Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease & Weight Loss


oldmann1

Recommended Posts

oldmann1 Newbie

I have apparently been suffering a very long time with this disease according the the doctor's belief or assumption. Could disease have lead to my now sudden unententional weight loss. It started this way? I had bouts of sudden weight gains and sudden weight losses all through my past life. Remember, I never found out about my celiac until the last three and half years ago. Up till that point most other doctors but civilian and Government told me to go ahead and eat whatever I like and to exercise daily for weight management. Then, 3 1/2 years ago, the current doctor told me it was Celiac Disease and I went on the Cilac Disease Diet. Even before that time, I suddenly lost all my body weight went down to 123 - 124 lb range. BMI 17.3. With no muscle tone or flesh on my body. You can see all my bones with my shirt off. The current doctor says this is a result of the Celiac, Diabetes, and Hypoglcemia left untreated for so long that caused my current conditions. Whay do you people on this board think? Has anyone else on this board had a sudden unententional weight loss even though you are eating everything the doctor recommends?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curiousgirl Contributor

I have apparently been suffering a very long time with this disease according the the doctor's belief or assumption. Could disease have lead to my now sudden unententional weight loss. It started this way? I had bouts of sudden weight gains and sudden weight losses all through my past life. Remember, I never found out about my celiac until the last three and half years ago. Up till that point most other doctors but civilian and Government told me to go ahead and eat whatever I like and to exercise daily for weight management. Then, 3 1/2 years ago, the current doctor told me it was Celiac Disease and I went on the Cilac Disease Diet. Even before that time, I suddenly lost all my body weight went down to 123 - 124 lb range. BMI 17.3. With no muscle tone or flesh on my body. You can see all my bones with my shirt off. The current doctor says this is a result of the Celiac, Diabetes, and Hypoglcemia left untreated for so long that caused my current conditions. Whay do you people on this board think? Has anyone else on this board had a sudden unententional weight loss even though you are eating everything the doctor recommends?

Yes! I was losing weight quickly and everybody said I looked great. Even though I was glad to slim down, I began to wonder why. The unquenchable thirst, and ravenous appetite was a dead give away I was diabetic! Geeezzzz! That was 26 years ago. Now a Celiac diagnosis in May 2010...I remember having slight symptoms about 2 years ago. I'm what I've heard called a "silent celiac." My symptoms are fatigue, bloating, gas, depression, anxiety, blah blah blah. No D or V thank goodness. But, as one person said, they would rather have the D and V and KNOW they've been glutened rather than the vagueness of less severe and painful symptoms. I guess this could be a case of the other man's grass is NOT always greener? Good luck to you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,571
    • Most Online (within 30 mins)
      7,748

    Ygomez
    Newest Member
    Ygomez
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.