Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten/body Aches...

tweeks2010

By tweeks2010
in Coping with Celiac Disease

Recommended Posts

tweeks2010 Apprentice
tweeks2010
Posted

Hey, I am currently working at a grocery store with some bakery shifts. Just wondering if anybody else gets body aches when they are around gluten. Almost everytime I am working in there...I am constantly aching all over.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Gluten will flare both my fibro and my arthritis. When you are in the bakery you are breathing it in and it is getting into your system that way. Can you get shifts somewhere other than the bakery? Celiac is covered under the ADA so if you are diagnosed you do have the right to request that you not be ordered to work in the bakery. I wouldn't make a stink about it but just tell the managers about the problem and see if they will find a way you can work those shifts in a different dept. Hopefully they will be understanding.

brendab Contributor
brendab
Posted

Wow, I never thought about that before!

What you describe is what I get when I am PG and it's horribly painful, like somebody put a blanket of pain over me and it washes in waves. Is this what you are describing? It makes me wonder if my gluten intolerance gave me worse symptoms while PG? I think I ought to make a new thread LOL I don't want to hijack yours :)

tweeks2010 Apprentice
tweeks2010
Posted
  • Author

Yea the aches just kinda come and go in waves...all over the body...all day long. I have been doing alot of bakery shifts though. I can ask my boss to not put me in the bakery...i know he will be understanding of that...but I don't have a positive biopsy or blood test...just based on my symptoms and my reaction to going gluten free, the docs says i am celiac. The only way for me to get a positive test is to get sick again...and there is no way in hell will i do that again. I got glutened about a week or so ago...from a little bit off of a water bottle..I was sick for 4 days with stomach cramps. Not fun.

Anyways, they doctor said I had fibro before I had even come to celiac..so I never thought about the fibro as a seperate thing from celiac...i guess they would come hand in hand though right.

I am in a situation where I am waiting for my mortgage approval...then I can tell the boss now more bakery shifts. It kind of sucks though...I like making the cakes and stuff...and They love me in there too.. I am one of the best workers. I guess it's a small price to pay to be healthy.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yea the aches just kinda come and go in waves...all over the body...all day long. I have been doing alot of bakery shifts though. I can ask my boss to not put me in the bakery...i know he will be understanding of that...but I don't have a positive biopsy or blood test...just based on my symptoms and my reaction to going gluten free, the docs says i am celiac. The only way for me to get a positive test is to get sick again...and there is no way in hell will i do that again. I got glutened about a week or so ago...from a little bit off of a water bottle..I was sick for 4 days with stomach cramps. Not fun.

Anyways, they doctor said I had fibro before I had even come to celiac..so I never thought about the fibro as a seperate thing from celiac...i guess they would come hand in hand though right.

I am in a situation where I am waiting for my mortgage approval...then I can tell the boss now more bakery shifts. It kind of sucks though...I like making the cakes and stuff...and They love me in there too.. I am one of the best workers. I guess it's a small price to pay to be healthy.

If your doc says your celiac you have a diagnosis. I was really surprised when my fibro and so many other things went away after I had been gluten free for a few months. I never thought everything was connected to the extent that it was. I hope your pain goes away for good also.

Aphreal Contributor
Aphreal
Posted

My hip joint aches and lower back aches were the first to go when I went gluten-free. I also have shoulder arthritis and I haven't had any pain from that either. Thank GOD! The hip thing was about to do me in! I would try to move. Who wants to be achy all day?

Tiff

tweeks2010 Apprentice
tweeks2010
Posted
  • Author

My hip joint aches and lower back aches were the first to go when I went gluten-free. I also have shoulder arthritis and I haven't had any pain from that either. Thank GOD! The hip thing was about to do me in! I would try to move. Who wants to be achy all day?

Tiff

I just had to say that we have the same name...LOL..my hip does the same thing too. Now that I think of it...I went gluten free...then started working in a bakery then all of my joints go out all the time and are aching...neck is ALWAYS tight...ect. It has actually been getting worse in the last few weeks. Hmm...lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


precious831 Contributor
precious831
Posted

Hey, I am currently working at a grocery store with some bakery shifts. Just wondering if anybody else gets body aches when they are around gluten. Almost everytime I am working in there...I am constantly aching all over.

I have fibromyalgia and also arthritis and it flares up when I'm glutened(among other things. When I feel glutened I feel like a truck just run me over, almost like I have the flu. Achy joints, back pain,neck pain, just pain all over. My joints also swell.

I hope you can find some relief.

precious831 Contributor
precious831
Posted

Btw I forgot to say, my GI doctor said that fibromyalgia, interstitial cystitis(this is not UTI) and celiac usually go together. I have all three unfortunately. They flare up when I get glutened.

SueQueBlue Newbie
SueQueBlue
Posted

I have all 3 as well. I also was dx'd with Irritable Bowel, but I am hoping that is really just Celiac, and the IBS goes away. Actually I would like all of it to go away, and for the Celiac to be tamed, but I'm a newbie, so I don't know what will happen as time goes by.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.