Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroenterology Journal - April 2005


Emme999

Recommended Posts

Emme999 Enthusiast

Hello :)

My doctor (who is *awesome*) just sent me this link to the gastroenterology journal for April 2005. All of the articles are free to view (not just abstracts). It is obviously very up to date too (well, as of April! ;))

Here is a list of articles:

National Institutes of Health consensus development conference statement on celiac disease, June 28–30, 2004

Overview and pathogenesis of celiac disease

Martin F. Kagnoff

Clinical features and diagnosis of celiac disease

David H. Dewar, Paul J. Ciclitira

What are the sensitivity and specificity of serologic tests for celiac disease? Do sensitivity and specificity vary in different populations?

Ivor D. Hill

Genetic testing: Who should do the testing and what is the role of genetic testing in the setting of celiac disease?

Edwin Liu, Marian Rewers, George S. Eisenbarth

The diagnostic accuracy of serologic tests for celiac disease: A systematic review

Alaa Rostom, Catherine Dubé, Ann Cranney, Navaaz Saloojee, Richmond Sy, Chantelle Garritty, Margaret Sampson, Li Zhang, Fatemeh Yazdi, Vasil Mamaladze, Irene Pan, Joanne MacNeil, David Mack, Dilip Patel, David Moher

Epidemiology of celiac disease: What are the prevalence, incidence, and progression of celiac disease?

Marian Rewers

Celiac disease in patients with an affected member, type 1 diabetes, iron-deficiency, or osteoporosis?

Joseph A. Murray

The prevalence of celiac disease in average-risk and at-risk Western European populations: A systematic review

Catherine Dubé, Alaa Rostom, Richmond Sy, Ann Cranney, Navaaz Saloojee, Chantelle Garritty, Margaret Sampson, Li Zhang, Fatemeh Yazdi, Vasil Mamaladze, Irene Pan, Joanne MacNeil, David Mack, Dilip Patel, David Moher

Clinical presentation of celiac disease in the pediatric population

Alessio Fasano

The many faces of celiac disease: Clinical presentation of celiac disease in the adult population

Peter H.R. Green

Association of celiac disease and intestinal lymphomas and other cancers

Carlo Catassi, Italo Bearzi, Geoffrey K.T. Holmes

Skin manifestations of celiac disease

John J. Zone

Neurologic presentation of celiac disease

Khalafalla O. Bushara

Should all children be screened for celiac disease?

Edward J. Hoffenberg

Should adults be screened for celiac disease? What are the benefits and harms of screening?

Pekka Collin

Consequences of testing for celiac disease

Ann Cranney, Alaa Rostom, Richmond Sy, Catherine Dubé, Navaz Saloogee, Chantal Garritty, David Moher, Margaret Sampson, Li Zhang, Fatemeh Yazdi, Vasil Mamaladze, Irene Pan, Joanne MacNeil

Dietary guidelines and implementation for celiac disease

Cynthia Kupper

The gluten-free diet: How to provide effective education and resources

Shelley Case

Follow-up of patients with celiac disease: Achieving compliance with treatment

Michelle Maria Pietzak

I haven't had a chance to look at any of this yet but I'm excited :)

Here is the link: Open Original Shared Link

Interesting reading I hope! :)

- Michelle :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Thank you so much! I will read it :)

jenvan Collaborator

Good articles! But can I just say I am reading the one on cancer and celiac disease and am getting myself really freaked out about it ! :o

jenvan Collaborator

Seriously!

(I read "Association of celiac disease and intestinal lymphomas and other cancers")

lbsteenwyk Explorer

Thank you so much for posting this. It's a great resource. Your Doc was awesome to send it to you! :D

Bette Explorer

Hey Michelle,

You are our resident researcher here!!! Great informative articles. Now if I only I could get some of the doctors to read it.

Thanks,

Bette

Guest nini

fascinating reading! I am especially (pleasantly) surprised at the part on how it is diagnosed. That there is no one specific test that can either definitively diagnose or exclude celiac in every individual. And also that it mentions the unreliability of the seriologic tests in children under 5. My daughter was 3 when we went through the (horrific) testing procedure for her... Oh if we had only known then what we know now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marycubs Rookie

Thank you for posting ! I am reading everything and anything that I can about this disease - (I'm newly diagnosed)...

Thanks to other posts I bought Wheat Free, Worry Free....by Danna Korn and Shelly Case's gluten-free Diet: Comprehensive Resource Guide. I've read about 1/2 of Danna Korns book and think it's great - she writes in a way that makes it easier for me to understand the why behind this disease/symptoms.

If you haven't already read it, I recommend it to others. :)

Mary

FaithInScienceToo Contributor

Just keeping this post fresh - great link!

Send it to every health care professional you may know...

Gina

citygirl114 Newbie

:D Great link....it is good to hear that you have a good doctor. Mine has never dealt with a celiac patient before so I am giving this link to him. Maybe we all need to educate our doctors a little more so that they understand what we deal with every day ;)

Thanks

Penny

Guest BellyTimber

Penny, more likely your doc. has dealt with celiac patients but didn't know it, many of us are the flag flyers, hang in there,

Michelle, your doc. actually wants you to know this stuff, truly amazing! Just goes to prove, good news is never far away! Am going to disseminate it further (without your name on).

Guest Viola

Thank you Michelle, I will spend part of my evening reading this site!

srdover Newbie

Thanks for the info. I WILL be reading the cancer and celiac disease. My dad died at 43 from T-cell lymphoma and I am rapidly approaching that age myself! ;)

Emme999 Enthusiast

Thanks for the thanks ;) But I am just thrilled to have such a great doctor who is so unbelievably caring & considerate. She told me that I'm her first celiac patient and I think she is actually kind of fascinated by it. But - more than anything - she is just incredibly nice! She called me a couple of weeks ago to tell me about some test results and was really excited for me because she'd found out that Ben & Jerry's is (mostly) gluten-free. I thought that was so sweet! Of course, I reminded her that I'm allergic to dairy.. :rolleyes: (To which she responded, "Damn!" tee-hee)

Anyway - I am incredibly lucky. She diagnosed me while she was working on a paper / presentation on celiac disease (probably for school - she's a nurse practitioner at the Univ. of Utah). After we had done about 15 other tests (diabetes, thyroid, HIV, etc) she called one day and said, "You know, I'm working on this paper - and the whole time I'm writing it I'm thinking 'I bet this is what Michelle has!'"

I knew right then that she was wonderful - I mean, how many other doctors think about their patients when they *aren't* at work?

I'll be sure and pass on any other information I receive!

I love you guys! *sniff* ;)

- Michelle :wub:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    2. - trents replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    5. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
    • knitty kitty
      Oh, my dear!  Get off that Fairlife chocolate protein shake!  That's got milk in it!  Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  If the villi grow back, they can resume making lactase again.   I react to casein and lactose both.  I get sores in my mouth and coated tongue, and inflammation, my Dermatitis Herpetiformis flares up, I get cold sores or shingles, and TMJ pain, well, joint pain in general, and my brain health is really affected, depression and anxiety.  So dairy is a really scary horror movie.     I take Benfotiamine and Thiamine TTFD  (tetrahydrofurfuryl disulfide).  These have anti-viral properties.   I've had chicken pox/shingles, and I also harbor the cold sore herpes virus which traveled to one eye through a nerve. It's broken now.  I had really bad nerve pain in my check at the time, then it turned into Bell's Palsy.  Thiamine TTFD helped clear up the dysphagia I was also experiencing then.  I took lots of Lysine to fight the herpes viruses as well.  Between the Thiamine TTFD and the Lysine, and avoiding dairy, mine stays dormant for the most part.   I also take a B Complex, and Magnesium Threonate to help the Thiamine TTFD work, Vitamin C, Vitamins A and D, and Zinc supplements to help Thiamine TTFD fight off those viruses. I have Sjogren's so I understand dry eye and mouth.  I found including Omega Threes, healthy fats, improved my problem.  You know how oil floats on top of water?  That's going on in our body, too.  Flaxseed oil supplements, and flaxseed oil to use on food is one way I increased my Omega Threes.  Choline and sunflower seed oil supplements are other choices I've tried.  Eat real food!  Eat fresh vegetables and fruit!  I had cooked stew in a crockpot until super mushy so I could chew and swallow it without lots of pain.  I got a bag of mandarin oranges, Cuties, whatever they're called now.  They're not too acidic.  Gluten free crackers don't have any nutritional value, no vitamins.   I followed the low histamine version of the Autoimmune Protocol Diet.  The book The Paleo Approach by Dr. Sarah Ballantyne has been most helpful.  She's a Celiac herself, and the diet has been shown to improve intestinal health. I have seen liquid vitamins on line.  Thiamine TTFD comes in a capsule, but tastes really strongly of garlic, so be prepared if your Gatorade tastes funny.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.