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Hypersensitivity


queenlamoni

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queenlamoni Newbie

I am having issues with taking medicines that have a coating. Everywhere I turn it says that there is no gluten in them. The only avenue I had found was a post from a man in Australia last year that had reacted to Pristiq because the coating did have a trace amount of gluten that he was able to verify. I stopped the Pristiq after 3 weeks last year because I became very lethargic and had the typical symptoms that I get from small amounts of gluten. I got better. But I've noticed that I seem to have symptoms when I've had to take more pills than usual (Pain pills + vitamins+ heart burn pills + supplements + allergy pills) and I've noticed that if I wipe off the pills that the fatigue isn't as bad. I was wondering if anyone else has had this experience?

I've also had to stop taking the Claritin Decongestant 12 hour or 24 hour because when I take them I become very fatigued to the point of not being able to function safely. I took these for years and never had a problem until the last 18 months. I've checked everything I can think of in my house for gluten, made phone calls, etc. The only thing that seems to be suspect is the coating on the pills. I'm not lactose intolerant either.

I have put on 40 pounds in the last year because of the fatigue, and I am so tired of being tired. I was hoping to find someone who might be able to shed some light on the subject or give me some hope.

Thanks :)


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dilettantesteph Collaborator

I am also hypersensitive to gluten. I stopped taking vitamins completely. I felt way better. Weird, you would think that the vitamins should be making me feel better, not worse. I don't take any meds. Hopefully I won't have to. I just switched from instant coffee to organic beans and that helped a lot too. I stick to unprocessed foods and minimal grains. Hope you feel better soon.

Skylark Collaborator

Maybe you can get a coumpounding pharmacy to make you the OTC drugs you need in a gluten-free form.

Also with the Claritin it is possible to have a side effect suddenly start bothering you. Drowsiness is a well-known side effect of that medicine.

RiceGuy Collaborator

I always use the powdered forms of supplements whenever I can. The rest I try to get in capsules, as they seem to generally contain less added ingredients. You can get vegetarian capsules if gelatin is a problem. I don't take meds, only supplements, so I haven't had to look into that, but I'd think some brands would be formulated differently.

Even if your reaction seems the same as it is from gluten, it may be some other substance causing the problem. Additional sensitivities are common, especially to the top 8 allergens.

Flo BInks Newbie

I also have problems with supplements and medications. The problem for me is not gluten - they are gluten free- but the filler that they use - derivatives of cellulose. The reaction I get is hard to tell from a gluten reaction. The gelatin caps are ok, but the vegetarian ones are made from cellulose derivative. But at least you can empty the contents out.

I get supplements in powder form to avoid cellulose and cc, and a compounding pharmacy can make a lot of drugs for you.

Sarah Binks

  • 1 year later...
queenlamoni Newbie

Thank you for all your responses. Sorry I had not look on here recently. I think I have developed a sentivity to this medicine. In part that's why I'm searching on here today.

I was on the verge of an ear infection because of the cedar allergies, so I took a 4 hour Wal-phed (chloropheniramine and pseudoephedrine) and the sedation has lasted over 24 hours. Getting in to see doctor tomorrow, they told me to push fluids and I should feel better tonight. Apparently the antihistamine part of that duo can interact negatively with a lot a things one of them Zyrtec. Funny thing is that it had been over 36 hours since I has taken a half dose of that, but there was still enough in my system to create an issue.

I use to never have problems with medicines, but along with this hypersensitivity to gluten I have also developed odd reactions to medicines in the last two years. Even ones that are suppose to be gluten free. I really wish I could get away from taking all medicine, but I have not been able to achieve that yet. As soon as I am able I think I will buy a juice, so I can improve my nutrient intake. Hopefully that can help decrease the severe allergies I have too.

Has anyone had any luck eliminating asthma and allergies by eliminating dairy? I guess I need to hear an actual persons testimonial to that before I can muster up the courage to restrict my diet more.

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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