Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Howdy From New Hampshire


RozzyRay

Recommended Posts

RozzyRay Newbie

Heh... well I'm new here and hoping I can meet with others knowing the same struggle I've been dealing with.

I live in the mountains, and am currently in another doctor-related struggle. Technically I was diagnosed with a blood test, and since being on a gluten-free diet for half a year (at the time), my blood results only proved that I had gotten rid of the gluten in my system. Now a new specialist for some reason is doing genetic testing and well, I haven't even gotten the results back yet.

But I don't think it would matter. Considering I've had cross contamination on multiple accounts... this just proves I do have it. But the struggle lies to be dealt with.

Along with Celiac, I have a horrible anxiety problem. Panic attacks at any little thing and for what reason, I'll never know. And with times being hard enough, I cannot work. I do still live with my parents, although I am 20 years old now. And they've been my biggest support through everything.

I was hoping by perhaps making some penpals here, perhaps it can help me feel more comfortable with Celiac Disease. I'd love to hear about others stories and how they cope/coped with it and so on.

So please feel free to message me. : )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome RR!

This is a great place for information or just meeting other people who walk in your shoes. ;)

kareng Grand Master

Hi RozzyRay ( cool name). I'm happy to hear that your parents are supportive. When I first went gluten-free I had a lot of anxiety attacks, not full panic attacks, in regards to food. I would say to not put yourself in scary situations like dinner at someone's house, until you really have a plan and will stick with it -Like bring your own food and not give in. Feel free to vent or ask questions here.

Last advice that helped me when I was feeling bad : find something happy everyday and get out of the house. It might be as simple as watching the birds in the yard or throwing a ball for the dog.

Dixiebell Contributor

B-complex (gluten free of course) and fish oil has helped me the most. I forgot to take them a couple of days ago and I could tell a big difference in how I felt. I was on anti-depressants on and off for years.

  • 4 weeks later...
Kayba Newbie

Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board

Lisa Mentor

Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board

Hi Kayba and Welcome!

Here are some New Hampshire Support contacts:

Open Original Shared Link

This is also a great place to learn, find suppoert or just share your experience. I have made some great, lifelong friends.

ravenwoodglass Mentor

Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board

Hi and welcome to the board. As you will see on this board there are many of us that went a very long time from becoming celiac to finally getting diagnosed. For some the anxiety issues resolve a bit gluten free so hopefully that will happen with you. Do feel free to ask any questions you need to and this is a great place for support.

I am thinking about moving to NH, my DD and DS are in Boston and I want to get a bit closer and get away from the highest taxes in the US. How easy is it for you to find gluten-free food where you are? Do you know if there are by any chance any Wegmans stores in NH? I hate to lose the convience of being able to just grab a item and look for the G.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kayba Newbie

Hi and welcome to the board. As you will see on this board there are many of us that went a very long time from becoming celiac to finally getting diagnosed. For some the anxiety issues resolve a bit gluten free so hopefully that will happen with you. Do feel free to ask any questions you need to and this is a great place for support.

I am thinking about moving to NH, my DD and DS are in Boston and I want to get a bit closer and get away from the highest taxes in the US. How easy is it for you to find gluten-free food where you are? Do you know if there are by any chance any Wegmans stores in NH? I hate to lose the convience of being able to just grab a item and look for the G.

Never heard of wegmans but it's getting easier to find gluten-free food around here- all the grocery stores have a section or have gluten-free foods labled through the store- the selection isn't top notch. There is an all gluten-free store in Hillsborogh- about an hour from me- new stuff seems to be appearing around the Keene area where I am. I'll fill you in more if you PM me.

Thanks for the hope on the anxiety issues- both my anxiety and depression have improved dramatically since the diet change- both came flooding back at once full force after the gluten incident last week but are lessening again. It will take a little time to undo 20 years worth of learned reactions and behaviors but as I said above- things are looking up and it's only been 7 months!

Feel free to grill me for info on moving to the area- I'll do what I can to help

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.