had either of these I would not be walking around, going about my daily activities.

I don't know if I agree with this or not, but I am going to wait and see what he finds with the scope before I do anything else about the yeast.

I am happy that I am getting the test done! He said he would look at my vocal cords as well b/c of the problems I've been having with my voice.

I at least feel that I finally have found a good dr-thank GOD. And he is pretty knowledgeable about celiac disease, too, which is good. He recommended fiber and he of course said, it's gluten free. So at least he knows about celiac disease.

Now we'll just have to wait for results. I'm a little nervous about the test but he said don't worry; you'll be out and won't feel a thing. I knew this already but it was nice for the dr. to be reassuring.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gfinnebraska

I'm glad you're on your way!!! Good luck!

julie5914 Contributor

Voice changes are very much linked to thyroid trouble, as you probably already know. I was treated for h. pylori, and I want to warn you - the first few days were rough - the antibiotics are very strong, but after about 4 days, I started feeling like a new person again. Unfortunately, about a week after I went off the antibiotics, I started feeling bad again (probably because I am not gluten-free), but not nearly as bad as I had before. My stools changed while I was on the h. pylori drugs, and then they changed back - it was very strange - something definitely changed and then changed again. Anyway, I really hope that you find answers most importantly.

jknnej Collaborator

Hopefully I don't have H. Pylori!

I am getting my thyroid checked next week. Last year it was normal but things can change in a year, so we'll see.

Hyperthyroidism would make the most sense with my symptoms:

weight loss, voice changes, tremors, nausea, etc.

I just want answers!

KaitiUSA Enthusiast

jknnej-Some of my symptoms are the same ones you have...weight loss, nausea.

I also have graves(hyperthyroid) Maybe your thyroid changed since then or maybe it is something different.Hopefully you get an answer soon :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,852
    • Most Online (within 30 mins)
      7,748

    Mamabear66
    Newest Member
    Mamabear66
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.