Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Your Child Had A Colonoscopy?


Gardening

Recommended Posts

Gardening Apprentice

I'm really nervous - the GI wants to rule out IBD/Crohn's and seems pretty confident that my daughter has celiac.

She has to be on a liquid diet for two days w/Miralax in preparation for surgery. She is only 2.5 and I don't know how to explain why she can't eat for two days. :( I'd do it with her in solidarity, but I don't want to be physically weak for her surgery.

Any tips? How long should the procedure last? I know I need to make a list of my questions and call a nurse...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MacieMay Explorer

My 17 mos old had the scope last Tuesday, endo and colon. She did really great with the prep, and it was tough! I just offered lots of different varieties of juice (watered down of course)and kept her busy. We went to a local amusement park to keep her mind off of food and I didn't let her sisters eat in front of her.

The surgeon came out right away and told us what he saw, biopsy results took almost a week.

I hope this helps. Good luck!

Gardening Apprentice

My 17 mos old had the scope last Tuesday, endo and colon. She did really great with the prep, and it was tough! I just offered lots of different varieties of juice (watered down of course)and kept her busy. We went to a local amusement park to keep her mind off of food and I didn't let her sisters eat in front of her.

The surgeon came out right away and told us what he saw, biopsy results took almost a week.

I hope this helps. Good luck!

Thank you! I'm glad she did so well! How did the amusement park work out with all the (I assume) diarrhea? I was planning on staying at home.

Also, how long did the actual surgery last? And what were her results?

finally diagnosed Apprentice

Thank you! I'm glad she did so well! How did the amusement park work out with all the (I assume) diarrhea? I was planning on staying at home.

Also, how long did the actual surgery last? And what were her results?

Hi Gardening. I just wanted to clarify for you that this is a procedure not a surgery, there is no incision, they refer to this as a "flip flop", she will have the endoscopy then the colonoscopy right after.. they are given light sedation "twilight" usually by an IV and they don't remember anything...I hope this helps, everyone's procedure time is usually different due to the anatomical make up of our insides.. some are an 1hr some are more.. i like to think of it as long as the doc does the job right the first time.. a surgeon once said to me when i asked how long will the procedure take (i was having my gallbladder out) and his response was "as long as it takes me to do a good job and do it right".. good luck, as for the liquid thing, you can do it with her and then eat in hiding when she can't see you to keep your energy up.. ;) I hope this helps some, no matter what procedure our children or even we have is nerve racking enough.....

MacieMay Explorer

Ohhhhh! My daughter didn't have the Miralax prep. She had to take little tummies, day 1 and day 2 and then an enema the night before and morning of. I didn't even give her the little tummies on day 1 because she had 3 hugh BM's, earlier in the day. She still wears diapers so the pooping wasn't really an issue for us. Maybe if you start the prep early enough in the day she you can get out later in the afternoon. I guess it will probably depend on how she is feeling.

The procedure took about an hour and the Dr. came right out to talk to us to let her know how she did. I was more concerned about her going under anethesia for the first time, then anything. She did fine with the procedure and the dr. told us that everything looked ok but the biopsies would reveal more. Turns out, her biopsy results came back normal too. So, we are still looking for answers.

I hope this helps and you get the answers you are looking for.

Gardening Apprentice

MacieMay - Thank you, that is very helpful! My daughter isn't potty-trained, either, but she has a terrible time with diarrhea and blistering diaper rash.

finally diagnosed - True, no incision - I guess I was thinking of the biopsy component, though. A friend's child's duedenum was perforated during the same procedure, so I have a lot of anxiety about it. :(

finally diagnosed Apprentice

MacieMay - Thank you, that is very helpful! My daughter isn't potty-trained, either, but she has a terrible time with diarrhea and blistering diaper rash.

finally diagnosed - True, no incision - I guess I was thinking of the biopsy component, though. A friend's child's duedenum was perforated during the same procedure, so I have a lot of anxiety about it. :(

i hear you about the anxiety.. yes perforation is a risk, i was trying to be helpful regarding the surg/procedure.. that is why we can't compare time frames.. you want to make sure your doc goes slow and gets it done once and right.. good luck with this.. i hope all is well..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MacieMay Explorer

My daughter had a terrible time with diaper rashes too starting shortly after her 1st birthday, after 6 weeks of treating it with desitin and nystatin, I finally linked it to whole milk. I stopped giving her the milk and the rash went away. I think she is lactose intolerant. We give her some milk products here and there, but she drinks lactaid now, her diaper area doesn't look great but nothing like the blisters and irritation before.

Ohhhh... it was horrible, the poor thing. I know how it is, I hope your little one does OK with the prep.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.