Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation...


ToriMartin

Recommended Posts

ToriMartin Apprentice

I had an xray the other day (I have a bad back, going to a specialist next week). Anyhow, the Dr said I am really constipated. I've always had probs with that but thought I was doing better on this diet. I thought on it... Maybe that's part of my weight, water retention & poor circulation? So, it's been my goal the last few days to "clean my system". It's not that easy... You know, if I eat Gluten, corn or milk products I get IBS really bad. But you lose so much water... Plus, the damage on the intestines...

I took Citrucil (double the done) with 2 stool softners. All it did was give me bad D, but more of a water loss. BTH, I drink allot of water, atleast 1 gallon per day at the least.

So, I've doubled magnesium, took my infants laxative, & some other things... Oh, eating allot of salads with primarily Romain Lettuce. But, nothing was working. So, I bought Milk of Magnesia which you are to take 2-4 tbsp. I took 4. Supposed to take 1/2 hour - 6 hours... Nothing. Took a Stool softner before bed. Nothing. But this morning I drank about 2 sips of coffee & boom. The big D, just not as bad as the other day. That seemed to help the best.

I have wondered if I am sensitive to soy... But not sure f I want to part with my creamer.... I really do enjoy me coffee.

Anyhow, what other ideas are there for Constipation? Is this normal if you are Gluten Intolerant? What about going on the diet... Shouldn't it be better?

Thanks & sorry about ll the info...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lischro Apprentice

WE ARE IN THE EXACT.SAME.BOAT!

I have had xrays, as well, only to find that the dr says "Wow you really are full of poop." then they tell me to alternate laxatives and enemas to get cleaned out. well, enemas don't even work for me all the time. probably 75% of the time they'll do a little but never a full clean out.

I've seen specialists and had tests... finally my GI said "We can't really help you."

I do the same stuff you do- milk of mag, stool softeners etc.... the only thing that helps a little (after taking 4 x the recommended dosage, every day).... is miralax.

I also thought that all of this would be "fixed" or at least lessened by going gluten free. I have been for about a month and a half and haven't noticed a difference yet.

So I don't have any answers, but can completely relate. If you haven't already tried miralax, I'd give it a shot!

bincongo Contributor

I had an xray the other day (I have a bad back, going to a specialist next week). Anyhow, the Dr said I am really constipated. I've always had probs with that but thought I was doing better on this diet. I thought on it... Maybe that's part of my weight, water retention & poor circulation? So, it's been my goal the last few days to "clean my system". It's not that easy... You know, if I eat Gluten, corn or milk products I get IBS really bad. But you lose so much water... Plus, the damage on the intestines...

I took Citrucil (double the done) with 2 stool softners. All it did was give me bad D, but more of a water loss. BTH, I drink allot of water, atleast 1 gallon per day at the least.

So, I've doubled magnesium, took my infants laxative, & some other things... Oh, eating allot of salads with primarily Romain Lettuce. But, nothing was working. So, I bought Milk of Magnesia which you are to take 2-4 tbsp. I took 4. Supposed to take 1/2 hour - 6 hours... Nothing. Took a Stool softner before bed. Nothing. But this morning I drank about 2 sips of coffee & boom. The big D, just not as bad as the other day. That seemed to help the best.

I have wondered if I am sensitive to soy... But not sure f I want to part with my creamer.... I really do enjoy me coffee.

Anyhow, what other ideas are there for Constipation? Is this normal if you are Gluten Intolerant? What about going on the diet... Shouldn't it be better?

Thanks & sorry about ll the info...

I can sympathize with you. It seems to me that most people talk about diarrhea only. I am a new celiac and I only have constipation and it has gotten worse with a gluten-free diet. I am guessing there isn't enough fiber in the diet but don't really know what I am doing wrong so I too would like a comment from other celiac's out there with the main problem being constipation. I have taken out lactose but not soy. Rice milk doesn't compare with soy. Help!

BRUMI1968 Collaborator

I feel I could have a PhD in Constipation. I have been diagnosed just over 3 years, but have had active C type celiac disease since I was like two or something. I mean I have not asked my mom about my diapers, but I remember all through childhood having INTENSE gas pains and not pooping for days and days at a time. Also, and this makes me sad just to think about since my parents didn't have enough information to understand to be worried, I kept thinking I was starting my period, even when I was really young, because I was getting fissures - that's how rock solid this poop, when it finally did come out, was. Why on earth and I putting in this preamble.

Anyway, I'm going to list the main things, most of which you've already done no doubt, but just to cover all the bases.

1. drinking a gallon of water a day might be demineralizing your system and straining your kidneys. That's a lot. There's quite a bit of new research showing the whole "drink a ton of water" idea to be a bit overblown. If you're thirsty or get a ton of activity or are hot and sweating a lot, it makes sense. It does sound that you are adding back magnesium, but it's possible you've got other mineral loss that could be causing problems.

2. Vitamin C. I've never done this, but folks say that you can up the dosage of Vt. C until you get D, then back off it. Like I said, I've never tried it.

3. Trifal. This is an Indian herb, only slightly laxative in quality, but helps regulate and heal the intestines.

4. Consider quitting dairy. This is A#1 for me - one teaspoon dairy, a week of C without fail.

5. Is the diet getting enough of the 3 requirements: bulk (fiber), grease (fats/oils), water (we know you are on this one)

6. Walking. There are also yoga exercises specifically for this.

7. Self massage of the lower back and abdomen. I've actually found if I'm sitting on the john and am having some trouble getting things started, putting both hands on my spine and pushing down and toward my hips. This can actually get me started when I'm sitting there wondering if it'll be bust again. I hate these good for nothing visits to the throne.

8. Consider a low fodmap diet. You can google this. It has to do with fermentable sugars that your body isn't tolerating. I'm having good luck (just doing for about a week now) with it lowering my bloat. I have actually been more constipated, but I think that's in part due to the fact that I lost (temporarily) some of the veggies I normally eat.

9. Magneseum. -Sounds like you've tried this one. I never have, but I hear it helps quite a bit.

10. If you eat bananas, consider dropping those for a spell and see if that's it.

11. Amaranth for breakfast. I mean hot cereal amaranth. It made me uber regular.

Well, I don't know if I got most of the ideas, but I think so. I hope you feel better. C sucks. Going poop every day rules!

Chakra2 Contributor

My mom raves about psyllium husks. She gets them in capsules at Whole Foods. They were mentioned several times in the book The Most Effective Natural Cures on Earth, I noticed recently. Good luck! My poop issues vascillated back and forth between the 2 extremes and going gluten free immediately stopped the D but I still have to pay attention to fiber and avoiding cross-contamination to stave off the C. I feel like fish oil helps too.

cap6 Enthusiast

So glad I stumbled on this as I don't feel so alone! C has been my biggest issue since I was very little. I drink water, walk daily, take fish oil and magneseum, eat dairy little to never, eat lots of fruit (could add more veggies), have never really cared for banana. Two stool softeners in the morning and two in the evening were working for awhile (6 weeks maybe) and now I am back to nothing. Three dulcolax at night will do it but I hate to get hooked on those. Grrr. I too used to always think that I was starting my period and only now know that I was C. Now that I was regular for that brief period of time i feel miserable if I miss one day. Recently i have been drinking more coffee than normal as I am so darn tired all the time (my iron is low and I am on supplements) so wonder if the coffee could be part of it.

India Contributor

Hi Bully4You, can I ask how your FODMAPs diet is going? I have similar problems to you and no improvement on this diet so far. I'm only two weeks in and I'm going to persevere but I was just wonder how you find it?

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gardening Apprentice

My older daughter has major constipation issues.

Here's what her GI (who happens to be at the Celiac Research Center in Baltimore, but my daughter does not have an official celiac dx):

1. Do a 2-day cleanse. Only clear liquids for 2 days. Strained chicken broth, vegatable broth, clear juices, popsicles, etc, and WATER. Take a double dose of Miralax at 2pm, 4pm, and 6pm on the first day. Take a double dose of Miralax in the morning, 4pm, and 6pm on the second day.

2. After that, take one dose of Miralax every day.

3. Sit on the toilet (don't strain though) after EVERY meal. This will help re-train the bowels.

Do #2 and #3 for 6-8 weeks.

We just started (did the cleanse last week) and she wants us back for a follow-up appt in 6-8 weeks.

RiceGuy Collaborator

Do consider dropping soy, and all other top allergens. That includes wheat (or course), dairy, soy, corn, nuts, peanuts, eggs, and shellfish.

Try coconut milk/cream for a creamer, but coffee may be adding to your problems. One easy way to find out - no coffee for two weeks or more. No other caffeine either. You may experience withdrawal, but it will pass.

Not all forms of magnesium are effective for C. Try magnesium oxide, and take something acidic with it. A big glass of orange juice, or vitamin C, or lemon or other citrus fruit juice. The acid will greatly magnify the effectiveness of the magnesium. Make certain to drink plenty of water, but not all at once. Like 8 ounces every 30-60 minutes, whether you feel thirsty or not. The magnesium will cause lots of water to be directed into your intestines, so you need to make sure your body has plenty to work with. Start off with 300-400mg of magnesium per day, and gradually increase every few days. Too much at once can cause quite a bit of discomfort until your bowels "catch up". Don't plan on traveling anywhere until you know how your body does with it.

Do make sure to balance your electrolytes. You may need more potassium and/or sodium. Try a sports drink - the kind that replenishes electrolytes. If it helps, then consider a potassium supplement, and maybe increase salt intake. This is even more important as you become more regular.

Back pain is often caused by C. Especially if it's lower back pain.

lischro Apprentice

GARDENING- I really hope this helps your daughter! I take miralax regularly and was wondering if this is something her GI recommended for short term and if it's supposed to completely re-train her muscles etc or is it something that is meant to be a cleanse/quick fix?

My problem is I can eventually get cleaned out by overdosing on the miralax- takes about 4 days or so...... then it all comes back. it just builds up again. it's exhausting and horribly uncomfortable. Anyway, just wanted to check and see how it's going and see if it's supposed to help long term.

Thanks!!

Gardening Apprentice

So far, she's getting backed up again. I was trying to be conservative in the doses - frankly, I skipped a couple of days after the cleanse, then chose the smaller of the recommended doses (doc said 1/2 to 1 scoop, and I've been doing 1/2, thinking she's only 35 pounds, why give her the adult dose?)

I'm going to slowly increase her dose - want things to be on an even keel before school starts next week!

cap6 Enthusiast

My first day without the coffee and I've been grumbly all day. But hopefully omitting it will help. I am also going to try the miralex. We are rving right now and won't be home till the end of Sept and have a dr appt scheduled for then...... Thanks for all the suggestions!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,258
    • Most Online (within 30 mins)
      7,748

    Tdodge
    Newest Member
    Tdodge
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.