Pelvic Floor Disorder

[Barretts mom]

My adult son went gluten free 18 months ago after 18 years of being told that he has IBS. After a long period of adjustment he is now free of GI issues and as long as he stays gluten free his bowel functions just fine. He developed severe Pelvic Floor Disorder shortly after going gluten free. (He suffered from many years of never ending bowel movements as his body was trying to rid itself of the gluten but his MD had him on Imodium so there was a lot of opposing forces working against each other for a long period of time) Physical Therapists are now telling him that he has a lot of damage from Leaky gut to pelvic floor muscles. Anyone else develop this and if so does it resolve over time with therapy?? He is just so upset that he cured one problem and got a worse one. He has significant pain, and some days must walk with a cane.

To those of you still struggling with gluten issues, I will tell you that many wonderful things have happened to him as the gluten resolved . His seasonal allergies disappeared as did sleep apnea, he regrew a head of hair, mental fog disappeared and anxieties have all but disappeared. This all took 12 to 14 months to happen. If the PFD would go away he would have a wonderful life ahead of him. Any supportive words would be appreciated.

Barretts mom

[Barretts mom]

I feel as though I should explain what his symptoms are in case not everyone went through medical tests for a diagnosis. He has a tightness and spasms of the pelvic muscles, tight muscles in his back and thighs and some difficulty starting to urinate. None of this tightness ever goes away. Sometimes when especially bad it causes him to drag his foot which is the reason for sometimes using a cane. Its not so bad he can't get around but very depressing and constantly present. For someone who was a runner and a gym rat none of that is possible now.

Barrets mom

[ravenwoodglass]

Yes therapy can be very helpful for this. I went to a PT for a few months both before and after celiac diagnosis. If fact it was the PT who was the one who encouraged me to see the doctor that finally diagnosed me celiac. I had given up by that point as the doctors kept adding on false diagnosis after false diagnosis. She literally saved my life. The problems that come with this disorder can be embarrassing and severely restrict a persons life. I am glad your son is getting help. I am also really glad he finally got the celiac diagnosis and hope he is feeling much better soon.

One thing that may help is to take some sublingual B12 to help heal the nerves a bit faster. It won't hurt and some of his pain may be nerve related.