Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reading Some Of These Topics Has Me Thinking

macocha

Recommended Posts

macocha Contributor
macocha
Posted

:huh:

Maybe I am clueless about this whole entire ordeal, but I am wondering...

my son, who is now 13, was diagnosed in March. All the other kiddos tested negative (three others) and one had the Endo because of other issues. Found she has gastitis on top of the fructose malabsorption, but negative for celiac.

Son's twin tested negative too but he shows no outward signs of it.

BUT, my just turned five year old...I wonder. Someone posted about their child being in 2T/3T clothes. My son is in 4t pants but I have to tighten them to get them to fit. He could wear 3t for the perfect waist size, but length is about 1 or 2 inches too short. Shorts he can still fit into 24 months/2T fine. :blink: His shirts he can put a 3T on, but I buy him 4 or 5T based on what it looks like.

My other kids tended to wear their size via their age, so this is a bit new to me. I look at him with other kids his age and he is smaller, but not horribly smaller. He is still at 38lbs and has been for awhile.

His labs came back negative.

would you take him to a GI to be safe?? I just don't really know...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

My 5 1/2 year old, who will be starting kindergarden next month, is 43" and weighs in at 40 lb. He is fitting into his clothes size fine, but some 5's are bit big especially pants, usually to baggy but need the length. Different brands fit differently also. I have found that the better made more expensive outfitters, he can wear a smaller size than if I buy him something at k-mart or such. He is not the smallest for his age and not the biggest. He seems to be right in the middle. Both my kids are skinny, they have a very high metabolism just like their daddy. Their dad is 6' and soaking wet probably weighs about 170 lb. He has a very lean non bulky frame. As for that, I think they take after him. Now my oldest is 9 1/2 and only checks in at 50" and 55 lb. As for growth he is the one I am concerned with. He is the smallest boy now in his class and he will be going into the 4th grade. He has been wearing the same size underwear since second grade (size 6-8). I have to buy him new ones but only because he has worn them out not grown out of them. :blink: So as for being worried I can relate. As like yours both of their blood work was negative. Lately, for about a moth or so they both have been complaining of their stomachs hurting. Kids are going to do that, but it has been more often to just brush off. Not sure what I'm going to do yet.

scarlett77 Apprentice
scarlett77
Posted

Honestly I try not to worry unless there really is something to worry about. My Celiac son is noticeably small for his age and quite honestly he was wearing 12-18 months from about 18 months all the way until about 28 months. He has a tiny waist so 18 months will still fit him around the waist on some styles, but will be way too short. Be went off the charts so it was quite obvious with him that something was wrong. Not my youngest has not grown very much between 12 months & 15 months, but I am trying not to worry about it since he is 1) pretty tall and grew an 1", 2) he became very active, and 3) he is still about 50%. Yes I am watching him like a hawk, but I really try not to worry too much. Active word here is TRY.

dkelm Rookie
dkelm
Posted

Honestly I try not to worry unless there really is something to worry about. My Celiac son is noticeably small for his age and quite honestly he was wearing 12-18 months from about 18 months all the way until about 28 months. He has a tiny waist so 18 months will still fit him around the waist on some styles, but will be way too short. Be went off the charts so it was quite obvious with him that something was wrong. Not my youngest has not grown very much between 12 months & 15 months, but I am trying not to worry about it since he is 1) pretty tall and grew an 1", 2) he became very active, and 3) he is still about 50%. Yes I am watching him like a hawk, but I really try not to worry too much. Active word here is TRY.

This my kid. He is 22 months old and still in size 12 month pants and shirts. Some 18 month stuff fits him slightly big, depending on the brand. But he is solidly still in 12 month size clothes and has been for 10 months now. We had a family picture taken in Oct and he is still wearing those clothes - and they still fit him correctly. I bought him some 24 month size clothes just for the hell-of-it and they are wayyyy too big.

To the OP: I also have a 5 1/2 year old starting Kind in the fall. He is small waisted too. And really, I think that's normal for this age. Is your son outside and playing a lot? My guy wears size 6, but the waist has to always be cinched as tight as it can. He needs the length though. At 22 months though (my son's current age) he was in a 3T for most things. He was so hefty and chunky. He was HUGE. Not this little guy. But then again, this little guy hasn't gained any weight in awhile.

I also have to add that we have not been diagnosed yet. We are in the diagnosing stage. We are waiting on the call back from the scheduler to schedule his endoscopy.

macocha Contributor
macocha
Posted
  • Author

he is outside and plays. I try not to compare him to his siblings, but that is hard. I had practice with the twins though in not comparing...lol

I do watch him though. there have been times where he complains of tummy aches, but not in excess...so it is watch and see at this point.

thanks! :)

dkelm Rookie
dkelm
Posted

he is outside and plays. I try not to compare him to his siblings, but that is hard. I had practice with the twins though in not comparing...lol

I do watch him though. there have been times where he complains of tummy aches, but not in excess...so it is watch and see at this point.

thanks! :)

It's so hard not to compare, isn't it? We are outside ALL the time. My kids very rarely play video games (maybe one a month?), because they would rather be riding their bike or playing tag with their friends outside. When we are inside, they are usually fighting. HAHAHA!! So anyway, if he is outside playing like a normal kid plays - he is probably very naturally lean. My 5 year old is all long and there is not an ounce of fat on his body. I think your little guy is probably in the range of "normal" and I wouldn't worry too much. :) A little worry is good though - it shows you're a caring Mom.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748
    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.