Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lectin Intolerance


Wolicki

Recommended Posts

Wolicki Enthusiast

For those of you who are Lectin intolerant, I would be very curious to know what specific symptoms you had, and how eliminating lectins has made a difference for you.

I've read lots of articles, so I am not really looking for links, but rather anecdotal stories from those who have experienced it. I am particularly interested in if eliminating lectins helped any of you to finally lose some weight. TIA

Janie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daniknik Apprentice

For those of you who are Lectin intolerant, I would be very curious to know what specific symptoms you had, and how eliminating lectins has made a difference for you.

I've read lots of articles, so I am not really looking for links, but rather anecdotal stories from those who have experienced it. I am particularly interested in if eliminating lectins helped any of you to finally lose some weight. TIA

Janie

I don't know if I can truly say that I have a specific lectin intolerance...but the foods that I have the greatest reaction to are all high in lectins. When I read the krispin report Open Original Shared Link he mentions the following: grains-especially wheat and wheat germ, but also quinoa, rice, buckwheat, oats, rys, barley, millet, and corn; legumes--all dried beans including soy and peanuts; dairy; and nightshade vegetables--including potato, tomato, eggplant, and peppers as being the most "toxic" lectin food groups.

My specific symptoms before going off of gluten, milk, eggs, soy, nightshades, legumes, and yeast were as follows: GERD, IBS, depression, night sweats, irregular periods (too frequent), leg and foot cramping, body pain, headaches, anxiety, diarrhea, gas, hypoglycemia, and low energy. Now, having been off of these foods for 10 months I can say that I have seen a resolution in the great majority of these symptoms. I have been able to get off of 6 daily medications...my doctor says my depression and IBS are "in remission" (how nice) and I am no longer suffering from the night sweats, body pain, headaches, diarrhea, or gas. I have still had some issues with anxiety (it's hard to be on this damn diet!) and occasional heartburn but I can honestly say that I feel SO MUCH BETTER! In fact, I've had family, friends, and co-workers all comment on how good I look now, and this includes people who didn't know that I changed anything in my diet.

For me weight loss wasn't a problem (I've always been on the thin side) but I have been able to stabilize my weight and found that I am no longer quite as hungry all of time time. I also do better if I stay away from too much sugar as that will cause me to become light-headed and woozy if I don't balance it out with some protein.

Hope this helps. Hang in there! It's totally worth all the hard work!

Wolicki Enthusiast

Thanks, Daniknik! Anyone else?

  • 1 year later...
koz158 Apprentice

Thank you for sharing. I am looking into lectins as an issue my fiancee may have in addition to her gluten intolerance. Have you heard of or used any to the techniques or products by Dr. D'Adamo (www.4yourtype.com)? I'm looking at a couple of different products but I was hoping somebody could speek to their effectiveness before I purchased them.

mushroom Proficient

I missed this thread (on a subject I have pursued endlessly) when it cycled through last year. I am a great believer in the lectin intolerance theory and everything I am intolerant of is high in lectins.

For me, lectins cause what a former member of this forum called a "cytokine storm" which causes terrible bloating and gas, putting extreme pressure on my heart and lungs. It used to cause me to faint (vaso-vagal syncope) and then it set off atrial fibrillation (again coming from the vagus nerve) from which I still suffer (now, sometimes, indepently of lectins). My lectin foods are corn, soy, legumes, citrus, nightshades (in addition there are lectins in gluten). Fortunately the dairy lectins don't bother me at all. If you have not read the Krispin Report mentioned, do so. You can regain the ability to eat some lectin foods. I can now tolerate some potato starch in breads, and also corn starch, but haven't pushed the boundaries too much yet.

I have also tried the product Lectin Lock which can be ordered online and found it to be effective. I take it with me when I eat out in case I get some accidental lectin exposure, and I find that it prevents the cytokine storm by giving them ( in my gut) the sugars they are seeking when they go storming through my body :lol: .

koz158 Apprentice

Thanks for the feedback. I will take a look at the article mentioned.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.