Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Retesting Once On gluten-free Diet

Ladycates

Recommended Posts

Ladycates Apprentice
Ladycates
Posted

Hi! My son's GI ( a new one) wants to test for Celiac again since he was never tested besides during his colonoscopy ... but tests were inconclusive. He does test + genetically (my husband has it) BUT he also has Crohn's disease. So, Dr. really wants to make a definitive testing during his next scope in October. He wants me to give my son (6) gluten for the next 2 months and then he will take another biopsy. Is 2 months long enough to get any results blood wise and scope wise? He said that if he does start to show symptoms, he'll scope him immediately, so we can put him back on diet. He's actually a REALLY good Dr and he's spent sooooo much time with us and REALLY wants to give us 100% answers so we can move on.

So.... 2 months .... long enough?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It should be but keep in mind that he can still have a false negative. If he needs to be on the diet I don't think he will last that long though and if he doesn't it is very likely the results would be negative. How he feels and acts when you add gluten back in is IMHO a much better indication of whether he should be gluten free than the tests.

Ladycates Apprentice
Ladycates
Posted
  • Author

It should be but keep in mind that he can still have a false negative. If he needs to be on the diet I don't think he will last that long though and if he doesn't it is very likely the results would be negative. How he feels and acts when you add gluten back in is IMHO a much better indication of whether he should be gluten free than the tests.

I totally agree with you. We plan on staying gluten free regardless of what the rest says. It's more to see if he will test + for it. If he does, then that will give us a different perspective on whether or not he has the Crohn's too (which is rare to have both ... 1 in 150,000) ... not sure if any of this makes sense. I was just curious if 2 months would be long enough to show up in the intestines ... I know it may not take that long .... ;)

Ladycates Apprentice
Ladycates
Posted
  • Author

Well, I guess we won't make it the 2 months. 2 hours after he ate his first meal of gluten, he was throwing up. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Nateral remedies

      Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any...
    2. Known1
      - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      13

      Diagnosed Marsh stage 3C in January 2026

      Pardon me, I stand corrected. I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4: 2.91 mIU/L (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed.
    3. Known1
      - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      31

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
    4. Jmartes71
      - Jmartes71 replied to Kayla S's topic in Dermatitis Herpetiformis
      3

      Need advice for some relief!

      Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
    5. trents
      - trents replied to MoniqueCham's topic in Related Issues & Disorders
      1

      Celiac Disease, Lymphocytic colitis and Bowel rupture

      Welcome to the celiac.com community @MoniqueCham! Celiac disease damages the villous lining of the small bowel but, as far as I know, doesn't affect the underlying smooth muscle tissue of the bowel.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,530
    • Most Online (within 30 mins)
      7,748
    jake8
    Newest Member
    jake8
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any connection though haven't been religious on my vitamins these last several months because of testing ect.Sibo medications im allergic,the last few prescribed. Gi  dr dropped me but took me back.Im frustrated too but its the autoimmune part .
    • Known1
      Diagnosed Marsh stage 3C in January 2026

      By Known1 · Posted

      Pardon me, I stand corrected.  I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4:  2.91 mIU/L  (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed.
    • Known1
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Known1 · Posted

      I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
    • Jmartes71
      Need advice for some relief!

      By Jmartes71 · Posted

      Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
    • trents
      Celiac Disease, Lymphocytic colitis and Bowel rupture

      By trents · Posted

      Welcome to the celiac.com community @MoniqueCham! Celiac disease damages the villous lining of the small bowel but, as far as I know, doesn't affect the underlying smooth muscle tissue of the bowel.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.