Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will Cc Stop Me Getting Better Initially?


MarkR555

Recommended Posts

MarkR555 Rookie

Hi folks. Newly diagnosed celiac here as of last friday, although my doc told me he thought I had it about a month ago - so i've been gluten free for 2 weeks now.

I am being very strict about what I eat, but I live in a shared house with 5 other young professionals. I was wondering if cross contamination is going to stop me getting better at all in this initial phase of healing after going gluten free? I understand CC is bad and damaging and should be avoided, but i'll need to buy a bunch of new kitchen stuff and telling everyone not to use it is going to be a pain in the bum.

Specifically, I am asking if CC is going to stop me getting better at all and making any progress during these first few weeks / months? Or is CC something I have to worry about more when I become more sensitive to gluten since i've been on a gluten free diet for a while?

I do understand I need to avoid CC at all costs, i'm just wondering if a few slip ups will stop me making any progress and healing at all.

Thanks,

Mark


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aderifield Apprentice

Hi, Mark, I'm new to this, also. By no means an expert, but I can tell you this.... Depending on the severity and progression of your disease, going gluten-free even when you totally control your environment and personally handle and fix all your own food can be a very hard road and recovery can be confusing and fraught with uncertainty over whether you are advancing under the best of conditions. I would explain your predicament to everyone in the household, buy those new utensils and keep them in a baggie. Ask for their agreement that you have a cabinet and a countertop that is for your use alone. I'm sure you'll get a lot of good advice here from ppl who are much more familiar with the ins and outs of having gluten eaters in the house, but I wanted to encourage you not to take this frivolously.

Good luck to you.

Skylark Collaborator

Sorry, but there is no answer for you about CC. A lot of celiacs heal fine in shared kitchens. Problem is, some folks find that their TTG doesn't drop until they take their whole kitchen gluten-free. There's no way in advance for you to know, and symptoms don't necessarily correlate with the amount of intestinal damage.

Do your best, and see how things look on followup.

BeckyWJ Rookie

My 10 yr old kept reacting at odd times once she went gluten free. Among a few other similar things, the peanut butter was contaminated because my son would make pb sandwiches with it...putting the knife in the peanut butter more than once. She would also react to some foods that were gluten free but were "processed in a facility with gluten." Now that she's been gluten free for a year, the foods that were processed in a facility with gluten don't bother her. I know her experience goes against the flow of most people's experiences.

My thoughts are: yes, cc at the beginning can dramatically impede your recovery. It will be hard. I have 5 children, 13 and under, so I feel your pain in living with others and being gluten-free. As another poster said, having dediated things for yourself along with a dedicated place to put them is a great idea! Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,116
    • Most Online (within 30 mins)
      7,748

    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.