Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confusion Over Bread Crumbs!


Cheryl-C

Recommended Posts

Cheryl-C Enthusiast

Hi folks,

I've been doing gluten-free for a couple of months now, and had thought I'd figured out what my sensitivities were. I've noticed my stomach feels better, my ears feel better, everything has been great.

HOWEVER - last night I discovered my favourite souvlaki (from our local Greek butcher) has bread crumbs in it. I've been eating it about 3 times a week all summer, and haven't reacted to it once. However, I *have* reacted to something as weak as wheat starch in salad dressing.

So.... what gives? Thoroughly confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Hi folks,

I've been doing gluten-free for a couple of months now, and had thought I'd figured out what my sensitivities were. I've noticed my stomach feels better, my ears feel better, everything has been great.

HOWEVER - last night I discovered my favourite souvlaki (from our local Greek butcher) has bread crumbs in it. I've been eating it about 3 times a week all summer, and haven't reacted to it once. However, I *have* reacted to something as weak as wheat starch in salad dressing.

So.... what gives? Thoroughly confused.

its weird, i know- but i totally believe it. my reactions to gluten are NOT always the same- and NOT always noticeable. your experience is no surprise to me at all. when i used to eat gluten- reactions varied, digestive ailments varied, location of excema or psoraisis varied, it was always different. sometimes a tiny amount here and there wouldnt bother me- its just the way it is. there's so much complexity to our bodies-> and when we ingest this poison- our body may flare up differently each time

just make sure you're more vigilant.. even if you're not reacting to meatballs- or whatever that greek thing was-> it's still hurting you.

RiceGuy Collaborator

Each individual reacts differently to gluten. I suppose it may be that even though your diet hasn't been 100% gluten-free, it's in considerable contrast to your previously gluten-filled diet such that you can feel the difference. You may also have a wheat allergy, and in that case the reduced amount of exposure would also provide some relief.

I think you may find that you feel even better once you've consistently maintained a 100% gluten-free diet.

Cheryl-C Enthusiast

Thanks for the ideas. I was thinking something along the sames lines of each of you. I have noticed the last couple of times I ate the (so awesome) souvlaki, my gut was fine but my breath was a little shallow. Because we've been undergoing some fluctuating weather in Toronto this last week or so, I had put it down to that.

My dr had said I may have a "grain allergy" so that might explain, as Riceguy pointed out, the difference in response. Unfortunately I can't get in to see the allergist until the beginning of November. :(

CassP, I too have noticed sometimes my responses vary. Sometimes GI, sometimes sinuses, sometimes ear pain, and possibly shortness of breath. I guess it will take a while to sort out. I've been keep a food diary for the last two months with the hope of getting a clearer picture, but I guess I still over looked something. It never occurred to me that there might be bread crumbs in the souvlaki :( It breaks my heart, because as a beef/lamb combo, they are SO RICH IN IRON (my iron is really low) and also .... so freaking tasty. :(

cassP Contributor

Cheryl- you can still get your iron in beef, lamb, dark turkey, eggs, and cultured soy, spinach. but i understand the frustration- i bet souvlaki (sp?) is delish.

i get the Shortness of Breath too!!!! ive seen it on the forum before- ive had it off and on for 27 years. ive only been gluten free 100% for over 2 months. i hope it goes away soon FOREVER!!!

Cheryl-C Enthusiast

Cheryl- you can still get your iron in beef, lamb, dark turkey, eggs, and cultured soy, spinach. but i understand the frustration- i bet souvlaki (sp?) is delish.

i get the Shortness of Breath too!!!! ive seen it on the forum before- ive had it off and on for 27 years. ive only been gluten free 100% for over 2 months. i hope it goes away soon FOREVER!!!

CassP - it's true, there are lots of good ways to get iron. I've never been someone who loved to eat meat, especially beef (yuck) so when we found this tasty combo of beef and lamb (with spices) it was heaven. Anyone who's had a Greek Gyro knows the taste I'm talking about. Ooooo. :D That said, it makes me wonder if I could find them somewhere else without the bread crumbs? Or if I ordered enough of them they'd make them without them.... hmmm.... I'd probably have to buy about 100 at a time, but heck, that's what a freezer's for.

The shortness of breath is something I've only recently noticed. It happened after the blue corn incident, and after the last time I ate the souvlaki. Both times I put down to asthma because of the weather, but now I'm really curious....

cassP Contributor

OH- if they could make them special for you- gluten-free- then that would be a great idea- and freeze some ... YUMMM

my dad made meatballs for my birthday with gluten free bread crumbs- they were DELISH.

but i LOVE my red meat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



anabananakins Explorer
Or if I ordered enough of them they'd make them without them.... hmmm.... I'd probably have to buy about 100 at a time, but heck, that's what a freezer's for.

I reckon they would and probably not even make you get too many at a time either. Butchers often do special orders, my mum always asks for a particular cut for when she makes roast beef. They'll probably be flattered that you love it so much and it's nice for them to get feedback on what the customers want, they could only tell otherwise based on sales and that's harder if they can't tell who is a repeat customer. Definitely worth asking! Besides, omitting an ingredient can only cost them less and if it doesn't affect the taste, maybe they'll do it permanently and make other people happy too?

Cheryl-C Enthusiast

I reckon they would and probably not even make you get too many at a time either. Butchers often do special orders, my mum always asks for a particular cut for when she makes roast beef. They'll probably be flattered that you love it so much and it's nice for them to get feedback on what the customers want, they could only tell otherwise based on sales and that's harder if they can't tell who is a repeat customer. Definitely worth asking! Besides, omitting an ingredient can only cost them less and if it doesn't affect the taste, maybe they'll do it permanently and make other people happy too?

I think it's definitely worth a try. We buy them a lot, they're used to seeing our faces there once a week or so. I guess if we went a time that wasn't busy, I'd be able to talk to someone about it and get some more information. I'd be willing to keep a standard order even, to guarantee them the business. I want my kabobs, darnit! lol I will keep you all posted on my progress.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.