Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Gluten Free And Dairy


flartista

Recommended Posts

flartista Rookie

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

I didn't eliminate diary when I went gluten free... going on 10 years ago... and all was well. Fast forward to now... and it seems that dairy no longer loves me. And, I'm finding it MUCH harder to eliminate dairy than it was to do away w/ gluten! There are good breads and many ways to cook/bake w/o gluten... but butter is butter and good cheese is good cheese and there ARE NO SUBSTITUTES!! (Well meaning friends keep suggesting alternatives, but there ARE NONE for butter and good cheese)

I also limit grains (corn included)... mainly because I'm a total carb addict (Hello, my name is Leslie and I'm a carboholic!).

Gluten can be in just about ANYTHING... so reading ingredients or asking gelato sellers is key.

Good luck!!

GlutenFreeManna Rising Star

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

If you still have tests to do for celiac then you should NOT go gluten free until those tests are done. Doing so could make the tests inaccurate. Yes, many do find they are better without dairy. Some react to casein in the same way as they react to gluten. Others have a problem with lactose becaus eof the flattened villi in the small intestine. If the problem is lactose you may be able to add dairy back in after a while of avoiding it. But some people don't have a problem with dairy at all. If it's too overwhelming for you to eliminate dairy as well as gluten, then don't worry about the dairy until you have to cross that bridge. See if you feel better gluten free and if you don't then eliminate dairy and possibly soy (also another common culprit). Just don't do the gluten free until after your tests are done.

flartista Rookie

If you still have tests to do for celiac then you should NOT go gluten free until those tests are done. Doing so could make the tests inaccurate. Yes, many do find they are better without dairy. Some react to casein in the same way as they react to gluten. Others have a problem with lactose becaus eof the flattened villi in the small intestine. If the problem is lactose you may be able to add dairy back in after a while of avoiding it. But some people don't have a problem with dairy at all. If it's too overwhelming for you to eliminate dairy as well as gluten, then don't worry about the dairy until you have to cross that bridge. See if you feel better gluten free and if you don't then eliminate dairy and possibly soy (also another common culprit). Just don't do the gluten free until after your tests are done.

My doctor wants me to take a test to determine if I have the gene for celiac first I suppose. I had eliminated gluten for almost two weeks then I realized that I really hadn't because I had communion on sundays, soy sauce, imitation crab, and possibly more exposure with refried beans at a restaurant and some gelato...I have a feeling though that dairy is going to be a problem because I'm still eating that and still feel bad even cutting back on gluten. I really appreciate everyone's response with this! Thanks!!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Second chance

    2. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      13

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    3. - Scott Adams replied to JamieAnn's topic in Gluten-Free Restaurants
      2

      Jersey Mike’s option: Gluten-free bread

    4. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      13

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,520
    • Most Online (within 30 mins)
      7,748

    Jacquelyn Burke
    Newest Member
    Jacquelyn Burke
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, I'm I crazy, nieve, or atomistic? I reached out to my former pcp of 25 years on the medical app today.Reading on the National Library of Medicine 75.6  physicians don't know celiac disease.To be fair he is primary and with the lack of knowledge, I did reach out because he was my Dr for 25 years.I do prefer his app than the one I currently have that was ignite of the disability celiac circus name chaser thanks to the one that  I currently have Since May 31, 2025 to present.
    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.