Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reading Some Of These Topics Has Me Thinking


macocha

Recommended Posts

macocha Contributor

:huh:

Maybe I am clueless about this whole entire ordeal, but I am wondering...

my son, who is now 13, was diagnosed in March. All the other kiddos tested negative (three others) and one had the Endo because of other issues. Found she has gastitis on top of the fructose malabsorption, but negative for celiac.

Son's twin tested negative too but he shows no outward signs of it.

BUT, my just turned five year old...I wonder. Someone posted about their child being in 2T/3T clothes. My son is in 4t pants but I have to tighten them to get them to fit. He could wear 3t for the perfect waist size, but length is about 1 or 2 inches too short. Shorts he can still fit into 24 months/2T fine. :blink: His shirts he can put a 3T on, but I buy him 4 or 5T based on what it looks like.

My other kids tended to wear their size via their age, so this is a bit new to me. I look at him with other kids his age and he is smaller, but not horribly smaller. He is still at 38lbs and has been for awhile.

His labs came back negative.

would you take him to a GI to be safe?? I just don't really know...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

My 5 1/2 year old, who will be starting kindergarden next month, is 43" and weighs in at 40 lb. He is fitting into his clothes size fine, but some 5's are bit big especially pants, usually to baggy but need the length. Different brands fit differently also. I have found that the better made more expensive outfitters, he can wear a smaller size than if I buy him something at k-mart or such. He is not the smallest for his age and not the biggest. He seems to be right in the middle. Both my kids are skinny, they have a very high metabolism just like their daddy. Their dad is 6' and soaking wet probably weighs about 170 lb. He has a very lean non bulky frame. As for that, I think they take after him. Now my oldest is 9 1/2 and only checks in at 50" and 55 lb. As for growth he is the one I am concerned with. He is the smallest boy now in his class and he will be going into the 4th grade. He has been wearing the same size underwear since second grade (size 6-8). I have to buy him new ones but only because he has worn them out not grown out of them. :blink: So as for being worried I can relate. As like yours both of their blood work was negative. Lately, for about a moth or so they both have been complaining of their stomachs hurting. Kids are going to do that, but it has been more often to just brush off. Not sure what I'm going to do yet.

scarlett77 Apprentice

Honestly I try not to worry unless there really is something to worry about. My Celiac son is noticeably small for his age and quite honestly he was wearing 12-18 months from about 18 months all the way until about 28 months. He has a tiny waist so 18 months will still fit him around the waist on some styles, but will be way too short. Be went off the charts so it was quite obvious with him that something was wrong. Not my youngest has not grown very much between 12 months & 15 months, but I am trying not to worry about it since he is 1) pretty tall and grew an 1", 2) he became very active, and 3) he is still about 50%. Yes I am watching him like a hawk, but I really try not to worry too much. Active word here is TRY.

dkelm Rookie

Honestly I try not to worry unless there really is something to worry about. My Celiac son is noticeably small for his age and quite honestly he was wearing 12-18 months from about 18 months all the way until about 28 months. He has a tiny waist so 18 months will still fit him around the waist on some styles, but will be way too short. Be went off the charts so it was quite obvious with him that something was wrong. Not my youngest has not grown very much between 12 months & 15 months, but I am trying not to worry about it since he is 1) pretty tall and grew an 1", 2) he became very active, and 3) he is still about 50%. Yes I am watching him like a hawk, but I really try not to worry too much. Active word here is TRY.

This my kid. He is 22 months old and still in size 12 month pants and shirts. Some 18 month stuff fits him slightly big, depending on the brand. But he is solidly still in 12 month size clothes and has been for 10 months now. We had a family picture taken in Oct and he is still wearing those clothes - and they still fit him correctly. I bought him some 24 month size clothes just for the hell-of-it and they are wayyyy too big.

To the OP: I also have a 5 1/2 year old starting Kind in the fall. He is small waisted too. And really, I think that's normal for this age. Is your son outside and playing a lot? My guy wears size 6, but the waist has to always be cinched as tight as it can. He needs the length though. At 22 months though (my son's current age) he was in a 3T for most things. He was so hefty and chunky. He was HUGE. Not this little guy. But then again, this little guy hasn't gained any weight in awhile.

I also have to add that we have not been diagnosed yet. We are in the diagnosing stage. We are waiting on the call back from the scheduler to schedule his endoscopy.

macocha Contributor

he is outside and plays. I try not to compare him to his siblings, but that is hard. I had practice with the twins though in not comparing...lol

I do watch him though. there have been times where he complains of tummy aches, but not in excess...so it is watch and see at this point.

thanks! :)

dkelm Rookie

he is outside and plays. I try not to compare him to his siblings, but that is hard. I had practice with the twins though in not comparing...lol

I do watch him though. there have been times where he complains of tummy aches, but not in excess...so it is watch and see at this point.

thanks! :)

It's so hard not to compare, isn't it? We are outside ALL the time. My kids very rarely play video games (maybe one a month?), because they would rather be riding their bike or playing tag with their friends outside. When we are inside, they are usually fighting. HAHAHA!! So anyway, if he is outside playing like a normal kid plays - he is probably very naturally lean. My 5 year old is all long and there is not an ounce of fat on his body. I think your little guy is probably in the range of "normal" and I wouldn't worry too much. :) A little worry is good though - it shows you're a caring Mom.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.