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New To Gluten Free And Dairy


flartista

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flartista Rookie

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?


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luvs2eat Collaborator

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

I didn't eliminate diary when I went gluten free... going on 10 years ago... and all was well. Fast forward to now... and it seems that dairy no longer loves me. And, I'm finding it MUCH harder to eliminate dairy than it was to do away w/ gluten! There are good breads and many ways to cook/bake w/o gluten... but butter is butter and good cheese is good cheese and there ARE NO SUBSTITUTES!! (Well meaning friends keep suggesting alternatives, but there ARE NONE for butter and good cheese)

I also limit grains (corn included)... mainly because I'm a total carb addict (Hello, my name is Leslie and I'm a carboholic!).

Gluten can be in just about ANYTHING... so reading ingredients or asking gelato sellers is key.

Good luck!!

GlutenFreeManna Rising Star

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

If you still have tests to do for celiac then you should NOT go gluten free until those tests are done. Doing so could make the tests inaccurate. Yes, many do find they are better without dairy. Some react to casein in the same way as they react to gluten. Others have a problem with lactose becaus eof the flattened villi in the small intestine. If the problem is lactose you may be able to add dairy back in after a while of avoiding it. But some people don't have a problem with dairy at all. If it's too overwhelming for you to eliminate dairy as well as gluten, then don't worry about the dairy until you have to cross that bridge. See if you feel better gluten free and if you don't then eliminate dairy and possibly soy (also another common culprit). Just don't do the gluten free until after your tests are done.

flartista Rookie

If you still have tests to do for celiac then you should NOT go gluten free until those tests are done. Doing so could make the tests inaccurate. Yes, many do find they are better without dairy. Some react to casein in the same way as they react to gluten. Others have a problem with lactose becaus eof the flattened villi in the small intestine. If the problem is lactose you may be able to add dairy back in after a while of avoiding it. But some people don't have a problem with dairy at all. If it's too overwhelming for you to eliminate dairy as well as gluten, then don't worry about the dairy until you have to cross that bridge. See if you feel better gluten free and if you don't then eliminate dairy and possibly soy (also another common culprit). Just don't do the gluten free until after your tests are done.

My doctor wants me to take a test to determine if I have the gene for celiac first I suppose. I had eliminated gluten for almost two weeks then I realized that I really hadn't because I had communion on sundays, soy sauce, imitation crab, and possibly more exposure with refried beans at a restaurant and some gelato...I have a feeling though that dairy is going to be a problem because I'm still eating that and still feel bad even cutting back on gluten. I really appreciate everyone's response with this! Thanks!!!!

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      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
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