Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Platelets

anniej55

Recommended Posts

anniej55 Apprentice
anniej55
Posted

Hi all,

I just rec'd a call from my primary care - my platelets are still low (88, 82 last time) and she wants me to see hematologist. My spleen is fine according to a CAT scan (and everything else was fine with that). I am, once again, scared out of mind thinking it might be cancer. Can celiacs cause the low platelets? She did say (after I asked) that there is no evidence of any other auto-immune diseases.

My appt is for the 14th .... I'm ready to chuck this diet and eat and drink what I want to. I know it won't be worth it in the long run ....

Ann

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jknnej Collaborator
jknnej
Posted

Hi there,

I wish I knew something about your situation-but don't freak yourself out!

I don't know what it means to have low platelets but I know that I often worry too much about something that will turn out to be nothing.

I hope someone else hear knows about this so they can help reassure you-

We're here if you need us!

anniej55 Apprentice
anniej55
Posted
  • Author

Thanks for the reply ... wish my doctor was caring. I'm searching for a new one, one that knows and deals with celiacs. She's probably a good diagnostician, but stinks in bedside manner and in explaining things.

Ann

VydorScope Proficient
VydorScope
Posted

Ann dont panic! I been to a hemotogist and thres nothing to be scared of. Sit down now, while your home and comfortable and write up a list of questions to ask the doc when you get there. Bring that list with you so you dont forget anything, and you can be more organized. This also gives you a place to write answers down to review later. Do the same when you see any doctor. Asking lots of questions is the only way you will get your answers.

Do you have a specific concern we here can help with ahead of time?

VydorScope Proficient
VydorScope
Posted

Some info for you...

Platelets are irregularly-shaped, colorless bodies that are present in blood. Their sticky surface lets them, along with other substances, form clots to stop bleeding.

When bleeding from a wound suddenly occurs, the platelets gather at the wound and attempt to block the blood flow. The mineral calcium, vitamin K, and a protein called fibrinogen help the platelets form a clot.

Since celiac disease causes malnutrition, I would assume that a low platelet count is a possible system.

anniej55 Apprentice
anniej55
Posted
  • Author

Hi All,

Thanks for the replies. Specific concern? Keeping my sanity and not thinking that they're looking for something more serious.

OK .... so if my doctor put me on 50,000 of vitamin D 3X a week because of malasorption, then it isn't a leap to come to the conclusion that my blood work is low (platelets, rbc, wbc) because of 1. Poor eating habits both before and after the celiac diagnosis and 2. no matter what I ate it didn't do me any good! And maybe once we get this whole thing straightned out it might go back to normal?

And to make things a littler clearer for you all (as to why I'm just slightly over the edge on this) ... my husband, at the age of 38, was diagnosed with esophogeal cancer in May of 1992 and died in July of 1992 .... they'd been poking around trying to figure out what his problem was from January 1992 on. He wasn't proactive ... and so I'm just plain old scared. The doctor didn't understand ... but you are all so kind that I'm figuring you know what's going on inside my head.

Ann

VydorScope Proficient
VydorScope
Posted
OK .... so if my doctor put me on 50,000 of vitamin D 3X a week because of malasorption, then it isn't a leap to come to the conclusion that my blood work is low (platelets, rbc, wbc) because of 1. Poor eating habits both before and after the celiac diagnosis and 2. no matter what I ate it didn't do me any good! And maybe once we get this whole thing straightned out it might go back to normal?

Absolutly reasonable. In fact no matter WHAT is wrong with you, a healthy blanced diet is a good move. :D I would suggest you get to work on your diet, go ahead and get it gluten-free, all those grains you will be cutting out are not that healthy to begin with. Go to the doctors, talk to them, ask questions, etc, but get your diet uncontrol ASAP. Mark your calander, 6 months of healthy eating, then ask for all your blood tests to be redone. I personly believe no matter what your issue is, it will be at least somewhat helped by that plan, and certinly not hurt! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anniej55 Apprentice
anniej55
Posted
  • Author

Hi All,

I finally emailed my doctor ... and she said the lab work abnormality could indicate either Lupus or ITP - Idiopathic Thromocytopenic Purpura. Neither is wonderful, but certainly better then what I was thinking I had.

And to think that one month ago I was fine, absolutely fine ... and still feel that way today! Two good days in a row .....

Ann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.