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Back To Work And Exhausted

labrisbin

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labrisbin Rookie
labrisbin
Posted

It's six months gluten free and since we have our own business, I've been able to work from home. However, summer is our busy season and no more of that. But three days in the shop have wiped me out. Totally exhausted. Extremely. Just curious to know if this has happened to others. I've been feeling better, but to feel this tired has me very surprised. I have even noticed increased tingling numbness in legs/feet. I've only eaten my own food and no GI issues, so I don't think it's CC. Has anyone else experienced this?

Thanks for your input.

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kareng Grand Master
kareng
Posted

For me, being sick with vitamin deficiencies has me out of shape. Now that I'm feeling better, I getting more exercise. I think you just have to build up your stamina if everything (vitamins & thyroid, etc) are good. You have to build up for the physical and mental stress of a job. Even if it's just sitting all day in one position or standing or up and down.

labrisbin Rookie
labrisbin
Posted
  • Author

For me, being sick with vitamin deficiencies has me out of shape. Now that I'm feeling better, I getting more exercise. I think you just have to build up your stamina if everything (vitamins & thyroid, etc) are good. You have to build up for the physical and mental stress of a job. Even if it's just sitting all day in one position or standing or up and down.

What's amazing to me is that before I stopped eating gluten, I thought I was fine. Sure, I had the fatigue, the rash and a host of other symptoms - but it was my normal. Now I'm off gluten and everything becomes more noticeable. Everything has new meaning. Each ache, pain, feeling of nausea, headache, etc. You learn to pay so much more attention to everything and have a new understanding of your body and it's relationship to food.

I think also that my expectations are that I should be feeling better faster. Wouldn't it be nice to document people's stories/experiences of healing the way we track and document symptoms of the illness?

anabananakins Explorer
anabananakins
Posted

What's amazing to me is that before I stopped eating gluten, I thought I was fine. Sure, I had the fatigue, the rash and a host of other symptoms - but it was my normal. Now I'm off gluten and everything becomes more noticeable. Everything has new meaning. Each ache, pain, feeling of nausea, headache, etc. You learn to pay so much more attention to everything and have a new understanding of your body and it's relationship to food.

That is so true. I thought it was normal to have stomach ache after meals, I thought that was how you knew you'd filled up. Now I think what did I eat, should I experiment removing it? Once you start to feel great, you want to feel great all the time.

kareng Grand Master
kareng
Posted

What's amazing to me is that before I stopped eating gluten, I thought I was fine. Sure, I had the fatigue, the rash and a host of other symptoms - but it was my normal. Now I'm off gluten and everything becomes more noticeable. Everything has new meaning. Each ache, pain, feeling of nausea, headache, etc. You learn to pay so much more attention to everything and have a new understanding of your body and it's relationship to food.

I think also that my expectations are that I should be feeling better faster. Wouldn't it be nice to document people's stories/experiences of healing the way we track and document symptoms of the illness?

I have to be careful not to over analyze everything now. You know... gas! Oh no! What is wrong! Did I get the only gluten ever put in a diet coke? The hamburger I put in the chili is contaminated! A bread crumb from my kids lunch he ate at McDonalds must have gotten in my crockpot! Maybe its just the bubbles in the diet coke and the beans in the chili. duh!

India Contributor
India
Posted

It's a while ago now, but I still remember that when I was 21 and healthy and first started working full-time, I came home every night and did nothing but sleep. Even without coeliac disease, going back to work after a break is exhausting; working in a shop and dealing with people all day is also very tiring and you've not been used to it for a while. Take it easy, look after yourself and prioritise getting some R&R each day. Hope you're feeling better soon.

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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