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New To Gluten Free And Dairy

flartista

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flartista Rookie
flartista
Posted

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

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luvs2eat Collaborator
luvs2eat
Posted

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

I didn't eliminate diary when I went gluten free... going on 10 years ago... and all was well. Fast forward to now... and it seems that dairy no longer loves me. And, I'm finding it MUCH harder to eliminate dairy than it was to do away w/ gluten! There are good breads and many ways to cook/bake w/o gluten... but butter is butter and good cheese is good cheese and there ARE NO SUBSTITUTES!! (Well meaning friends keep suggesting alternatives, but there ARE NONE for butter and good cheese)

I also limit grains (corn included)... mainly because I'm a total carb addict (Hello, my name is Leslie and I'm a carboholic!).

Gluten can be in just about ANYTHING... so reading ingredients or asking gelato sellers is key.

Good luck!!

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

If you still have tests to do for celiac then you should NOT go gluten free until those tests are done. Doing so could make the tests inaccurate. Yes, many do find they are better without dairy. Some react to casein in the same way as they react to gluten. Others have a problem with lactose becaus eof the flattened villi in the small intestine. If the problem is lactose you may be able to add dairy back in after a while of avoiding it. But some people don't have a problem with dairy at all. If it's too overwhelming for you to eliminate dairy as well as gluten, then don't worry about the dairy until you have to cross that bridge. See if you feel better gluten free and if you don't then eliminate dairy and possibly soy (also another common culprit). Just don't do the gluten free until after your tests are done.

flartista Rookie
flartista
Posted
  • Author

If you still have tests to do for celiac then you should NOT go gluten free until those tests are done. Doing so could make the tests inaccurate. Yes, many do find they are better without dairy. Some react to casein in the same way as they react to gluten. Others have a problem with lactose becaus eof the flattened villi in the small intestine. If the problem is lactose you may be able to add dairy back in after a while of avoiding it. But some people don't have a problem with dairy at all. If it's too overwhelming for you to eliminate dairy as well as gluten, then don't worry about the dairy until you have to cross that bridge. See if you feel better gluten free and if you don't then eliminate dairy and possibly soy (also another common culprit). Just don't do the gluten free until after your tests are done.

My doctor wants me to take a test to determine if I have the gene for celiac first I suppose. I had eliminated gluten for almost two weeks then I realized that I really hadn't because I had communion on sundays, soy sauce, imitation crab, and possibly more exposure with refried beans at a restaurant and some gelato...I have a feeling though that dairy is going to be a problem because I'm still eating that and still feel bad even cutting back on gluten. I really appreciate everyone's response with this! Thanks!!!!

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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