Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saw A Dietician The Other Day...

Superfudge

By Superfudge
in Coping with Celiac Disease

Recommended Posts

Superfudge Rookie
Superfudge
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarolinaKip Community Regular
CarolinaKip
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

I can relate, I have been in some type of pain everyday since Nov 09. I was dx in May wih Celiac. My dr gave me some handouts, but it was my dietitian who only does gluten-free that was my biggest help in the beginning. She was amazing! She and my dr office both suggested this forum for me. When everyone looks at me like I'm crazy and thinks I'm nuts about CC, this forum helps me know I'm not alone.

Fozzie Newbie
Fozzie
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

After being dx in Feb I askked for a referral to a dietician and received a call last week for an appointment. That was usefull :( ! I said "thank you but I already have the info That I need" thanks to this forum and some digging myself. You need to be proactive with this situation. I managed to find a cooworker who is a dietician and celiac ( I didn't know) and she gave me tips on where to shop etc.. Having acess to a search through the university library has provided a plethora of info but this site has been the most informative

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kirita
      - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, ...
    2. annamarie6655
      - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum. Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains...
    3. trents
      - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    4. Celiac and Salty
      - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously...
    5. Rogol72
      - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,236
    • Most Online (within 30 mins)
      7,748
    kssynlson37
    Newest Member
    kssynlson37
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Airborne Gluten?

      By annamarie6655 · Posted

      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      Rectal pain

      By trents · Posted

      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      Rectal pain

      By Celiac and Salty · Posted

      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.