Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

'Oops, we made an error,' patient told after given gluten-laced meal - Ottawa Citizen


Scott Adams

Recommended Posts

Scott Adams Grand Master

Open Original Shared Link

Ottawa Citizen

Don MacMillan, a patient at The Ottawa Hospital who is recovering from having a tumour removed from his small intestine, has celiac disease, ...

Open Original Shared Link

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

This is my nightmare... that I'll be in the hospital and not "with it" enough to make sure I'm being served food that's completely gluten free.

Or worse... old and living in a nursing home and served a gluten-laced meal and the staff getting MAD at me for having continued uncontrollable diarrhea!!

I can only hope that gluten free eating will become more commonplace... but then we're STILL at the mercy of the kitchen staff.

AARRGGHHHHHHHH!!!!!

Maybe wearing a Medic-Alert bracelet is a good idea??

kareng Grand Master

It's not just gluten-free food hospitals have a hard time with. My 82 yr old mom had a hip replacement. Her blood sugar was going nuts - up & down. They started giving her insulin which she doesn't take at home. They let her order anything she wanted except dessert. This is what they thought was safe - hamburger with bun, baked potato, applesauce, milk. Seems a bit heavy on the carbs to me for someone with blood sugar issues. I asked the nurse about this and she shook her head and said, "it's fine. We will give her insulin when she needs it!"

I'm not sure a med alert bracelet would help. They aren't going to put food down your mouth if you aren't awake. Maybe with dementia or heavy narcotics you might not be able to speak. However, I think I'll have a little talk with Hub and the boys about making sure everyone they see at the hospital knows I need gluten-free. My boys are teens and the older one would certainly be listened to as an adult.

mushroom Proficient

Don't get me started on hospital food service! A gluten-free breakfast of scrambled egg with two pieces of french toast on top :lol: What they called cranberry juice, whose #2 ingredient after water was high frructose corn syrup :o They wouldn't give me the sherbet because it contained whey :blink: When I asked for pepper they gave me Mrs. Dash; when I asked for butter they gave me soy spread which they knew I could not eat. Thank goodness I was compus mentis and had my husband standing by and we were 2 miles from Whole Foods :D

chasbari Apprentice

I think they miss some very key points in the telling of this. Yes, the big D but.. is he having a tumor removed as a result of a lifetime of celiac disease? If so, the very food that causes the potential problem is much more than a trigger for D. How about the fact that it would put him into a cycle of autoimmune response that might take weeks or months to recover from on top of recuperation from surgery. And it might put him at risk for the development of more tumors over time. Merely stating the D issue trivializes it in the minds of many uninitiated readers who might read this as whining. We see the D as a red flag for all the above mentioned problems.. we understand what it means.. but, the general populace does not.. and may be prone to laugh it off. I think we need to fight for a redefining of public perception of the seriousness of celiac and we need to see it through the eyes of the cynical public to make sure we educate... All, of course, IMHO.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to CeliacPI's topic in Related Issues & Disorders
      5

      Lymphocytic Colitis with Celiac

    2. - Mrs Wolfe posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Cartilage and rib pain.

    3. - CeliacPI replied to CeliacPI's topic in Related Issues & Disorders
      5

      Lymphocytic Colitis with Celiac

    4. - CeliacPI replied to CeliacPI's topic in Related Issues & Disorders
      5

      Lymphocytic Colitis with Celiac

    5. - Scott Adams replied to CeliacPI's topic in Related Issues & Disorders
      5

      Lymphocytic Colitis with Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,359
    • Most Online (within 30 mins)
      7,748

    Edward john maher
    Newest Member
    Edward john maher
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The topic has come up in the forum a lot: https://www.celiac.com/search/?q=lymphocytic colitis&quick=1&type=forums_topic and here are discussions with "colitis": https://www.celiac.com/search/?&q=colitis&type=forums_topic&quick=1&search_and_or=and&sortby=relevancy
    • Mrs Wolfe
      I’m in a flare up with rib pain. I read where others have experienced this after exposure to gluten.  Has anyone found something that eases the pain.   
    • CeliacPI
      Scott Adams/Trents - Thanks!  I will definitely do some more research.  I welcome any and all advice.  
    • CeliacPI
      Yes, I've read that online but I was just surprised that no one has mentioned it on this forum specifically.  We have not had our follow up meeting with the Dr where I'm sure she will advise as to how he needs to deal with this ailment.  I have learned from past health issues - if you want to find the REAL truth - talk to someone living with the disease.  THEY will know way more than any doctor ever could.    Thanks for responding. 
    • Scott Adams
      While lymphocytic colitis (LC) isn’t as frequently discussed as other celiac-related conditions, research does show a connection between the two, likely due to shared autoimmune mechanisms. Some people with celiac do develop microscopic colitis (including lymphocytic or collagenous types), so your husband isn’t alone in this. The finding of dysplasia adds another layer of complexity, but the good news is that chromoendoscopy is a highly effective tool for detecting and monitoring precancerous changes—early intervention makes a big difference. Since his celiac went undiagnosed for so long, it’s possible the prolonged inflammation contributed to these issues, which is why strict gluten-free adherence and follow-up care are crucial now. For managing LC, some find relief with anti-inflammatory medications (like budesonide) or dietary adjustments (low-fat, low-fiber, or dairy-free trials), but his gastroenterologist can tailor a plan. You might also seek out online support groups for microscopic colitis—they often share practical tips. 
×
×
  • Create New...