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Can Dh Come Later? Do You Treat It?

Libby08

By Libby08
in Dermatitis Herpetiformis

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Libby08 Newbie
Libby08
Posted

Our daughter was dxed with celiacs a few weeks ago. She has gone through periods of what I thought was diaper rash. But nothing major.

I know she got gluten yesterday (Bad mommy) and today she has a rash all over her bottom. It like tiny blister. She hasnt complained about itching though...

If it is DH does it matter...like should I call a dr?

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MacieMay Explorer
MacieMay
Posted

Our daughter was dxed with celiacs a few weeks ago. She has gone through periods of what I thought was diaper rash. But nothing major.

I know she got gluten yesterday (Bad mommy) and today she has a rash all over her bottom. It like tiny blister. She hasnt complained about itching though...

If it is DH does it matter...like should I call a dr?

I would definitely call the GI to see what they have to say.

I have the same thing going on with my 18 mos old. Her rashes are terrible and they are definitely influenced by gluten. We are struggling with a diagnosis (negative panel and negative scope). Wednesday she had skin biopsy (we had to beg the Derm to do it). It started as the diaper rashes but she now has had the blisters on the face, elbows, hands and knees (all the typical DH places) the diaper rashes come and go but the elbows, hands, and knees are now scarred and are not healing, this has been going for 6 months. If you don't mind if I ask....how old is your daughter and how did she get her diagnosis?

ravenwoodglass Mentor
ravenwoodglass
Posted

I would definitely call the GI to see what they have to say.

I have the same thing going on with my 18 mos old. Her rashes are terrible and they are definitely influenced by gluten. We are struggling with a diagnosis (negative panel and negative scope). Wednesday she had skin biopsy (we had to beg the Derm to do it). It started as the diaper rashes but she now has had the blisters on the face, elbows, hands and knees (all the typical DH places) the diaper rashes come and go but the elbows, hands, and knees are now scarred and are not healing, this has been going for 6 months. If you don't mind if I ask....how old is your daughter and how did she get her diagnosis?

Hopefully the doctor biopsied the area next to the lesions not the lesions themselves. If the doctor biopsied the lesion expect it to come back negative.

For the Original Poster:

There isn't much they can do about DH. If a person has celiac and is firmly diagnosed the best thing to do is to be strictly gluten free. There is a med called dapsone that can be given but since it does have some nasty side effects and risks I don't think they would give it to a young child.

In some cases a short term dose of prednisone may help but your doctor would be the one to ask. As a child they would only give it to me once a year. I would then have a month or so rash free but since I wasn't yet diagnosed celiac the rash would of course come right back.

Be as strict as possible with the diet and the lesions will heal in time. It can take a pretty long time for the antibodies to leave the skin layers and even a small amount of gluten will reactivate the lesions. Be patient and be strict.

Libby08 Newbie
Libby08
Posted
  • Author

I would definitely call the GI to see what they have to say.

I have the same thing going on with my 18 mos old. Her rashes are terrible and they are definitely influenced by gluten. We are struggling with a diagnosis (negative panel and negative scope). Wednesday she had skin biopsy (we had to beg the Derm to do it). It started as the diaper rashes but she now has had the blisters on the face, elbows, hands and knees (all the typical DH places) the diaper rashes come and go but the elbows, hands, and knees are now scarred and are not healing, this has been going for 6 months. If you don't mind if I ask....how old is your daughter and how did she get her diagnosis?

My daughter will be 3 in Oct. When she was about 12 months they tested her blood for all sorts of things. Celiacs came back negative. The next time they tested about a yr later, again just running a full panel, she doesnt exhibit the "classic symptoms" she was still negative but borderline. They decided to scope her not for celiacs but more looking for polyps or other issues...and her villi were blunted. So they took blood again...about a month ago and it was positive.

So I know in our case at your childs age she was negative..but is now positive. And since making her gluten free and learning more I see how she did have symptoms I just had no idea what to look for. Hugs its so hard to not have the answer for why things are wrong with your child

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