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My Boyfriend Thinks He Has Celiac Disease


Megan7788

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Megan7788 Newbie

My boyfriend and I have been together about a year now. Since I


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GlutenFreeManna Rising Star

My boyfriend and I have been together about a year now. Since I

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Ideally he would go back on gluten for at least a month and to the doctor for testing. As GlutenFreeManna said, he cannot be tested gluten-free. If gluten makes him way to sick to consider going back on it, he'll have to go without testing but a lot of people get tired of the diet and wish they knew whether traces of gluten would harm them.

If you're so inclined, learning about the gluten-free diet and cooking gluten-free food and goodies for him is the most supportive thing to do. It's so nice when a friend pays attention and offers me gluten-free food. You don't have to buy expensive stuff. It's easier to get 100% gluten-free food from scratch with natural, whole ingredients anyway. Get yourself a fresh cutting board that you only use for his gluten-free food and try to cook for him in pots that you've scrubbed well. Things like older teflon and seasoned cast iron often have gluten on them so set those aside for your own cooking. Clean food prep surfaces well too and make sure there are no breadcrumbs or flour around the kitchen.

GlutenFreeManna gave you a great list of foods. Remember that lots of recipes are naturally gluten-free or can be make that way. Something bready like pizza is a really hard place to start. I'm much more likely to do a gluten-free stir fry with rice (San J tamari is gluten-free), fry up some chicken breasts with herbs and serve with mashed potatoes and veggies, or toss something in the broiler or on the grill. (Put foil on the grill rack since it will likely have gluten on it.) Think potatoes and rice, salads and veggies, and meats with naturally gluten-free seasonings.

For eating out, do a little research and make a list of restaurants in your area that you like and that have gluten-free selections. Then you can suggest somewhere you will both enjoy eating.

If either of you have questions, feel free to ask here. We're all experts on this diet, from hard-earned first-hand experience.

  • 2 weeks later...
WheatChef Apprentice

If you've got even the most remedial of skills in the kitchen it's super easy to just keep cooking dishes that are gluten free (assuming you're not vegan). You're already being a super girlfriend with how supportive it sounds like you're being as well as how active you are in learning and asking about info on this whole disease/diet. Eating gluten free around your boyfriend is super awesome and who knows, you may find out that you feel better on the diet as well. Either way, if you do sneak a beer or a bagel every now and then (which would not only be acceptable but simply your right to do so) just be sure that you keep track of this and avoid kissing for almost 2hours afterwards. The gluten in your mouth, stuck under your tongue and around your teeth could inadvertently enter his mouth and cause him problems.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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