Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sister Tested For Allergies, Gluten Was One, What Does This Mean? Esp For Me With Ibs Symptoms


crampy girl

Recommended Posts

crampy girl Apprentice

Hi there, does anybody out there know anything about this: My older sister said 15 yrs ago, she got really sick couldn't eat withoug throwing up, and stomach upset (she thinks it was diarrhea but she can't remember) lost a bunch of weight and went to several doctors. One of them had her test for allergies and gluten was one of them, I believe it was one of those skin tests that the allergists do. Anyway he told her to stop eating gluten and she did, and she got better. She cheats now and then. I have suffered since I was 18 or so after I had my first "episode" of what got labeled as Irritable bowel syndrome after I ate a box of ritz crackers. Here I am 25 years later and never having figured any of this out before. My symtoms started getting worse this summer to the point that I could not plan anything or commit to anything. My life was being ruled by the "attacks" of diarrhea, painful cramps that lasted 4 hours or so. Well, when I paid attention and noticed that I was getting my cramps after I ate cereal (even with lactaid milk- yes we both are lactose intolerant since our mid 20's), I stopped eating the cereal and got a tiny bit better, but when I decided to stop all breads and wheat foods, I felt so much better. I did have one bout about a week ago, it was after I drank starbucks frappacino light, and the night before ate campbells tomatoe cream soup and I was starting the P, and didn't get much sleep the night before, so I figure it was multifactorial. Anyway, does any one know if having a gluten allergy on a skin test means the same thing as this celiac thing? Also I can't drink wheat beers, I get facial swelling.

Thanks,

crampygirl.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Celiac disease is not an allergy it is an intolerance. But that doesn't mean that folks can't have both. You really should get a celiac panel done before you go gluten free. If you suspect you also have an allergy to gluten or wheat you could also have allergy testing done but the celiac screening and the allergy tests are testing for different reactions.

captaincrab55 Collaborator

Anyway, does any one know if having a gluten allergy on a skin test means the same thing as this celiac thing? Also I can't drink wheat beers, I get facial swelling.

Thanks,

crampygirl.

Not an expert on this, but one can be skin tested for a wheat allergy, not glutten...

kareng Grand Master

To confuse things more, many doctors call Celiac an allergy. Your sisters doc could have meant Celiac. My GI called it an allergy and I have seen several times on TV amd articles docs calling it an allergy. They may do that as its easier to understand.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,823
    • Most Online (within 30 mins)
      7,748

    Kayaker
    Newest Member
    Kayaker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.