Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thank You

notme

By notme
in Coping with Celiac Disease

Recommended Posts

notme Experienced
notme
Posted

thank you all so much - i am trying to do the glucose free thing - 2nd day - my guts feel muuchh better and i am not throwing up :) but i am so completely angry/depressed/sore! all my muscles feel like i have the flu but i had never heard of any of this withdrawal stuff before. thank God i don't have to kill everyone and this should pass???? thanx! arlene :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome! I am assuming your meant "gluten" free diet.

Keep hydrated, that will help. Hope you feel better and there is lots to learn here. :)

kareng Grand Master
kareng
Posted

Get some Dove dark chocolate or some other kind. It makes you feel better and you deserve it! ;)

notme Experienced
notme
Posted
  • Author

Welcome! I am assuming your meant "gluten" free diet.

Keep hydrated, that will help. Hope you feel better and there is lots to learn here. :)

omgosh - sorry (i have a type 1 diabetic son - "glucose" just rolls off the keyboard) yes, gluten-free. i had no idea that i would have any kind of emo/bio reaction! my husband googlied y'all and watched me cry when i read that i am not alone

notme Experienced
notme
Posted
  • Author

Get some Dove dark chocolate or some other kind. It makes you feel better and you deserve it! ;)

is that safe? i am freaking over everything that contains gluten. uhhh... soy sauce??? whaaaaat?

Takala Enthusiast
Takala
Posted

You just have to train yourself to read labels, like a reflexive reaction, before you eat anything.

This is an auto immune disease reaction which interferes with how you absorb nutrients, hence, the very real physical reaction in turn effects how efficiently your brain is working- or is sort of sputtering and short circuiting. Taking gluten free vitamin and mineral supplements helps to overcome this. Some brands of vitamins will say "gluten free" right on the label. B complex vitamins really help. Calcium and magnesium also help reduce sugar cravings.

You may need to change your diet to eat more fresh vegetables and good fats. Olive oil is your friend, so is coconut oil or coconut milk if you are also having problems with dairy. Sometimes people find out that they are rather carbohydrate intolerant overall if they just try to substitute gluten free baked goods for regular baked products. Other people discover they also don't do well with certain common ingredients in gluten free baking, so they have to learn to bake their own customized versions if they want something fresh and not resembling a cardboard styrofoam brick. If you bake, use new bakeware pans so you don't get cross contaminated. You also will need your own dedicated toaster. If cooking rice pasta, your own colander. Some families go gluten free at home to make things simpler.

Some brands of chocolate are safe at this time, but always read the labels to be sure.

A short cut is to google:

_______

gluten free dove chocolate

_______

and see what comes up. You can do this with any sort of food. There is also a search function here on this site. Check the date on the information, as sometimes an old story comes up and it turns out this was from years ago and the manufacturer may have changed the formula so it is not gluten free anymore.

Regular soy sauce usually contains wheat. There is a brand of very good soy sauce called "San J" which is wheat free soy sauce and so far, is okay.

notme Experienced
notme
Posted
  • Author

thank you all very much :) the first morning in years i didn't spend making 300 trips to the bathroom!! sorry if that is tmi, but i am celebrating :D maybe i will gain weight! good point about brain function - this diet change affects every function of my body. i have to remember that. i am a breadaholic but i have always cooked and eaten minimally processed foods so that won't be that much of a stretch - label reading on everything else! making roasted tomato-garlic soup to can today: it will only include whatever i put into it. wow.

i should have done this two months ago when the doc advised instead of being in denial... ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

The important thing is your doing it now. I am glad you are having a good response. We do sometimes have ups and downs at first but we are all here to help in any way we can.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,853
    • Most Online (within 30 mins)
      7,748
    Procurement
    Newest Member
    Procurement
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.