Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Uh Oh! Dairy Intolerance?

lischro

By lischro
in Coping with Celiac Disease

Recommended Posts

lischro Apprentice
lischro
Posted

From reading many posts on this site I have become a little more educated on the possibilities of gluten and dairy intolerance.

I never, ever thought I was dairy intolerant, but just ate ice cream (gluten free) and about 20 minutes later had "D" (which could finally be my miralax working...) but also got a horrible sore throat.

I've suffered from chronic constipation for about 3 years and have read on here that many of you who have also had constipation say that it can be due to dairy....

Also, I've been gluten free for 4 weeks....

So what are the other symptoms? Anyone think this sore throat has anything to do with it?

Oh- and are they the same thing?? lactose/dairy intolerance? (Sorry if that's a dumb question!!)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

There are two things you can react to in dairy, lactose and the milk proteins. Lactose intolerance gives you the D because undigested lactose passes through your intestine carrying lots of water with it. If you have bacteria that digest the lactose you'll also get bloated and gassy.

The protein reaction is allergy or intolerance, and allergies can cause sore throats. Also fast D is sometimes allergic. In gluten-sensitive folks the problem tends to be cross-reaction to casein, the major milk protein. It's also possible to be allergic to whey.

precious831 Contributor
precious831
Posted

From reading many posts on this site I have become a little more educated on the possibilities of gluten and dairy intolerance.

I never, ever thought I was dairy intolerant, but just ate ice cream (gluten free) and about 20 minutes later had "D" (which could finally be my miralax working...) but also got a horrible sore throat.

I've suffered from chronic constipation for about 3 years and have read on here that many of you who have also had constipation say that it can be due to dairy....

Also, I've been gluten free for 4 weeks....

So what are the other symptoms? Anyone think this sore throat has anything to do with it?

Oh- and are they the same thing?? lactose/dairy intolerance? (Sorry if that's a dumb question!!)

I don't know if you saw my post about dairy but I am beginning to think I'm allergic and not intolerant. I've tried lactose-free and I have the same symptoms, I think I'm reacting to casein and whey. Over a week ago I ate some goat cheese and had severe diarrhea with lots of blood and clots. I still feel sick nearly 10 days later. Severe heartburn, sore throats, coughing, etc. Just crappy feeling, stomachaches.

I hope you figure it out. No more dairy for me. It's been months since I had a sliver to try and I wanted to see if I've gotten better but nope.

Goodluck.

julandjo Explorer
julandjo
Posted

The protein reaction is allergy or intolerance,

Question: I read here that a lot of people are able to have some or all dairy back after a period of healing on the diet. Does this go only for those with lactose intolerance? Or is it possible, even with a verrry sensitive casein intolerance? I know mine is casein because I had a horrible reaction to a capsule prescribed to me by my doctor. The only questionable ingredient was indeed casein. :angry: So, any insight as to whether I should hold out hope of ever getting my beloved dairy back? ;) FWIW, my skin allergy test for dairy was negative.

vbecton Explorer
vbecton
Posted

Question: I read here that a lot of people are able to have some or all dairy back after a period of healing on the diet. Does this go only for those with lactose intolerance? Or is it possible, even with a verrry sensitive casein intolerance? I know mine is casein because I had a horrible reaction to a capsule prescribed to me by my doctor. The only questionable ingredient was indeed casein. :angry: So, any insight as to whether I should hold out hope of ever getting my beloved dairy back? ;) FWIW, my skin allergy test for dairy was negative.

I was wondering the same thing. I can't tolerate whey at all. Not even whey isolate. Which is sad because because the better protein shakes have whey in them.

I was thinking some Celiacs can bring dairy back once their intestines heal because the villi would be functioning properly to release lactase? But, that wouldn't help any of use who can't tolerate whey or casein. *tears*

Skylark Collaborator
Skylark
Posted

I was wondering the same thing. I can't tolerate whey at all. Not even whey isolate. Which is sad because because the better protein shakes have whey in them.

I was thinking some Celiacs can bring dairy back once their intestines heal because the villi would be functioning properly to release lactase? But, that wouldn't help any of use who can't tolerate whey or casein. *tears*

There is hope. I returned to eating dairy after my intestine healed and I was sensitive to all dairy, not just lactose. Casein can cross-react with the gliadin antibodies. There is also an idea of "leaky gut" where the damaged intestinal epithelium lets fragments of proteins into the bloodstream where you can react to them. It's not well substantiated but it would explain why I went from being soy, dairy, and shellfish intolerant to being able to eat anything but gluten in about none months of healing.

julandjo Explorer
julandjo
Posted

There is hope. I returned to eating dairy after my intestine healed and I was sensitive to all dairy, not just lactose. Casein can cross-react with the gliadin antibodies. There is also an idea of "leaky gut" where the damaged intestinal epithelium lets fragments of proteins into the bloodstream where you can react to them. It's not well substantiated but it would explain why I went from being soy, dairy, and shellfish intolerant to being able to eat anything but gluten in about none months of healing.

Skylark I'm sending you a great big 'ol hug. THANK YOU. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,602
    • Most Online (within 30 mins)
      7,748
    Victor bowden
    Newest Member
    Victor bowden
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.