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Sleeplessness And Fatigue/newly Diagnosed Celiac


lynnmb

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lynnmb Rookie

My 12 year old daughter was diagnosed with Celiac 3 weeks ago and has been on a gluten free diet since then. She is feeling very tired much of the time during the day and also is having trouble falling asleep at night. Insomnia and fatigue have bothered her for years, though it seems magnified right now. Could the "feeling tired" be a result of her body healing?

Lynn


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RiceGuy Collaborator

Many go through this, and researchers aren't quite sure why some of these things occur once gluten-free.

The best thing I know of to resolve the fatigue and sleep problems is B vitamins, especially vitamin B12. I'd recommend a 5mg methylcobalamin sublingual tablet, such as the one made by Source Naturals. Taken about an hour before bedtime, it gives the brain what it needs to produce melatonin, making for a good night's sleep. It is also necessary for the production of serotonin. These two brain chemicals are vital for normal sleep/wake cycles. Resolving such a deficiency can make wonderful improvements in other areas of health as well, including energy, mood, vision, nail, skin and hair health, and so much more.

A good strong co-enzyme B-complex is also a good idea, and should not be overlooked.

In addition, magnesium, vitamin D3, vitamin K2, omega-3s, and zinc may also be very helpful.

Lastly, don't overlook an iron deficiency, which can also cause fatigue. Has your daughter had any tests for nutrient deficiencies? Just keep in mind that the tests aren't very good or accurate for all nutrients, and it cannot hurt to try some supplements, even if tests say levels are normal.

lynnmb Rookie

Many go through this, and researchers aren't quite sure why some of these things occur once gluten-free.

The best thing I know of to resolve the fatigue and sleep problems is B vitamins, especially vitamin B12. I'd recommend a 5mg methylcobalamin sublingual tablet, such as the one made by Source Naturals. Taken about an hour before bedtime, it gives the brain what it needs to produce melatonin, making for a good night's sleep. It is also necessary for the production of serotonin. These two brain chemicals are vital for normal sleep/wake cycles. Resolving such a deficiency can make wonderful improvements in other areas of health as well, including energy, mood, vision, nail, skin and hair health, and so much more.

A good strong co-enzyme B-complex is also a good idea, and should not be overlooked.

In addition, magnesium, vitamin D3, vitamin K2, omega-3s, and zinc may also be very helpful.

Lastly, don't overlook an iron deficiency, which can also cause fatigue. Has your daughter had any tests for nutrient deficiencies? Just keep in mind that the tests aren't very good or accurate for all nutrients, and it cannot hurt to try some supplements, even if tests say levels are normal.

Thanks, Iron deficiency has been ruled out. Your suggestions for supplements are appreciated and we will give them a try!

T.H. Community Regular

My 11 year old daughter had the same issue - very exhausted after going gluten free.

I had been diagnosed celiac just a few weeks before her and was tested for food allergies, so that was on my mind when she started feeling worse.

The GI said that many celiacs have other food allergies or issues (sensitive to other foods) as well. Also, many celiacs have issues with preservatives, additives, and dyes, and they can have more issues with genetically modified foods (we went organic on my doc's advice).

Add to that - a new study found a connection between pesticides in produce and ADHD symptoms in children, recently, so it was recommending organic produce for kids, too.

We took the kids off of the 8 major food allergens, plus food allergies common to our family, and my daughter was much better very quickly. Trying to slowly add foods back in, we've discovered that she DOES have sensitivities to other foods. Harder time sleeping, more emotional outbursts, and exhaustion are the typical symptoms. Which seems almost impossible to tell if it was food or her, until you see how she is OFF the food, and then it's like night and day.

Also, if your doc didn't mention it, most celiacs are lactose intolerant until they've healed, so many doctors recommend staying away from dairy for the first few months after going gluten free. It lets the gut heal a little quicker. :)

My 12 year old daughter was diagnosed with Celiac 3 weeks ago and has been on a gluten free diet since then. She is feeling very tired much of the time during the day and also is having trouble falling asleep at night. Insomnia and fatigue have bothered her for years, though it seems magnified right now. Could the "feeling tired" be a result of her body healing?

Lynn

lynnmb Rookie

Thanks,

She is also lactose intolerant, and we do mostly organic. Can you share the the 8 common food allergins that you mentioned, I would love to have a list to work from and see if I need to eliminate other things. So far the dairy has been the most difficult to do without. We will be glad when she can have more of that!

Lynn

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    • lizzie42
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      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
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