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For Those With High Ttg Or Ema And Negative Biopsy

adab8ca

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adab8ca Enthusiast
adab8ca
Posted

What did your doctor say? I have very high TTG,positive AGA and neuro problems. Biopsy next Tuesday...I hear about false negatives all the time, so do Dr's tend to believe bloodwork or biopsy more?

Just curious. Hate to say it but I hope he finds something.

ada

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oceangirl Collaborator
oceangirl
Posted

My experience, both personally and from reading this board for 5 years, is that most doctors still only use the biopsy as the "gold standard" of diagnosis. I had a high tTg (and was "gluten lite" for 4 months before biopsy) and it came back negative. Subsequently I've been to doctors who trust the tTg and symptom relief from removal of gluten. I also had positive genetic testing.

If my kids became symptomatic (they're grown) I'd have them skip the biopsy and trust the bloodwork. It's up to you but don't necessarily expect much sympathy from your doctor if your biopsy is negative.

Others will post. Good luck!

lisa

oceangirl Collaborator
oceangirl
Posted

Oh yes, and did I mention that it only took 35 years of symptoms, 5 gastroenterologists along with all of their fun exams repeated over and over over the years and getting so sick I thought I had cancer to have one think of celiac and do a celiac panel? Yeah, diagnosed at 47 after having issues since I was around 11- that was about 5ish years ago.

Remember to trust what makes your body feel good.

lisa

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