New With Wheat Allergy

[JDB]

We're currently in a food challenge for the next 2 weeks to prove our sons delayed WHEAT reaction (he is also allergic to SOY). 2 Dr's looked at our 2 1/2 year olds skin patch test, and they both agreed he was positive for a wheat allergy (they don't see if often), but they are making us challange it> annoying!

Anyway,sadly our story is so much like other children these days:

"colickey" baby

no sleep

diahrea/ muscus

rash everyere

excema

GERD, acid reflux

underweight and falling off charts

After 2 years of medication we had enough. Our son was having side effects from them. I kept PUSHING for a real diagnosis. After 2 ped GI's we finally got a "unknown food allergy" diagnosis. Although our spunky 2 year old boy did not test positive for celiac's (boy I was convinced) FINALLY he tested postive allergic to wheat.

We've been a diary free-soy free, and lately organic family working VERY hard at this food thing. Everything made him sick. He eathier vomited our didn't eat. Nights were horendous, downright awful.

After switching to organic it was like a different child. I though that was the answer! I still like it, but his improvemnt is because I cut out flour and sugar for a time (worred about fructose intolerance as well), then we thought it was corn. Now 4 days into gluten free we hope we are on our way to healing our poor son. I HOPE

We will need help with food. Fortuntely I love to cook (maybe not this much), and can do it. Personally I am gluten free for a few weeks just on my own, AND I HAVE NEVER FELT BETTER!!!!! This is how normal people feel?? I was so tired of the bloat and gas my whole life. What a drag. I am inspired to go raw vega, but I have alittle bit much to deal with right now

I hope to share stories with you all. I hope everything is going well for you children with celiac. OH coincidentally (and rather amazing I might add) a week before we got our wheat allergy dx, I met a mom in the park with 10 children and many of hers have celiac! I had the urge to get her number, and thankfully I saved it! She's been gluten free for 8 years, and if she can do it I can I do have 3 kids 4 and under, but not 10 Sadly they almost lost their first child to malnutrition because of it. All's well that ends well

[T.H.]

good luck to you!

We had a similar improvement on going organic, too. We're gluten free as well, which showed improvement, but organic made a big different too, it's amazing, isn't it?

Oh, and you might want to check out the most recent research into gluten free grains - they were saying that any non-gluten grains and flours can automatically label themselves as 'gluten free' in the States, but that a recent study was finding high levels of gluten/wheat contamination of these grains and flours. If your little one is very sensitive, I figure that could be a problem!

My kids keep having these reactions periodically that I can't figure out, and after hearing that, I'm wondering if some of our gluten-free flours are not so gluten-free. I'm ordering some of the home tests for gluten to start testing for these - very frustrating.

But I hope this goes well for you and you find the answers you've been looking for to help your little ones stay healthy!

[JDB]

hmmmm, organic helping...why do you think that was?

tonight our son is very gassy (TMI< but not in this world!)

the gluten free stuff is often not organic, so that is frustrating, very.

[Juliebove]

Welcome to the forum! My daughter is allergic to wheat as well as some other things. Sometimes I will cook extra of something to eat later. I don't do this often as we don't really like leftovers but she takes a lot of dance. Right now she is in summer dance camps as well as classes...sometimes for as many as 8 hours a day. So I have to have something to make for her dinner.

The other night I did chicken teriyaki. She prefers the legs but I did a few breasts as well because they are not as messy to eat at the dance studio. I used a soy free soy sauce that is coconut based to make the teriyaki sauce. I also cooked up extra rice and put it in an individual container for her. The rest is in the freezer for meals on other nights.

I also made several individual meat and vegetable loaves and they are in the freezer as well.

I like to do potatoes in the crockpot. I have a very large one so I can make a lot. Pricked and wrapped in foil, they make good baked potatoes. Cook for about 8 hours. We like them stuffed with nutritional yeast, green onions, olive oil and rice milk...sort of mashed then stuffed back in the shells and put in the oven until heated through. Or I will cut them in chunks and add some onion chunks for flavor. Also salt and pepper and maybe some parsley and a small amount of olive oil. This will make enough for two meals to eat with meat of some kind and there will usually be a little bit left to add to make a quick vegetable soup.

We are lucky in that there is a health food store near where we live. The owner has celiac. So while she already stocks a lot of stuff that is organic and gluten-free, she is always on the lookout for new products and will also place special orders for us when she can.

[Skylark]

hmmmm, organic helping...why do you think that was?

tonight our son is very gassy (TMI< but not in this world!)

the gluten free stuff is often not organic, so that is frustrating, very.

In the US, organic food is supposed to be non-GMO. There are quite a few studies showing that some of the genetically modified grains are more allergenic than natural ones. I don't know if that's the issue but it comes to mind.

[macocha]

My friend is trying a new recipe where you use circle cutters and make hot pocket type treats... will post it once she tries the recipe to see how it goes. I am anxious to try these.

my son is allergic to wheat as well as being celiac.