Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grains?


SteveW

Recommended Posts

SteveW Rookie

I've been gluten-free for 3 months,mostly eating meats and veggies, and I'm starting to feel better. One thing I'm noticing is that all the alternitive grains bother me-same reaction as if I'm eating gluten.

Rice(3 brands) and Quinoa are the 2 grains I've tried. I miss not having rice but don't miss Quinoa-it was awful.

Anyone else have the same issues?

I read online a gov report on celiac disease that claim a lack of research on most grains because a lack of test subjects. Anyone have this link?

Thanks Steve


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

Steve,

I use Lundberg brand brown rice without any apparent problems. Was that one of the brands you tried? Also, Minute Rice is supposed to be gluten-free. The jury is still out on my reaction to quinoa. I have some McCann's oats and some Norquin brand quinoa flakes (processed on dedicated gluten-free equipment) that I intend to try as soon as my body settles down from whatever it is currently reacting to. I'l let you know if I have a reaction to the quinoa.

Here's another question: Have you ever cooked barley in the pan you are using to cook your gluten-free grains? Barley scum NEVER comes off completely, no matter how hard you scrub--as I discovered when I went gluten-free. I reacted to rice as well, until I bought a new pot to cook it in. Now I have no problems with it.

It could be that you have separate sensitivities to most grains, but I think it's still too early to conclude that for certain. I hope you discover that cross-contamination has been the source of your trouble, so you can continue to consume carefully selected grain products!

SteveW Rookie

I did not try the Lundberg rice.

I'll give it a shot at some point.

Never cooked barley in any of my "New" pots, just some rice that may have a Gluten coating. Not sure so I'll just buy another pot when I feel good enough to try out some different rice.

Thanks

YankeeDB Contributor

You might have a sensitivity to lectins, another potentially problematic protein found in most grains. Do a search on this and maybe on the "paleolithic diet" or the "caveman diet" which it sounds like you're already starting to follow.

Info on "inflammation" also makes reference to lectins.

I'm starting to wonder about myself along these lines as I am still very fatigued most of the time (although admittedly I'm still struggling with gluten accidents) but my bowel symptoms are very improved.

I've learned to LIKE quinoa (especially with maple syrup on it!) and buckwheat and Mighty Tasty Cereal from Bob's Red Mill and am disheartened to learn I may have to forego those too. But I'm still investigating.

Another problem class of foods for some people are nightshades (tomatoes, potatoes, legumes, et al).

Perhaps after the intestine is healed from gluten avoidance other grains and nightshades can be re-introduced, like dairy. I sure hope so.

seeking-wholeness Explorer

YankeeDB,

My understanding of lectins comes from learning about the Blood Type Diet, which has as its primary goal the optimization of a person's lectin intake. I have learned that pretty much all food contains lectins, and the molecular structure of different foods' lectins can vary tremendously. In other words, tomato lectin is different from kidney bean lectin, which in turn is different from lentil lectin, which is different from wheat germ lectin (which is NOT the same thing as gluten), etc. They also have completely different effects on the body, and these effects vary in some cases according to a person's blood type. Wheat germ lectin, for instance, strongly resembles insulin in its molecular structure, and it is a major contributor to insulin resistance syndrome because it "fits the lock" on a person's cells and blocks ACTUAL insulin from doing its job. (This happens to some extent in all blood types.) Some lectins are actually beneficial, performing functions like identifying newly mutated cells and tangling them up so the immune system can deal with them before they become truly cancerous. (Different food lectins perform this function in different blood types.) Cooking and sprouting are processes that destroy the lectins in some foods, but they enhance the lectins in other foods.

So, a person would not have a generalized sensitivity to "lectin" or lectins, but he or she could certainly have trouble with some subset of lectins (those from the nightshade family, for instance). In the grain department, rice, millet, and quinoa have lectin activity that is neutral or beneficial for all blood types. All other grains are good for some and bad for others.

I personally believe that following the Blood Type Diet has shortened my recovery time from celiac disease by quite a bit, although of course I have no way to prove it! There are other diets that I believe have merit, but they are one-size-fits-all approaches, and I have ALWAYS found that I am just too different from the norm in so many areas of life for a generalized recommendation to be useful to me. The Blood Type Diet is a set of targeted recommendations, and I STILL have had to modify it to be gluten-free! You might find it an interesting read, if you haven't already invsetigated it.

Take care, and I hope your fatigue improves soon!

YankeeDB Contributor

Sarah, what an interesting and informative post! Thank you! Wow, you certainly do your homework. I will definitely look into the blood typing approach to diet choices. Have you heard anything about oligosaccharides and their role in helping lectin intolerant (I guess that would be specific lectin intolerance if I understand your post correctly) people tolerate them?

Incidentally, I've been using FOS (fructo-oligosaccharide) powder after reading that it is a sweet-tasting form of fiber that also supplies benefits for "good" microflora in the intestinal track.

seeking-wholeness Explorer

YankeeDB,

I haven't read much about FOS except that it IS good food for our friendly bacteria. The more they thrive, the more we can digest and the better our quality of life. Fascinatingly, it seems that many friendly bacteria actually use our blood type antigens as a food source as well, so different strains of bacteria are more or less prevalent in certain blood types depending on whether their favorite food is available!

The website for the Blood Type Diet is Open Original Shared Link, and here is some information on the books that I wrote in another post:

Eat Right 4 Your Type...presents a simplistic version of the diet that is a compromise between the two variants. This is largely because Dr. D'Adamo expected many of the book's readers to be "fad dieters" who were interested mainly in weight loss and would be turned off by technical details. Sad, but true! Live Right 4 Your Type, on the other hand, presents the diet/lifestyle in its entirety and is geared toward health-conscious readers who want guidance on how to make the most of their lives. It also contains the results of further research that hadn't been completed when Eat Right was published.

I recommend reading Eat Right first to get a handle on the main concepts behind the diet, then reading Live Right for the updated food lists and a lot of information on how blood type influences many aspects of our physiology indirectly (through gene linkage, primarily).

Enjoy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.