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New To Gluten Free And Dairy


flartista

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flartista Rookie

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?


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luvs2eat Collaborator

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

I didn't eliminate diary when I went gluten free... going on 10 years ago... and all was well. Fast forward to now... and it seems that dairy no longer loves me. And, I'm finding it MUCH harder to eliminate dairy than it was to do away w/ gluten! There are good breads and many ways to cook/bake w/o gluten... but butter is butter and good cheese is good cheese and there ARE NO SUBSTITUTES!! (Well meaning friends keep suggesting alternatives, but there ARE NONE for butter and good cheese)

I also limit grains (corn included)... mainly because I'm a total carb addict (Hello, my name is Leslie and I'm a carboholic!).

Gluten can be in just about ANYTHING... so reading ingredients or asking gelato sellers is key.

Good luck!!

GlutenFreeManna Rising Star

I'm new to this and I'm just diagnosed with gluten intolerance. I still have labs to do for Celiac. My doctor told me that I had to go gluten free but I'm having a hard time with dairy. He never said to stay away from dairy but I keep reading about having to do them together initially. My question is in the beginning is giving up dairy really important? I also had sushi last night and forgot that imitation crab meat had gluten as well as soy. I can control what I do at home but eating out can be difficult. Today I had corn tortillas at a restaurant and re-fried beans then later I find out some re-fried beans have gluten. I had gelato and thought gelato was gluten free but apparently that can have gluten in it. Then there's maltadextrin? Maltitol any malt is barley derived right? I feel overwhelmed even my Tums has wheat of some form in it. I just need someone to tell me the truth about dairy and going gluten free. Also then there are tons of gluten free alternatives with corn is which, GMO and fattening isn't it?

If you still have tests to do for celiac then you should NOT go gluten free until those tests are done. Doing so could make the tests inaccurate. Yes, many do find they are better without dairy. Some react to casein in the same way as they react to gluten. Others have a problem with lactose becaus eof the flattened villi in the small intestine. If the problem is lactose you may be able to add dairy back in after a while of avoiding it. But some people don't have a problem with dairy at all. If it's too overwhelming for you to eliminate dairy as well as gluten, then don't worry about the dairy until you have to cross that bridge. See if you feel better gluten free and if you don't then eliminate dairy and possibly soy (also another common culprit). Just don't do the gluten free until after your tests are done.

flartista Rookie

If you still have tests to do for celiac then you should NOT go gluten free until those tests are done. Doing so could make the tests inaccurate. Yes, many do find they are better without dairy. Some react to casein in the same way as they react to gluten. Others have a problem with lactose becaus eof the flattened villi in the small intestine. If the problem is lactose you may be able to add dairy back in after a while of avoiding it. But some people don't have a problem with dairy at all. If it's too overwhelming for you to eliminate dairy as well as gluten, then don't worry about the dairy until you have to cross that bridge. See if you feel better gluten free and if you don't then eliminate dairy and possibly soy (also another common culprit). Just don't do the gluten free until after your tests are done.

My doctor wants me to take a test to determine if I have the gene for celiac first I suppose. I had eliminated gluten for almost two weeks then I realized that I really hadn't because I had communion on sundays, soy sauce, imitation crab, and possibly more exposure with refried beans at a restaurant and some gelato...I have a feeling though that dairy is going to be a problem because I'm still eating that and still feel bad even cutting back on gluten. I really appreciate everyone's response with this! Thanks!!!!

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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