Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs-D


willabec

Recommended Posts

willabec Contributor

does anyone who has celiac also have IBS-D???just curious...thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Celiac is a very common underlying cause of IBS-D. Mine went away when I went off gluten (along with a ton of other problems).

jackay Enthusiast

Gluten intolerant here but never confirmed Celiac as not willing to go back to eating gluten. The D was what finally tipped off gluten intolerance after 11 years of fatigue, over four years of being so sick both physically and mentally that I wanted to die. It was less than I year that I had the horrible D but luckily I did or I would either be even sicker than I was or I would have ended my life.

For me the D went away after giving up gluten. Also, my extreme anxiety went away in just a few days.

ksymonds84 Enthusiast

I used to think that I still had IBS riding along with the celiac but then found out that I also have a problem with fructose. I can only eat so much fructose in one sitting or I greatly pay for it with the big D. Fruit, applesauce, and anything with High fructose corn syrup and corn syrup solids will get me if I have too much. everyone is different on what they can handle. If you google Sue Shepard fructose malabsorption you will get many hits to learn about it.

willabec Contributor

I used to think that I still had IBS riding along with the celiac but then found out that I also have a problem with fructose. I can only eat so much fructose in one sitting or I greatly pay for it with the big D. Fruit, applesauce, and anything with High fructose corn syrup and corn syrup solids will get me if I have too much. everyone is different on what they can handle. If you google Sue Shepard fructose malabsorption you will get many hits to learn about it.

how did you find out you were sensative to too much fructose? i have celiac but now have loose stools/D (sometimes) and it has been going on like this for about a year or so.....maybe it is something else other than IBS-D??

ksymonds84 Enthusiast

how did you find out you were sensative to too much fructose? i have celiac but now have loose stools/D (sometimes) and it has been going on like this for about a year or so.....maybe it is something else other than IBS-D??

For me, keeping a food diary along with writing down symptoms for the day, really helped me figure what else was going on. I was able to see that the mornings I was eating a gluten free waffle with peanut butter and blueberry preserves was giving me a D day. Also at Thanksgiving I had a severe reaction. Everything was gluten free but I had sweet potato casserole, small piece of pumpkin pie and a small piece of pecan pie plus a gluten free chocolate chip cookie. Around 3 in the morning I had severe D, hot and cold flashes, my ears were ringing and was dizzy. I have medical people in the family and they suggested that I had a high fructose intake (especially since I put corn syrup in the pecan and sweet potato casserole). So I did a ton of research and now watch my fructose and know what I can have and not have based on my food journal. Hope you find your answer I know how tough it can be trying to be your own detective.

willabec Contributor

For me, keeping a food diary along with writing down symptoms for the day, really helped me figure what else was going on. I was able to see that the mornings I was eating a gluten free waffle with peanut butter and blueberry preserves was giving me a D day. Also at Thanksgiving I had a severe reaction. Everything was gluten free but I had sweet potato casserole, small piece of pumpkin pie and a small piece of pecan pie plus a gluten free chocolate chip cookie. Around 3 in the morning I had severe D, hot and cold flashes, my ears were ringing and was dizzy. I have medical people in the family and they suggested that I had a high fructose intake (especially since I put corn syrup in the pecan and sweet potato casserole). So I did a ton of research and now watch my fructose and know what I can have and not have based on my food journal. Hope you find your answer I know how tough it can be trying to be your own detective.

yes, it is...i am keeping a food diary but i cannot figure out what, if anything is affecting me...my dr. says not to bother, not sure why, but it makes me feel better doing it for some reason. i also would have no idea how long it would take for something to affect me once i ate it?? 1 day, 2 days, etc.??? that's what is bothersome!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katie B Apprentice

yes, it is...i am keeping a food diary but i cannot figure out what, if anything is affecting me...my dr. says not to bother, not sure why, but it makes me feel better doing it for some reason. i also would have no idea how long it would take for something to affect me once i ate it?? 1 day, 2 days, etc.??? that's what is bothersome!

I've just started the low FODMAP diet which eliminates or limits foods that ferment in the stomach due to an excess in bacteria and the gut's inability to absorb certain foods. It's being pioneered in Australia and Monash University is studying various foods. My Gastroenterologist recommended it and it's proven to help so far. You can have certain amounts of starchs, veggies, fruits and dairy at one time - this way the gut has time to process everything and doesn't leave a lot for the bacteria to snack on. The diet eliminates certain types of fruits which have higher fructose than glucose such as watermelon and juice if you have fructose intolerance. I think I'm intolerant to some fruits and am starting from square one. I'm not eating any fruits at the moment but am looking forward to reintroducing them. I can forward you a document from Sue Shepherd (Shepherd Works) that provides up to date info. I'm working with a dietician at Diet Solutions (they also work with Monash) and they conference via Skype. Let me know if you're interested and I can email it!

K

ksymonds84 Enthusiast

yes, it is...i am keeping a food diary but i cannot figure out what, if anything is affecting me...my dr. says not to bother, not sure why, but it makes me feel better doing it for some reason. i also would have no idea how long it would take for something to affect me once i ate it?? 1 day, 2 days, etc.??? that's what is bothersome!

It can take up to 72 hours for a food reaction to show. I know that is hard which is why with elimination diets you only eat say rice and chicken for 72 hours then add one more thing and wait 72 hours. With my journal I always wrote say a "N" for a normal day "D" for diarrhea day "L" loose and so on so I would look back over 3 days and try to figure it out. Not saying its easy but I did start to figure out a pattern with the heavier fructose days also whenever I ate salads. My body doesn't handle raw vegetables very well so I eat salads very sparingly and chew them very well.

willabec Contributor

I've just started the low FODMAP diet which eliminates or limits foods that ferment in the stomach due to an excess in bacteria and the gut's inability to absorb certain foods. It's being pioneered in Australia and Monash University is studying various foods. My Gastroenterologist recommended it and it's proven to help so far. You can have certain amounts of starchs, veggies, fruits and dairy at one time - this way the gut has time to process everything and doesn't leave a lot for the bacteria to snack on. The diet eliminates certain types of fruits which have higher fructose than glucose such as watermelon and juice if you have fructose intolerance. I think I'm intolerant to some fruits and am starting from square one. I'm not eating any fruits at the moment but am looking forward to reintroducing them. I can forward you a document from Sue Shepherd (Shepherd Works) that provides up to date info. I'm working with a dietician at Diet Solutions (they also work with Monash) and they conference via Skype. Let me know if you're interested and I can email it!

K

Thanks.....if you could email it to me that would be great! not sure how to go about giving you my email address though!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    2. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    3. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,750
    • Most Online (within 30 mins)
      7,748

    Celiac Daughter
    Newest Member
    Celiac Daughter
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.