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Undiagnosed Illness 6 Years


undiagnosedillness

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undiagnosedillness Newbie

Just wanted to say a quick hello to everyone :) (and hope I've picked the right section to post ?

I've been undiagnosed for just on 6 years now, many different symptoms, my own research lead me here B) no harm in trying the gluten free diet even though testing was negative.

After reading several pages here it seems alot of people suffer a whole range of health problems you'd never think gluten intolerance could answer for .....

Anyway I hope to find the answers to my undiagnosed illness, still struggling after all this time so I've just started the gluten free diet this week

Cheers

Samantha


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ravenwoodglass Mentor

Welcome to the board. I hope you are feeling better soon. There is a lot of support here. Ask any questions you need to as the first couple months can be difficult.

undiagnosedillness Newbie

Thanks for the welcome :D

Im shocked at how many people have health issues because of undiagnosed gluten intolerance, I feel like I've hit a gold mine with all this info !

Cheers

Samantha

Welcome to the board. I hope you are feeling better soon. There is a lot of support here. Ask any questions you need to as the first couple months can be difficult.

jackay Enthusiast

Have you gone gluten free or are you getting tested first?

undiagnosedillness Newbie

I haven't had any testing done in years, once back in 2005 which was negative. I have no faith in Doctors so just trying my luck with a gluten free diet because I've got alot of bowel issues and the first week gluten free I must say feels good, sorry if too much info but I haven't been constipated this week and that is very very rare for me so I must be onto something :)

PS- I've had so many tests/scans in the past which all came back normal so I just don't trust Doctor or machines these days.

I've tested positive to IBS, Fibromyalgia, Costochondritis, Neuropathic pain, the list is endless I could go on and on :rolleyes: and Doctors can't help me so it's time for some big Diet changes, I really didn't think food could cause so much pain but perhaps it is causing some of my health concerns ???

Sorry I tend to babble abit :D

Samantha

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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