Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will Cc Stop Me Getting Better Initially?


MarkR555

Recommended Posts

MarkR555 Rookie

Hi folks. Newly diagnosed celiac here as of last friday, although my doc told me he thought I had it about a month ago - so i've been gluten free for 2 weeks now.

I am being very strict about what I eat, but I live in a shared house with 5 other young professionals. I was wondering if cross contamination is going to stop me getting better at all in this initial phase of healing after going gluten free? I understand CC is bad and damaging and should be avoided, but i'll need to buy a bunch of new kitchen stuff and telling everyone not to use it is going to be a pain in the bum.

Specifically, I am asking if CC is going to stop me getting better at all and making any progress during these first few weeks / months? Or is CC something I have to worry about more when I become more sensitive to gluten since i've been on a gluten free diet for a while?

I do understand I need to avoid CC at all costs, i'm just wondering if a few slip ups will stop me making any progress and healing at all.

Thanks,

Mark


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aderifield Apprentice

Hi, Mark, I'm new to this, also. By no means an expert, but I can tell you this.... Depending on the severity and progression of your disease, going gluten-free even when you totally control your environment and personally handle and fix all your own food can be a very hard road and recovery can be confusing and fraught with uncertainty over whether you are advancing under the best of conditions. I would explain your predicament to everyone in the household, buy those new utensils and keep them in a baggie. Ask for their agreement that you have a cabinet and a countertop that is for your use alone. I'm sure you'll get a lot of good advice here from ppl who are much more familiar with the ins and outs of having gluten eaters in the house, but I wanted to encourage you not to take this frivolously.

Good luck to you.

Skylark Collaborator

Sorry, but there is no answer for you about CC. A lot of celiacs heal fine in shared kitchens. Problem is, some folks find that their TTG doesn't drop until they take their whole kitchen gluten-free. There's no way in advance for you to know, and symptoms don't necessarily correlate with the amount of intestinal damage.

Do your best, and see how things look on followup.

BeckyWJ Rookie

My 10 yr old kept reacting at odd times once she went gluten free. Among a few other similar things, the peanut butter was contaminated because my son would make pb sandwiches with it...putting the knife in the peanut butter more than once. She would also react to some foods that were gluten free but were "processed in a facility with gluten." Now that she's been gluten free for a year, the foods that were processed in a facility with gluten don't bother her. I know her experience goes against the flow of most people's experiences.

My thoughts are: yes, cc at the beginning can dramatically impede your recovery. It will be hard. I have 5 children, 13 and under, so I feel your pain in living with others and being gluten-free. As another poster said, having dediated things for yourself along with a dedicated place to put them is a great idea! Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.